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Re: New Here & do not know what to do. I Think I got Endo
From: inpain (anonymous@obgyn.net)
Tue Sep 18 01:38:55 2007
Please help! Just recently moved to a different state. I've been here
for about a month. Although I've not been eating healthy, I haven't
really been sick. I was using the restroom today, and I felt like I had
to urinate really bad, but hardly anything came out. I kept repeately
trying to go because I felt like I really needed to. I called my mom
and gave her the description, she thinks it's a UTI. I went out to
Target and bought something to help treat UTIs. Then all of a sudden I
got really nauseous. The weird thing is, is that it burns, but not when
I use the restroom. I'm on my period, and I can't tell if I'm nauseous
because of my period, or if it's more like a kidney infection, which I
know are very serious. Any suggestions? I really don't want to go to
the doctor unless absolutely necessary. I'm really busy working several
jobs and really can't afford to take time off work to have them tell me
they don't know.
At Fri, 7 Apr 2006, Kerry wrote:
>
>Hi. I was reading your messages about frequent infections and other
>endometriosis symptoms. Frequent infections seem to be the beginning of
>the symptoms of endometriosis for me. Since last summer I've had one
>infection after another. First it was bacterial vaginosis, then it was
>yeast, both of which I had a lot of trouble getting rid of. What
>finally killed the bacterial vaginosis was a combination of antibiotic
>and a baking soda douche. As for the yeast, I had to use boric acid
>suppositories (what fun!). Then I tested positive for Group B Strep in
>my vaginal area which my doctors had no idea what to do with. After
>they attempted to treat me unsuccessfully they realized they didn't need
>to because some women are carriers of this in their vagina and GI tract.
>Then, I began having bladder issues - cramping and bladder issues
>similar to having a kidney stone (I've had 2). Had a CT scan and it
>wasn't a stone. They cultured my urine and found Group B Strep in my
>urinary tract. This they had to treat. So I took Keflex and got
>recultured. All was okay at that point. The symptoms worsened and I
>realized that the cramps, nausea, mild fever, urinary frequency/urgency
>got worse 1 week prior to my period, and got really bad during my
>period. I had an ultrasound and that was normal. Almost everything but
>Endometriosis has been eliminated. Had my urine test positive again for
>Group B Strep and am now on Keflex one more time. I guess I keep
>reinfecting myself. Have finally found a doctor who has experience with
>endo and he thinks I have it. My laparascopy will be in a few weeks and
>I can't wait. Normally, I'd be nervous but I am over the pain I've been
>feeling. Plus, my husband and I would like to get pregnant and will try
>once the lap is done and I'm healed. I feel for every one of you has
>had to deal with this. I've only had my severe symptoms for a few
>months now and can't imagine how anyone manages with this for long
>periods of time. Oh, by the way, all of this happened, I believe,
>because I went off the birth control pill about 15 months ago to get it
>out of my system before my husband and I tried to get pregnant. I'd
>been on the pill for 10+ years. Guess I waited to long to have kids
>(I'm 31 now). I really like reading everyone's stories. It's very
>difficult for all of us and to have others to relate to is great. Our
>significant others have a hard time dealing with this I know.
>
>--
>Kerry
>
>At Mon, 3 Apr 2006, JoCee27 wrote:
>>
>>KAYLEE I BROKE UP YOUR POST TO ANSWER IN DIFFERENT AREAS. YOU'LL FIND
>>MY ANSWERS IN BOLD.
>>
>>JOCEE
>>
>>>>At Thu, 30 Mar 2006, KayLee wrote:
>>>>>
>>>>>Hello Everyone,
>>>>>
>>>>>I have been reading many messages on this website & thought I would go
>>>>>ahed & see what some of you think about my situation. I do not know
>>>>>where to turn. I have been having chronic UTI's (or that is what I have
>>>>>advised I have been having all the years) since I was 19 years old. As
>>>>>I get older they get worse & I have had several doctors & ER rooms
>>>>>diagnose me with everything from a UTI to PID to Bacterial Vaginosis &
>>>>>they just give me antibiotics & within 2-4 weeks I am back at the doctor
>>>>>or in the ER Room.
>>
>>VERY TRUE WITH THE UTI DIAGNOSIS. EVERY U/A I'VE HAD DONE SINCE THE AGE
>>OF 15 HAS COME BACK POSITIVE FOR A UTI; SO FOR 14 YEARS I'VE BEEN TOLD
>>THE SAME THING "You have blah blah blah....and a UTI." LIKE YOU, I TOOK
>>KEFLEX, PENICILLIN, AMOXICILLIN, BACTRUM, AND FLAGYL FOR A UTI THAT I
>>NEVER FELT SYMPTOMS OF. EVEN AFTER 3 DAYS OF ENDING THE ANTI-BIOTICS, I
>>STILL TESTED POSTIVE FOR A UTI. IT JUST BECAME A JOKE AROUND HERE THAT
>>NO MATTER WHAT IS WRONG WITH ME I CAN COUNT ON HAVING A UTI.
