ENDO Messages for September, 2007: Re: Back from the doctors

Re: Back from the doctors

From: andrea (anonymous@obgyn.net)
Fri Sep 14 19:54:36 2007

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Maggie,

I'm sorry your doctor did not help you!! For God's sake, if everything this doc has given you has made you feel worse, your husband should be supportive of you finding someone who can give you hope of getting well and some medicines that will work. Just know you HAVE MY SUPPORT!!!

You really have to think of yourself at this point and not worry about upsetting your husband. Tell him you want to be around to see your children grow up and you cannot continue taking drugs that his uncle (the doc) gives you that you feel make you sicker or put your health as further serious risk! You have nothing to feel guilty about and he is being selfish by discouraging you from finding someone else.

As far as prozac, I actually started taking Lexapro a couple months ago because I was so scared and depressed about possibly getting my uterus removed with my lap and not having kids, and it did block some of my negative thoughts and keep me calm, but it also drained all of my energy and I was unable to exercise much or do anything. I think I would rather have the stress and be able to be more active.

Getting on and then off of, anti-depressants sucks. When I first started taking Lexapro, I felt like i was on an LSD trip for 3 days straight, (my sense of touch, taste, smell, vision was affected and felt funny) then that went away, and now that I'm getting off of it, I feel nauseated and a little weird again. I have decided that it's much better for me just to take a Xanax when I feel major anxiety about my surgery coming on. Then, on other days, I can still have my energy and feel normal. I have not even scheduled anything yet and I'm terrified, but I need to be able to work out to feel healthy. I just wanted to give you my experience, so you know what may be coming. I have 2 friends on anti-depressants and they said, once you get over the initial first 3 or 4 days of feeling weird you feel fine and you do, but just tired.

I'm not sure I would take what that doc has given you, because I'm sure the BC pills have estrogen in them and i think that is part of the reason you feel so yucky. Estrogen takes 2-3 weeks to totally get out of your system, so the Premarin could still be affecting you a little. Find a new doc ASAP and get some meds and a hormone level check, ( I know, easier said, than done). I know you feel depressed because your estrogen may be higher than your progesterone right now and quitting smoking is stressful too. We are all behind you and you can DO THIS! You are young Maggie, and just know, I went through all of this struggle too, going to doc after doc, pill after pill, year after year. It made me feel hopeless too. It is a real struggle to find a doc who is caring and helpful with this disease. I had so many one or two time visits and so many docs made me cry.

I also had my entire GI checked out years ago and all kinds of tests for that. Had to drink some kind of nasty, radio-active barium, so they could see my intestines glow on an x-ray machine. It was a waste of money and time and nothing was wrong with my GI. A pelvic pain/endo specialist will be able to see where you endo is located, no matter where and know if your GI is ok also. A GI doc won't be able to do a lap on you if needed, so you can save time by just finding a pelvic/endo specialist.

Maggie, I want you to know that I don't consider myself an authority on all of this junk at all. But, I have been through and experienced a lot with this disease, medications and with doctors over 20 years and want to share with others, so they don't waste their time and money like I did. I wish someone would have been there to advise me on what to do years ago and kept me from making some of the mistakes that I did. I felt so alone and did not know what the hell to do, or where to turn. I just hope my advice is helpful to you.

I'm glad you did something nice for yourself, you deserve it! I always give myself a facial and a pedicure when I hurt and it helps. :)

Your Friend, Andrea

At Fri, 14 Sep 2007, mdustin wrote: >
>I know...I have been thinking of this for some time. I suppose that my
>doctor won't be so hurt by me trying to see a specialist if he's already
>sending me to a GI doctor,(which I have to wait untill the end of
>October to be seen) due to him saying that he can't do anything more for
>me. Atleast, I hope. I have also thought that I could have GI and
>bladder problems before I was diagnosed with Endo. But, nothing was
>ever done to be able to tell. As far as my anxiety/depression goes, my
>doctor said that it will take about a month to tell if the Prosac will
>help me. I'm already feeling so down, it's hard to think that I have to
>deal with this much longer. But, I guess I have no other choice. The
>nurses were really nice, as I stood there, trying not to cry. They both
>told me to go do something nice for myself, so I went out and bought a
>new pair of brown boots...something that I have wanted for a while
>now....the funny thing is...I have no clothes that look good with my new
>boots! Imagine that!
>
>Well, I guess it's time to really crack down and find a new doctor. My
>husband will be upset with me, but what other choice do I have? My hubby
>is also pushing me to quit smoking. Something that I have been planning
>on doing (I even got the patches). Just the fact that he's pushing me,
>makes me want to delay it. I suppose that has something to do with my
>depression right now. I am agitated very easily. I need to be ready to
>quit, and I'm almost there. I hope, I'm planning on quitting on Monday.
>
>At Fri, 14 Sep 2007, anonymous wrote:
>>
>>please go see a differnt doctor. just because your doctor doesn't think
>>anything else can be done doesn't mean that nothing can be done. it
>>just means that HE can't do anything more. please don't make the
>>mistake i made. please see another doctor. if possible, send your
>>records to a specialist for them to review. dr. albee doesn't charge
>>to review records. even if you couldn't get to see a specialist, mabye
>>if you had his opinion, you could take that to another doctor and get
>>them to do something.
>>
>>At Fri, 14 Sep 2007, mdustin wrote:
>>>
>>>Hello everyone.
>>>I went to see my doctor this morning. And it didn't go very well. My
>>>doctor did an exam, even though I'm bleeding much heavier today. No
>>>tests were done or anything. He felt my abdomen, bladder, uterus and
>>>bladder areas. All were tender. I woke up this morning at 4:30 in
>>>extreme pain and had a very difficult time going back to sleep. During
>>>the exam, he asked if I had trouble with bowel movements. I replied,
>>>yes, I always have. He then said that he wanted me to go to a GI
>>>consult and said that since I've already had my lap done and have been
>>>on Lupron, there is not much more that he can do for me. He said that
>>>he doesn't think that my pain is gyn related. And said that, again,
>>>there is nothing that he can really do for me. Then he asked about my
>>>anxiety/depression and gave me a script for Prosac, the lowest dosage.
>>>And then I asked him, well, shouldn't I be on some sort of birth control
>>>now that I am bleeding again, he said, oh, yeah, we'll give you samples.
>>>
>>>I didn't not talk about or ask about many things that I had planned on
>>>discussing, because I felt like at this point, it really wouldn't
>>>matter. He's pretty much told me that he's given up. That my pain
>>>isn't and/or couldn't be due to my Endo. Which, I think is absurd. I
>>>have Endo. But he seems to think that I have IBS or something GI
>>>related to cause all of my pain. Besides getting on something for my
>>>anxiety and depression, I feel that this whole appointment was a loss.
>>>I'm very sad.

Next message: jsteed: "my story"
Previous message: andrea: "Erica"
In reply to: mdustin: "Re: Back from the doctors"
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