ENDO Messages for September, 2007: Re: Pelvic muscle floor spasms

Re: Pelvic muscle floor spasms

From: Charlie (anonymous@obgyn.net)
Sat Sep 15 14:36:33 2007

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At Wed, 27 Jun 2007, Trisha wrote: >
>Male or female I would probably be embarrassed-I know why but then at
>the same time I don't know why? Ya know? I would probably go to him if I
>ever had it done b/c he is the best in town but actually don't even know
>if he does it himself so going to him might not even be an option. Isn't
>is funny how someone like a therapist can seem to know more than your
>dr.? I got that with him, my dr. telling me endo wouldn't cause this or
>that and the therapist is explaining things to me with in terms of how
>the body works. 10 years though? That is such a long time! It does make
>sense to me b/c contracting the muscles is such a natural response and
>after awhile of that it would have to take it's toll somehow right? But
>how do you know if you are one that should try it? What kind of pain is
>it? Normally I have those kind of cramps that seems to radiate from the
>very middle of my pelvis-like a bomb that when it explodes just gets
>bigger and bigger. Recently though I've had some pain where my pelvic
>bone is and it's not the same type of pain. and I think I have an
>adhesion in my hip area b/c I have had hip stuff going on for a few
>years and even though my regular dr., my old obgyn and the ortho surgeon
>I went to said it wasn't the endo, I can now feel a pulling sensation,
>usually when I walk. Maybe it's not but after an MRI, steriod shot
>under CT scan, x rays, and physical therapy I still got nothing. If you
>could kinda explain it a little more to me, and maybe tell me roughly
>how long it takes to work through-though I imagine that varies-I would
>appreciate it. A lot of the stuff we go through, test and treatments is
>not fun but you have to do what you have to do when it concerns your
>health. Thanks so much!
>
>At Tue, 26 Jun 2007, josie wrote:
>>
>>Trisha, if you are uncomfortable with a male, you could ask him if he
>>could give you a referral for a woman who understands pelvic pain
>>issues. I am amazed how many men and women my PT works with that suffer
>>from pelvic pain. She said some couples have gone 10 years with painful
>>sex, etc. before getting treatment and that men are especially
>>reluctant to seek help. It is an awkward thing, but I feel strongly
>>that many women with endo must suffer from this because our bodies are
>>in such pain and the muscles react to that. Then we have developed an
>>entirely new problem! Also, for the first several weeks of my PT (when I
>>noticed lots of improvement) my PT only worked on muscles that were on
>>top of my belly and near my hips (soaz muscles, not spelled right). She
>>said I was very knotted up and worked on those areas. So there are
>>things that would not be so invasive. If you want any other info. I am
>>glad to try to help. Good luck!!
>>At Tue, 26 Jun 2007, Trisha wrote:
>>>
>>>I find this very interesting. A few months before I had my lap I was
>>>going to a physical therapist for pain in my hip/butt/back. He had
>>>mentioned endo to me and said he had a few female patients in the past
>>>that suffered my same symptoms and then found out they had endo. It was
>>>the conversation I had with him that actually made me decide to do the
>>>lap and not wait any longer, I always believed I had endo. Months after
>>>surgery the pain came back and I went back to the physical therapist and
>>>had talked to him about being diagnosed. He mentioned this method to me
>>>and I didn't really know what to think! I had never heard of it before
>>>and although it made sense to me, the thought of doing it was very
>>>embarrassing for me, although he was more so telling me about it as a
>>>form of treatment and not actually suggesting/asking me if I wanted to
>>>try it. I work in a hospital and he is very well known and recommended
>>>so I probably shouln't have dismissed the idea. I'm glad to hear about
>>>this from others, especially to find out it has given some relief-thanks
>>>for posting.
>>>
>>>At Tue, 26 Jun 2007, mdustin wrote:
>>>>
>>>>Hi everyone. I was wondering if anyone had this and what they have been
>>>>able to do about it. Not only do I have this, but also spasms and
>>>>twitches in my legs that result in pain and spasms in my abdomen, arms,
>>>>back and neck. This is a little bit of info on it....
>>>>
>>>>Pelvic Muscle Floor Spasm:
>>>>The bottom of the pelvis is comprised of a series of muscles. These
>>>>muscles extend from the pubic bone in the front to the tail bone in the
>>>>back. Whenever we are in pain, the natural tendency is to tense up our
>>>>muscles. This applies to pelvic pain as well. Often, without even
>>>>realizing it, a patient is clenching the pelvic floor muscles. Over
>>>>time, months or years, these muscles can go into spasm and become
>>>>scarred and unable to fully relax. This condition is similar to a knot
>>>>in the muscle in your back. It is not a matter of just relaxing the
>>>>muscle to make the knot go away, this is impossible. Just as deep
>>>>tissue massage is needed to get rid of the knots (muscle spasm and
>>>>muscle fibrosis) in the back, deep tissue massage can be needed in the
>>>>pelvic area. A qualified physical therapist who deals with pelvic pain
>>>>and is experienced in transvaginal (through the vagina) deep tissue
>>>>massage of the pelvic muscle floor is usually needed to correct pelvic
>>>>muscle floor spasms. Although muscle spasms may not seem like a serious
>>>>condition to some, anyone who has experienced a severe spasm in the calf
>>>>knows how excruciatingly the pain can be. Imagine having this pain
>>>>level constantly in the pelvic area. This pain can require treatment
>>>>with high levels of narcotic pain medications. This is one reason why
>>>>patients can continue to experience pain after endometriosis is removed.
>>>>The condition that started the pain is gone, but this secondary
>>>>condition, which was stared because of the endometriosis, now has a life
>>>>of its own. A physical therapist with these specialized skills can help
>>>>with this last step in resolving your pain.
>>>>
>>>>Any input would be helpful. Thank you.

-- Hi,

I am a 71 year old avid tennis player. Had pain in my hip and butt. First I thought it was bursitis. Second I thought it was a labral tear or a tendon tear.

I fixed this after getting this diagnosed as a gluteus medias strain by first getting a chiropractor to adjust the back which immediately reduced the pain but did not eliminate the discomfort or the knot in my butt.

Solution has been to use a foam roller with a piriformis stretch right on the part where the pain is. I have continued this painful in itself pressure over several days with several interventions a day until the muscle released and relaxed.

Now I am strengthening the gluteus medius by lying on my side against a wall with my knees bent and raising my knee on the injured side to strenthen.

I now realize that I have had this problem resulting from weak core muscles for many, many years and now see how to get a perma fix.

My sense is that getting the back in alignment takes a professional. Scary but it works.

My sense is that the foam roller is more effective that massage or Active Release Therapy because you can do it yourself.

Also there are plenty of exercise for the gluteus medius on youtube.

Next message: Jessica: "non narcotic pain meds, any ideas?"
Previous message: Laura: "Re: INTERSTITIAL CYSTITIS/DOCTORS/WHY CAN'T THEY UNDERSTAND"

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