Re: WHY B SO NEGATIVE? What are we the MEAN GIRLS?
From: andrea (anonymous@obgyn.net)
Wed Sep 5 18:02:13 2007
Hi Jess,
Boy, I know your frustration. I have posted a lot on here about what
I've been through over that past 20 years with my endo, the doctors I've
seen, medicines I've tried and someone on here keeps accusing me of
portraying myself as a miss know it all. I am simply trying to help
those who have just been diagnosed with this disease to save some time
and money, and not make the same mistakes I made while trying to find
help all these years. Even after 20 years of researching this disease
and things to try, I am still learning about this disease. I wanted to
give women some other options than just Lupron, since that's what all
the doctors think we should take. I think there are healthier, safer
ways to combat this disease that won't leave us with life-long problems
or consequences.
Jess, I want you to know you are more than welcome to e-mail me anytime.
I have been communicating with about 8 women on here by e-mail and even
one over the phone. It was nice. I try to be as positive and
encouraging as I can, but I do tend to badmouth Lupron a lot, because I
feel the company who makes it is extremely dishonest and doctors don't
need to push it on everyone so incessantly.
I think what the situation may be is that someone is so miserable with
this disease, that they take out their frustrations and anger on us,
which is not right. They need to go see a therapist!
Sorry for any negativity that has been directed towards you. Know that
there a many wome on here who do care about you and what you are going
through.
take care,
Andrea :)
At Wed, 5 Sep 2007, Jess wrote:
>
>Sorry to all of you who this doesn't concern. I know this is super long
>and may not be read because of that. I jsut felt the need to vent. We
>are going downhill and am afraid if I refer another women with endo
>here, it will actually be doing here more harm than good. I'm looking
>for another place to go to talk and another place to refer those who
>come to me looking for women who can help them. Thank you for taking
>time out to hear what I have to say. I really do love the women who
>support me and who've been supporting me from the get go. I have an
>amount of gratitude that cannot be explained through words. After
>reading what I have to say you'll realise why I don't know If I can
>continue to post here.
>
>I'm usually not the type to bring notice to something I disagree with on
>the forum. However for the past few weeks I started to come here daily
>and have took notice in the non supportive comments made by a poster or
>posters. I kind of feel like we are back in high school and when
>someone says something you react with negative comments instead of not
>reacting to them at all. It just sucks to be have to be hesitant to
>even ask for help anymore because I worry that if they don't have any
>advice or anything supportive to say, instead of just not saying
>anything at all they will post pretty much complaining that you are
>asking them(or the women here) to help you find some info or give some
>advice. I feel women come here for support whether that be in the form
>of sharing your own story or maybe looking something up for them. You
>might think it would be common sense to just Google in what your looking
>for, but women come here when they are just starting out with this
>disease and often need that helping hand because maybe they don't know
>exactly what to search for. Also Some of these women starting out are
>looking to know what website we find most credible and use most often.
>They may not find those great websites unless we tell them what they
>are. If they do a random search for endo they might not come up with
>the websites with the best info and it may take them a long time to get
>good information.
>
>When I first sought help here there were so many wonderful veterans here
>to point me in the right direction. The way things have been going here
>I can see why a lot of them left and Its just too bad that they were
>replaced by women who themsleves were once new to the disease and know
>how that feels but are not very compassionate to those who are just
>starting out with it. Do any of the women here know of a supportive
>site i can go to, and suggest to other women to go to that is like this
>one use to be? I want to feel free to ask questions and answer questions
>without having to be critisized for what i say. We have turned into
>what I feel is like the Mean Girls clique in high school and are quick
>to judge the women here who may no less about the disease. What some of
>us seem to have forgotten is we were in their shoes once too. We all
>didn't know everything the minute we were diagnosed. The forum here is
>to educate and support. Not to criticize someones lack of knowledge or
>the way they live their lives.
>So if any of you ladies know of a good site for supporting are fellow
>endo sisters let me know.
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