Erica
From: andrea (anonymous@obgyn.net)
Fri Sep 14 19:10:30 2007
Erica,
Just curious, when did your doctor give you Zelnorm? It was taken off
the US drug market in March of 2007! Here is the link:
http://www.webmd.com/ibs/news/20070330/ibs-drug-zelnorm-taken-off-us-market
God, I feel like doctors constantly prescribe all of these unnessary
drugs when most of us just need a hormone balance! I went through years
of putting so many useless or harmful pills in my body and all I needed
was a little more progesterone.
Most docs don't want to fix you, they want to keep you as a "customer",
keep coming back for visits, buying pills....etc.... I hate it!!! I
agree with your advice to Maggie about seeing a specialisit. I go to a
natural hormone doctor and an endo/pelvic pain specialist and I feel
like I am in good hands for the first time in 20 years and only taking
the medicines that i really need.
I'm glad you saw Redwine and are feeling much better! That is my goal,
to get off pain pills too. I have to take them for 3 days and can't
work during those days. It is so interfering. Finding the right doctor
who really cares is really the key to fighting this disease!
Take care!
Andrea :)
At Fri, 14 Sep 2007, Erica wrote:
>
>Parts of your message sound so familiar to my story and I'm sure many
>others on here. I too was sent to a GI doctor where they found nothing
>and suspected I could have IBS but couldn't be sure. My GYN put me on a
>trial run of Zelnorm and surprisingly I did do better but I refuse to
>take drug after drug especially since being on Lupron (don't get me
>started on that). I've also had my doctor look at me and tell me that I
>was running out of options-why I decided to try Lupron again-HUGE
>mistake. After taht didn't work I became desperate (after 2 laps and
>many drugs) I said what the hell and decided to have my records reviewed
>by Dr. Redwine and had surgery with him a month and a half ago. I am
>definitely not pain free BUT my symptoms have improved. For the first
>time in 2 years I don't have to take pain killers every day and am
>managing okay with Motrin. Also, I just recently had my first period
>since the surgery and that has improved too. I use to have to lay in
>the bed and take off work for 1-2 days a month. My advice to you is to
>have your records reviewed. The problem is the lack of knowledge and
>expertise about endo. Everything meaningful I've learned about this
>disease I discovered myself-mostly from the wonderful women on this
>site. Doctors say we've done the lap so.... so the problem is they
>didn't do it right the first time..laser doesn't work!! My second lap
>they found more endo than a year before and I'd been on continuous bcp
>and Lupron-go figure!!! Excision is the only tried and true method for
>decreasing the chances of reoccurance. Dr. Mosbrucker in OR is
>reviewing records for free.. If you want to do something for yourself
>see a specialist and do not waste anymore time wondering if your doctor
>will be offended we are talking about your health here! Best of Luck
>At Fri, 14 Sep 2007, mdustin wrote:
>>
>>Hello everyone.
>>I went to see my doctor this morning. And it didn't go very well. My
>>doctor did an exam, even though I'm bleeding much heavier today. No
>>tests were done or anything. He felt my abdomen, bladder, uterus and
>>bladder areas. All were tender. I woke up this morning at 4:30 in
>>extreme pain and had a very difficult time going back to sleep. During
>>the exam, he asked if I had trouble with bowel movements. I replied,
>>yes, I always have. He then said that he wanted me to go to a GI
>>consult and said that since I've already had my lap done and have been
>>on Lupron, there is not much more that he can do for me. He said that
>>he doesn't think that my pain is gyn related. And said that, again,
>>there is nothing that he can really do for me. Then he asked about my
>>anxiety/depression and gave me a script for Prosac, the lowest dosage.
>>And then I asked him, well, shouldn't I be on some sort of birth control
>>now that I am bleeding again, he said, oh, yeah, we'll give you samples.
>>
>>I didn't not talk about or ask about many things that I had planned on
>>discussing, because I felt like at this point, it really wouldn't
>>matter. He's pretty much told me that he's given up. That my pain
>>isn't and/or couldn't be due to my Endo. Which, I think is absurd. I
>>have Endo. But he seems to think that I have IBS or something GI
>>related to cause all of my pain. Besides getting on something for my
>>anxiety and depression, I feel that this whole appointment was a loss.
>>I'm very sad.
>
>--
>Erica L.
>
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