Re: New Here & do not know what to do. I Think I got Endo
From: anonymous (anonymous@obgyn.net)
Tue Sep 18 02:15:54 2007
Endo does not equal infertility. A lot of women after excision surgery
go on to have children.
Can you go to one of those wal-mart clinics for a doctor? Do you have
any doctor you can call? i think with a UTI you need meds
Also look up IC
this might be helpful
http://www.womentowomen.com/urinaryincontinence/stopurinarytractinfections.asp
I had endo near my bladder, but had it excised
At Tue, 18 Sep 2007, inpain wrote:
>
>Please help! Just recently moved to a different state. I've been here
>for about a month. Although I've not been eating healthy, I haven't
>really been sick. I was using the restroom today, and I felt like I had
>to urinate really bad, but hardly anything came out. I kept repeately
>trying to go because I felt like I really needed to. I called my mom
>and gave her the description, she thinks it's a UTI. I went out to
>Target and bought something to help treat UTIs. Then all of a sudden I
>got really nauseous. The weird thing is, is that it burns, but not when
>I use the restroom. I'm on my period, and I can't tell if I'm nauseous
>because of my period, or if it's more like a kidney infection, which I
>know are very serious. Any suggestions? I really don't want to go to
>the doctor unless absolutely necessary. I'm really busy working several
>jobs and really can't afford to take time off work to have them tell me
>they don't know.
>
>At Fri, 7 Apr 2006, Kerry wrote:
>>
>>Hi. I was reading your messages about frequent infections and other
>>endometriosis symptoms. Frequent infections seem to be the beginning of
>>the symptoms of endometriosis for me. Since last summer I've had one
>>infection after another. First it was bacterial vaginosis, then it was
>>yeast, both of which I had a lot of trouble getting rid of. What
>>finally killed the bacterial vaginosis was a combination of antibiotic
>>and a baking soda douche. As for the yeast, I had to use boric acid
>>suppositories (what fun!). Then I tested positive for Group B Strep in
>>my vaginal area which my doctors had no idea what to do with. After
>>they attempted to treat me unsuccessfully they realized they didn't need
>>to because some women are carriers of this in their vagina and GI tract.
>>Then, I began having bladder issues - cramping and bladder issues
>>similar to having a kidney stone (I've had 2). Had a CT scan and it
>>wasn't a stone. They cultured my urine and found Group B Strep in my
>>urinary tract. This they had to treat. So I took Keflex and got
>>recultured. All was okay at that point. The symptoms worsened and I
>>realized that the cramps, nausea, mild fever, urinary frequency/urgency
>>got worse 1 week prior to my period, and got really bad during my
>>period. I had an ultrasound and that was normal. Almost everything but
>>Endometriosis has been eliminated. Had my urine test positive again for
>>Group B Strep and am now on Keflex one more time. I guess I keep
>>reinfecting myself. Have finally found a doctor who has experience with
>>endo and he thinks I have it. My laparascopy will be in a few weeks and
>>I can't wait. Normally, I'd be nervous but I am over the pain I've been
>>feeling. Plus, my husband and I would like to get pregnant and will try
>>once the lap is done and I'm healed. I feel for every one of you has
>>had to deal with this. I've only had my severe symptoms for a few
>>months now and can't imagine how anyone manages with this for long
>>periods of time. Oh, by the way, all of this happened, I believe,
>>because I went off the birth control pill about 15 months ago to get it
>>out of my system before my husband and I tried to get pregnant. I'd
>>been on the pill for 10+ years. Guess I waited to long to have kids
>>(I'm 31 now). I really like reading everyone's stories. It's very
>>difficult for all of us and to have others to relate to is great. Our
>>significant others have a hard time dealing with this I know.
>>
>>--
>>Kerry
>>
>>At Mon, 3 Apr 2006, JoCee27 wrote:
>>>
>>>KAYLEE I BROKE UP YOUR POST TO ANSWER IN DIFFERENT AREAS. YOU'LL FIND
>>>MY ANSWERS IN BOLD.
