Re: Update to Maggie
From: andrea (anonymous@obgyn.net)
Thu Sep 6 22:27:07 2007
Hi there,
Hope you are having a better day today. I am hoping that if you get off
of the Premarin, many of your terrible symptoms and exhaustion will go
away. My aunt had symptoms so similar to yours while on HRT. She said
it made her feel 80 years old. I hope it's the estrogen causing your
pain and that you don't have Fibromyalgia.
You probably won't know if it's the left over Lupron affects, or the
Premarin doing all of that to you. I was like you though, even on the
pill I would bleed non-stop. My doc told me it's because my hormonse
were so out of whack and the estrogen in the pill was somehow blocking
my hormone receptors in my body. Women on my mom's side of the family
go through menopausse at around 38 so I thought it might be that
creeping up, but it wasn't.
When I was on the pill I was always so exhausted and moody. As for that
vision thing, that was wierd. I woke up to go pee, and halfway thought
I was sleepwalking because I could not see out of one eye. It did not
hurt at all, but very scary. It happened twice, about a few years apart
I would say. Low blood sugar makes me dizzy and a little disoriented,
but not black vision in one eye.
I feel for you, going through this and having two young children. I
can't imagine that. I know when we have this pain, we feel we can
barely take care of ourselves. I hope your doctor will cooperate with
you and give you what you want. You have the right to disagree with him
if you feel you should not be taking estrogen because of your family's
history with cancer. I hope and pray that things take a positive turn
for you soon, Maggie. Ttys,
--
Andrea
At Thu, 6 Sep 2007, mdustin wrote:
>
>Andrea,
>
>I will definetly ask my doctor about taking prometrium and having my
>hormone levels checked when I see him at the end of this month. I have
>been having Endo pains for a while now and fear that I don't know what
>will happen next. I don't know how soon it is to have another surgery
>and would rather not if I don't have to. My son just started school
>today (Kindergarten) and I am still home with my 3 year old daughter. My
>husband is very busy at work and often has to stay late for the events
>he has to be there for, he is an events coordinator for a local college.
>So, it would be difficult for me to go through the healing process all
>over again right now. I just had my surgery in March.
>
>As far as my vision loss goes, it only happened once. And I don't think
>it had to do with blood sugar. I had just eaten 30 minutes to an hour
>before it occured. And it was nothing like the darkend vision I have
>had before with blood sugar problems. I had been driving for about
>20-25 minutes when it happend. It started like a surge of energy, that
>I could really feel that weighed from the top of my head, down to my
>pelvis. As the surge hit my face, my eyes went black and I pulled over,
>as I waited, it was only my left eye that remained black for another 30
>seconds or so. I even pulled into a fast food restaurant, ordered a
>drink, wondering if it was blood sugar related. I really don't think it
>was.
>
>Now, my whole body hurts on a daily basis. It feels half numb, half
>kind of an achy, dull pain. And the pain only gets worse in spurts. The
>worst pain is in my pelvis and legs. Constant pain. I was wondering
>about Fibromalgia. My sister has it. And I have read that it can go
>hand in hand with Endo for some. I really don't know what else all of
>this means, except for the effects of Lupron. None of this happend
>before I had my daughter 3 years ago. After that, I bled every single
>day, regardless of taking various different birth controls. And then
>right before I was diagnosed with Endo, is when the spasms started,
>which only got worse after taking Lupron. It has been nearly 6 months
>now since first taking Lupron.
>
>I have awful anxiety issues now as well. I am thinking about asking my
>doctor for something for that, as it is getting out of hand. I feel
>guilty about my care for my kids. It is very difficult for me to be
>very active, even some days, being active at all. I want to go outside
>with them and play hands on with them all day, and my body and emotions
>just won't let me. It is awful. I don't like being this way and I am
>trying on a daily basis to be better. Sorry to be so long-winded. I
>hope you're having a good day today.
>
>~Maggie
>
>At Wed, 5 Sep 2007, andrea wrote:
>>
>>Hi Maggie,
>>
>>I think a good start for you would be to not take anything with estrogen
>>in it. Isn't that what the Lupron was for? To get rid of estrogen? It
>>makes little sense to me why your doc put you on Premarin which will
>>just replace the estrogen that the Lupron was suposed to supress. You
>>said yourself, you don't think that he really knows what the heck he's
>>doing.
>>
>>Like I said before, my aunt had horrible side effects from Prem-Pro,
>>similar to Premarin. I am wondering now if your episode with your
>>vision loss had something to do with your Premarin. Maybe a blood clot
>>temporarily blocked your optical nerve. I actually had 2 experiences
>>like that in my early 20's. When I was on the pill, I was sleeping had
>>to get up in the middle of the night to go to the bathroom and when I
>>got up, vision in one of my eyes was totally black. It scared me a
>>lot!!! At the time though, I brushed it off as maybe I had slept on my
>>eye wrong or something. That happened twice. Now, I wonder if it was
>>due to the pill and maybe it was a smalll blood clot or stroke in my
>>eye. I did not want to mention that to you earlier, because I did not
>>want to worry you further, but it is true. It has not happened since
>>I've been off the pill. The symptoms of a stroke on WebMd are temporary
>>loss of vision in one or both eyes....
>>
>>All the BC pills say they can cause blood clots, heart attack,
>>stroke.....and I worry for you because you said you have had cancer in
>>your family as well. At least just try prometrium for a week? You would
>>get all the benefits of hormone replacement, but without dangerous
>>risks. Prometrium is a patented version of bio-identical progesterone,
>>so doctors are more willing to prescribe it. Whats the harm in trying
>>it for a week or two? I promise, if you've been through Lupron, you will
>>be amazed at how much better this will make you feel. And if you've
>>done Lupron, YOU CAN DO ANYTHING!
>>
>>You are a strong person, and I look up to you Maggie and your
>>determination to fight. You will get you energy back and not be so
>>moody and probably experience many other benefits too. If your doc
>>won't check your hormones, I'm sure it would be fine to take it anyway
>>because I'm sure the Lupron has made your progesterone level extremely
>>low. This is an option other than the pill and much, much, safer. I'm
>>sure you will write me back if you try it and say, "Holy cow, why did I
>>not try this sooner?!!"
>>
>>I wish you all the best and I'm sorry your search for help has been so
>>frustrating. Please trust me on this. It is the only thing that I've
>>found that helped my endo at all in over 20 years. I think I will be
>>getting my lap in October now. My insurance approval letter came
>>through and from the wording, I don't think they are excluding endo from
>>my coverage - thank God! That's a big relief.
>>
>>My prayers are with you!
>>
>>Your friend,
>>Andrea :)
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