>>
>>>>>Well, about a year ago I started having more & more
>>>>>pelvic pain & they just kept giving me Flagyl & then I would get a UTI
>>>>>(or so they say) & they would give me an antiobiotic (I have had
>>>>>everything from Levequin to Bactrim to Avelox, etc.). Well then my
>>>>>pelvic pain starting getting worse & worse & the past few months I have
>>>>>chronic (its like a bloating/fullness feeling) stomach bloating. It is
>>>>>as if something is in my stomach & it will not come out. I just had an
>>>>>ultrasound & they found a (3mm(cm)---3 something) cyst but my OB/GYN
>>>>>does not think that is the cause of my problem.
>>
>>MY OB/GYN ALSO SAID THAT MY CYST WAS NOT THE PROBLEM AND CLAIMED THAT I
>>COULD NOT BE FEELING ALL THE PAIN I WAS FEELING FROM A 5.4 CYST. SHE
>>CLAIMED SHE DIDN'T KNOW WHERE THE PAIN WAS COMING FROM, SWORE UP AND
>>DOWN THAT ENDOMETRIOSIS DOESN'T HURT, AND SUGGESTED THAT I GO TO A PAIN
>>MANAGEMENT SPECIALIST AND SEE A GASTROENTEROLOGIST FOR MY BOWELS BECAUSE
>>SHE WAS ALMOST POSITIVE MY PAIN WAS BOWEL RELATED AND NOT ENDO RELATED.
>>SHE REFUSED TO PRESCRIBE PAIN MEDS...WHICH SHE DID ALL OF 3 TIMES 20
>>TABLETS AT A TIME WHICH WAS SUPPOSED TO LAST ONLY 3 DAYS AND I HAD TO
>>CRY AND BEG FOR MERCY TO GET THAT...AND SHE SAID THAT IF I NEEDED PAIN
>>MEDICINE THAT SHE WOULD REFER ME TO PAIN MANAGEMENT AND LET THEM SLICE
>>THEIR THROAT GETTING ME ADDICTED; BUT THE BLOOD WOULDN'T BE ON HER
>>HANDS. SHE REFUSED TO DO SURGERY, REFUSED A HYSTERECTOMY, AND REFUSED
>>TO REMOVE THE CYST. I'D BEEN PRESCRIBED PAIN MEDICINE 6 TIMES IN 29
>>YEARS. SOUNDS LIKE I'm ADDICTED DOESN'T IT?
>>
>>>>>They did a Urine
>>>>>Culture & found nothing. They however did a Urinalysis & found blood in
>>>>>my urine & some other odd things or so they said. They did a pregnancy
>>>>>blood test & I am definitely not pregnant. I have been to an Infectious
>>>>>Disease Specialist & he tested me for Lupus & I do not have that. I
>>>>>have been to a Urologist & he has done several Catherizations along with
>>>>>a Cystoscopy & a Urethral Dilation (which hurt like hell) & within 2
>>>>>weeks I was having a problem again. I have been having chronic fatigue
>>>>>that gets worse & worse as I get older (I can barely make it to work but
>>>>>I do & when I get home I can hardly clean my house---this just about
>>>>>drives me nuts because I am a clean freak).
>>
>>I AM IN THE SAME BOAT WITH THE HOUSE CLEANING ISSUE. I AM SO TIRED THAT
>>EVEN 8 or 9 HOURS SLEEP AT NIGHT LEAVES ME FEELING EXHAUSTED AND LIKE I
>>ONLY HAD 3-4 HOURS SLEEP BY THE TIME I GET HOME FROM WORK WHEN I
>>SHOULDN'T BE TIRED AT ALL. I STARTED TRYING TO SLEEP 6-7 HOURS, RESTING
>>LESS AT NIGHT TO SEE IF THAT WOULD INCREASE MY ENERGY AND OF COURSE THAT
>>DIDN'T WORK.
>>
>>>>>I am having severe stabbing
>>>>>like pain around my belly button that flares down to my vagina from time
>>>>>to time & then it sometimes flares to my sides.
>>
>>THIS SYMPTOM IS CONSISTENT WITH IC. IT'S ALSO KNOWN AS SPASMING OF THE
>>URETER. I HAVE THIS SAME PROBLEM.
>>
>>>>>The past few days I
>>>>>have been having severe pain in the mid section of my back that has been
>>>>>flaring to the sides too. And, I also have chronic (pain that has not
>>>>>went away for the past 2 weeks) pressure & pain all around my mid
>>>>>section region. I have times where I get very dizzy & feel like I am
>>>>>going to pass out but I am not sure if that is related. But when I get
>>>>>these pains I also have horrible naseau & hot flashes too. The ER gave
>>>>>me heavy duty pain medicine but sometimes I take it (if the pain is bad
>>>>>enough) & the pain still does not go away.