>>>
>>>JOCEE
>>>
>>>>>At Thu, 30 Mar 2006, KayLee wrote:
>>>>>>
>>>>>>Hello Everyone,
>>>>>>
>>>>>>I have been reading many messages on this website & thought I would go
>>>>>>ahed & see what some of you think about my situation. I do not know
>>>>>>where to turn. I have been having chronic UTI's (or that is what I have
>>>>>>advised I have been having all the years) since I was 19 years old. As
>>>>>>I get older they get worse & I have had several doctors & ER rooms
>>>>>>diagnose me with everything from a UTI to PID to Bacterial Vaginosis &
>>>>>>they just give me antibiotics & within 2-4 weeks I am back at the doctor
>>>>>>or in the ER Room.
>>>
>>>VERY TRUE WITH THE UTI DIAGNOSIS. EVERY U/A I'VE HAD DONE SINCE THE AGE
>>>OF 15 HAS COME BACK POSITIVE FOR A UTI; SO FOR 14 YEARS I'VE BEEN TOLD
>>>THE SAME THING "You have blah blah blah....and a UTI." LIKE YOU, I TOOK
>>>KEFLEX, PENICILLIN, AMOXICILLIN, BACTRUM, AND FLAGYL FOR A UTI THAT I
>>>NEVER FELT SYMPTOMS OF. EVEN AFTER 3 DAYS OF ENDING THE ANTI-BIOTICS, I
>>>STILL TESTED POSTIVE FOR A UTI. IT JUST BECAME A JOKE AROUND HERE THAT
>>>NO MATTER WHAT IS WRONG WITH ME I CAN COUNT ON HAVING A UTI.
>>>
>>>>>>Well, about a year ago I started having more & more
>>>>>>pelvic pain & they just kept giving me Flagyl & then I would get a UTI
>>>>>>(or so they say) & they would give me an antiobiotic (I have had
>>>>>>everything from Levequin to Bactrim to Avelox, etc.). Well then my
>>>>>>pelvic pain starting getting worse & worse & the past few months I have
>>>>>>chronic (its like a bloating/fullness feeling) stomach bloating. It is
>>>>>>as if something is in my stomach & it will not come out. I just had an
>>>>>>ultrasound & they found a (3mm(cm)---3 something) cyst but my OB/GYN
>>>>>>does not think that is the cause of my problem.
>>>
>>>MY OB/GYN ALSO SAID THAT MY CYST WAS NOT THE PROBLEM AND CLAIMED THAT I
>>>COULD NOT BE FEELING ALL THE PAIN I WAS FEELING FROM A 5.4 CYST. SHE
>>>CLAIMED SHE DIDN'T KNOW WHERE THE PAIN WAS COMING FROM, SWORE UP AND
>>>DOWN THAT ENDOMETRIOSIS DOESN'T HURT, AND SUGGESTED THAT I GO TO A PAIN
>>>MANAGEMENT SPECIALIST AND SEE A GASTROENTEROLOGIST FOR MY BOWELS BECAUSE
>>>SHE WAS ALMOST POSITIVE MY PAIN WAS BOWEL RELATED AND NOT ENDO RELATED.
>>>SHE REFUSED TO PRESCRIBE PAIN MEDS...WHICH SHE DID ALL OF 3 TIMES 20
>>>TABLETS AT A TIME WHICH WAS SUPPOSED TO LAST ONLY 3 DAYS AND I HAD TO
>>>CRY AND BEG FOR MERCY TO GET THAT...AND SHE SAID THAT IF I NEEDED PAIN
>>>MEDICINE THAT SHE WOULD REFER ME TO PAIN MANAGEMENT AND LET THEM SLICE
>>>THEIR THROAT GETTING ME ADDICTED; BUT THE BLOOD WOULDN'T BE ON HER
>>>HANDS. SHE REFUSED TO DO SURGERY, REFUSED A HYSTERECTOMY, AND REFUSED
>>>TO REMOVE THE CYST. I'D BEEN PRESCRIBED PAIN MEDICINE 6 TIMES IN 29
>>>YEARS. SOUNDS LIKE I'm ADDICTED DOESN'T IT?
>>>
>>>>>>They did a Urine
>>>>>>Culture & found nothing. They however did a Urinalysis & found blood in
>>>>>>my urine & some other odd things or so they said. They did a pregnancy
>>>>>>blood test & I am definitely not pregnant. I have been to an Infectious
>>>>>>Disease Specialist & he tested me for Lupus & I do not have that. I
>>>>>>have been to a Urologist & he has done several Catherizations along with
>>>>>>a Cystoscopy & a Urethral Dilation (which hurt like hell) & within 2
>>>>>>weeks I was having a problem again. I have been having chronic fatigue
>>>>>>that gets worse & worse as I get older (I can barely make it to work but
>>>>>>I do & when I get home I can hardly clean my house---this just about
>>>>>>drives me nuts because I am a clean freak).
>>>
>>>I AM IN THE SAME BOAT WITH THE HOUSE CLEANING ISSUE. I AM SO TIRED THAT
>>>EVEN 8 or 9 HOURS SLEEP AT NIGHT LEAVES ME FEELING EXHAUSTED AND LIKE I
>>>ONLY HAD 3-4 HOURS SLEEP BY THE TIME I GET HOME FROM WORK WHEN I
>>>SHOULDN'T BE TIRED AT ALL. I STARTED TRYING TO SLEEP 6-7 HOURS, RESTING
>>>LESS AT NIGHT TO SEE IF THAT WOULD INCREASE MY ENERGY AND OF COURSE THAT
>>>DIDN'T WORK.
>>>
>>>>>>I am having severe stabbing
>>>>>>like pain around my belly button that flares down to my vagina from time
>>>>>>to time & then it sometimes flares to my sides.
>>>
>>>THIS SYMPTOM IS CONSISTENT WITH IC. IT'S ALSO KNOWN AS SPASMING OF THE
>>>URETER. I HAVE THIS SAME PROBLEM.
>>>
>>>>>>The past few days I
>>>>>>have been having severe pain in the mid section of my back that has been
>>>>>>flaring to the sides too. And, I also have chronic (pain that has not
>>>>>>went away for the past 2 weeks) pressure & pain all around my mid
>>>>>>section region. I have times where I get very dizzy & feel like I am
>>>>>>going to pass out but I am not sure if that is related. But when I get
>>>>>>these pains I also have horrible naseau & hot flashes too. The ER gave
>>>>>>me heavy duty pain medicine but sometimes I take it (if the pain is bad
>>>>>>enough) & the pain still does not go away.
>>>
>>>I EXPERIENCE THE SAME EXACT THING. YOU FEEL LIKE YOU ARE ON YOUR PERIOD
>>>ALL THE TIME OR LIKE SOMETHING IS STUCK INSIDE OF YOU WITH THORNS ON IT
>>>OR SPIKES THAT WON'T GIVE NO MATTER WHAT AND YOU FEEL LIKE YOU ARE
>>>HAVING UTERAN CONTRACTIONS.
>>>
>>>>>>Also, (I know this sounds
>>>>>>funny) but during my period I have horrible bouts of diarrhea,
>>>>>>constipation & gas. Also, I have noticed that within the past year I
>>>>>>started cramping, clotting real bad & having tender breasts before my
>>>>>>period. Prior to that I had none of that at all.
>>>
>>>I'VE DEALT WITH THIS SINCE 14 AND I WAS TOLD THAT IT WAS RELATED TO
>>>DYSMENNORHEA WHICH IS SEVERELY PAINFUL PERIODS ACCOMPANIED WITH
>>>DIARRHEA, BLOATING, CONSTIPATION, AND FULLNESS OF THE BLADDER. THIS IS
>>>ALSO ANOTHER SIGN OF ENDOMETRIOSIS; HARD TO TELL BETWEEN THE TWO.