>>
>>I EXPERIENCE THE SAME EXACT THING. YOU FEEL LIKE YOU ARE ON YOUR PERIOD
>>ALL THE TIME OR LIKE SOMETHING IS STUCK INSIDE OF YOU WITH THORNS ON IT
>>OR SPIKES THAT WON'T GIVE NO MATTER WHAT AND YOU FEEL LIKE YOU ARE
>>HAVING UTERAN CONTRACTIONS.
>>
>>>>>Also, (I know this sounds
>>>>>funny) but during my period I have horrible bouts of diarrhea,
>>>>>constipation & gas. Also, I have noticed that within the past year I
>>>>>started cramping, clotting real bad & having tender breasts before my
>>>>>period. Prior to that I had none of that at all.
>>
>>I'VE DEALT WITH THIS SINCE 14 AND I WAS TOLD THAT IT WAS RELATED TO
>>DYSMENNORHEA WHICH IS SEVERELY PAINFUL PERIODS ACCOMPANIED WITH
>>DIARRHEA, BLOATING, CONSTIPATION, AND FULLNESS OF THE BLADDER. THIS IS
>>ALSO ANOTHER SIGN OF ENDOMETRIOSIS; HARD TO TELL BETWEEN THE TWO.
>>
>>>>>My periods have
>>>>>always been regular with no pain at all, no breast tenderness. Recently
>>>>>I have noticed that my periods start off very heavy & I start spotting
>>>>>real bad afterwards which I have never had before either. My husband
>>>>>and I have been trying to get pregnant now for 2 years & I got pregnant
>>>>>once & lost the baby within 2 weeks & then the next year I actually got
>>>>>pregnant & was supposed to be 9 weeks along but ended up having a
>>>>>miscarriage at 6 weeks along & the doctor does not know what happened. I
>>>>>do know that when I was pregnant I had horrible cramping.
>>
>>DURING MY SECOND AND THIRD PREGNANCY I EXPERIENCED WHAT FELT LIKE
>>MENSTRUAL CRAMPS VERY OFTEN. MY DOCTOR TOLD ME THAT IT WAS ONLY
>>BRAXTON-HICKS CONTRACTIONS (False Labor Pains). I FOUND OUT THAT THE
>>REASON FOR THOSE PAINS WERE DUE TO THE FACT THE WEIGHT OF THE BABY WAS
>>PULLING ON THE ENDOMETRIAL ADHESIONS IN MY BODY.
>>
>>>>>This is weird
>>>>>too, when I ate (& this also happens now) while I was pregnant my cramps
>>>>>got so bad I did not want to eat at times (I thought that was really
>>>>>strange but did not mention it to anyone). My OB/GYN is sending me to a
>>>>>Urologist because he thinks I have Interstitial Cystitis but I do not
>>>>>think that is what I have.
>>
>>YOU VERY WELL COULD HAVE THIS ALONG WITH ENDOMETRIOSIS AS I HAVE IC AND
>>MY SYMPTOMS OF IT ARE AS STATED ABOVE. IT'S NOT RARE THAT IC SHOULD
>>ACCOMPANY ENDO AS MANY WOMEN HERE HAVE THIS AS WELL.
>>
>>>>>I have been looking on the internet & none
>>>>>of these symptoms I am having match with Interstitial Cystitis. I asked
>>>>>my OB/GYN what about Endometriosis & his response was "First of all if
>>>>>you had that you would not have been able to get pregnant in the first
>>>>>place. And, with Endometriosis you only have pain during your period.
>>>>>No, you do not have Endometriosis"
>>
>>BULL HOCKEY!! I DID!! I'VE GOT 3 CHILDREN RUNNING AROUND AND A BODY FULL
>>OF ENDO. IF I HAD WAITED UNTIL NOW TO GET PREGNANT AND HAVE KIDS, THEN
>>NO I PROBABLY WOULDN'T HAVE HAD ANY. AND PAIN ONLY DURING YOUR PERIOD??
>>WHATEVER!! MAYBE SOMEBODY SHOULD TRY TELLING MY BODY TO ONLY HURT 7 DAYS
>>A WEEK. THAT WOULD BE A RELIEF FROM THE 20 DAYS I'M HURTING!
>>
>>LADYENDO JOCEE
>>
>>>>>No, you do not have Endometriosis" Well, I am probably boring all of you
>>>>>by now.
>>>>>
>>>>>Let me know what you think!!!!
>>>>>KayLee
>>
>>--
>>ENDOANGEL JOCEE
>>
>>Endometriosis Online Support Group
>>http://com3.runboard.com/bendometriosissupportgroup
>>
>>Endo Sisterhood Support Group
>>http://health.groups.yahoo.com/group/EndoSisterhood/
>>
>--
>Kerry
>
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