>>>
>>>>>>My periods have
>>>>>>always been regular with no pain at all, no breast tenderness. Recently
>>>>>>I have noticed that my periods start off very heavy & I start spotting
>>>>>>real bad afterwards which I have never had before either. My husband
>>>>>>and I have been trying to get pregnant now for 2 years & I got pregnant
>>>>>>once & lost the baby within 2 weeks & then the next year I actually got
>>>>>>pregnant & was supposed to be 9 weeks along but ended up having a
>>>>>>miscarriage at 6 weeks along & the doctor does not know what happened. I
>>>>>>do know that when I was pregnant I had horrible cramping.
>>>
>>>DURING MY SECOND AND THIRD PREGNANCY I EXPERIENCED WHAT FELT LIKE
>>>MENSTRUAL CRAMPS VERY OFTEN. MY DOCTOR TOLD ME THAT IT WAS ONLY
>>>BRAXTON-HICKS CONTRACTIONS (False Labor Pains). I FOUND OUT THAT THE
>>>REASON FOR THOSE PAINS WERE DUE TO THE FACT THE WEIGHT OF THE BABY WAS
>>>PULLING ON THE ENDOMETRIAL ADHESIONS IN MY BODY.
>>>
>>>>>>This is weird
>>>>>>too, when I ate (& this also happens now) while I was pregnant my cramps
>>>>>>got so bad I did not want to eat at times (I thought that was really
>>>>>>strange but did not mention it to anyone). My OB/GYN is sending me to a
>>>>>>Urologist because he thinks I have Interstitial Cystitis but I do not
>>>>>>think that is what I have.
>>>
>>>YOU VERY WELL COULD HAVE THIS ALONG WITH ENDOMETRIOSIS AS I HAVE IC AND
>>>MY SYMPTOMS OF IT ARE AS STATED ABOVE. IT'S NOT RARE THAT IC SHOULD
>>>ACCOMPANY ENDO AS MANY WOMEN HERE HAVE THIS AS WELL.
>>>
>>>>>>I have been looking on the internet & none
>>>>>>of these symptoms I am having match with Interstitial Cystitis. I asked
>>>>>>my OB/GYN what about Endometriosis & his response was "First of all if
>>>>>>you had that you would not have been able to get pregnant in the first
>>>>>>place. And, with Endometriosis you only have pain during your period.
>>>>>>No, you do not have Endometriosis"
>>>
>>>BULL HOCKEY!! I DID!! I'VE GOT 3 CHILDREN RUNNING AROUND AND A BODY FULL
>>>OF ENDO. IF I HAD WAITED UNTIL NOW TO GET PREGNANT AND HAVE KIDS, THEN
>>>NO I PROBABLY WOULDN'T HAVE HAD ANY. AND PAIN ONLY DURING YOUR PERIOD??
>>>WHATEVER!! MAYBE SOMEBODY SHOULD TRY TELLING MY BODY TO ONLY HURT 7 DAYS
>>>A WEEK. THAT WOULD BE A RELIEF FROM THE 20 DAYS I'M HURTING!
>>>
>>>LADYENDO JOCEE
>>>
>>>>>>No, you do not have Endometriosis" Well, I am probably boring all of you
>>>>>>by now.
>>>>>>
>>>>>>Let me know what you think!!!!
>>>>>>KayLee
>>>
>>>--
>>>ENDOANGEL JOCEE
>>>
>>>Endometriosis Online Support Group
>>>http://com3.runboard.com/bendometriosissupportgroup
>>>
>>>Endo Sisterhood Support Group
>>>http://health.groups.yahoo.com/group/EndoSisterhood/
>>>
>>--
>>Kerry
>>
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