Re: Lupron and severe joint pain
From: anonymous (anonymous@obgyn.net)
Thu Aug 30 11:26:46 2007
i wonder if you have endo on your appendix?
digestive enzymes and probiotics can help with indigestion
At Thu, 30 Aug 2007, drjsc wrote:
>
>I'm trying to find out how many people there are out there who are
>having slow and insidious medical problems attributable to nothing more
>than an inflamed or perforated appendix. From what I've read here, many
>of your members are having some of the same slowly progressing insidious
>problems that I had, which in my case, were dismissed as common or
>normal due to aging, weight gain, et cetera.
>The following chronology is of unknown duration; but extends back at
>least 10 years!
>
>>From whenever the beginning was:
>
>high blood pressure
>high heart rate
>weight gain
>diarrhea
>unable to kneel
>back pain
>hip pain
>shoulder pain
>all major joints pain
>can't lay on one side very long
>can't get out of bed normally
>now I'm on 4 different types of medication.....
>and finally:
>ate a big salad
>major abdominal cramping for 36 hours
>just stayed in bed to wait for it to pass through the bowels
>finally knew I was in trouble and took a naproxen... so I could move!
>pain immediately localized to the area of the appendix
>uh-oh!
>went to ER
>CT scan consistent with ruptured appendix
>had emergency laporotomy on "really bad perforated appendix"
>6 days in hospital
>Damn my luck!
>However, within one week out of the hospital, I was astonished to notice
>that my mobility had drastically improved and my joints did not ache as
>much as they had ....for several years!
>It has been 3 months now since the surgery.
>My blood pressure and heart rate are almost down to normal. My weight
>is down from 185 to 157, or normal for my 5'7" and the range of motion
>and the degree of limberness I have in my body makes me feel like I'm
>about 15 instead of 64!
>It is a simple thing to palpitate the lower right abdomen for areas of
>tenderness or pain - yet no doctor had never done that to me, including
>myself. I suspect that if I had done that, I would have felt pain and
>realized that something was wrong in there. I had no apparent symptoms
>or any pain that would cause one to think that there was an abdominal
>problem.
>[The appendix can also, infrequently, be located on your left side.]
>The kind of simple problem that I had apparently completely whacks out
>your body chemistry and causes the immune system to do some strange
>things to the more innocent parts of your body.
>Test yourself for this, or have someone else do it!
>drjsc@myway.com
>
>At Wed, 19 May 2004, Karen wrote:
>>
>>Sayea, I'm so sorry to hear that you are feeling so badly. I totally
>>understand. Did you have any of these symptoms before the Lupron? I ask
>>because I have many of the same symptons and I have not been on Lupron.
>>My PCP suggested that I may have fibormyalgia, has this been discussed
>>with you? There is also a blood test (RA factor) that can determine if
>>you have Rhematoid Arthritis. I just had it done, I don't ahve the
>>results yet and I have been referred to a Rheumatologist. I hope this
>>helps, if only to know that you are not alone!
>>
>>--
>>Karen
>>
>>t Wed, 19 May 2004, Sayea wrote:
>>>
>>>Hi there,
>>>
>>>I have just completed a 3 month course of Lupron therapy for
>>>endometriosis and fibroids. I opted to quit taking Lupron because of
>>>some rather distessing joint pain that began about a month into my
>>>injections and continues to this day. I have generalized pain in most
>>>all of my joints, but especially in my fingers, wrists, knees, and hips.
>>>I'm 33 and I feel like a very old woman. My hips hurt every time I get
>>>up, and I can't make a closed fist anymore. Basically, all my joints
>>>hurt. I can see from previous postings that others have had this
>>>problem. Is there anyone whose had this problem and overcome it? Please
>>>write if you have any suggestions or help to offer. Thanks, Sayea
>>>
>>>At Thu, 24 Jul 2003, Melissa wrote:
>>>>
>>>>Shellea,
>>>>
>>>>Thank you so much for responding. If it's okay, can I ask you a couple
>>>>questions? With the joint pain, did it start all at once or slowly (like
>>>>over the period of a couple weeks)? What joints did it affect? Could you
>>>>move them or were they stiff? Were you on addback during the Lupron
>>>>stint? I've been on estrodial 1mg, now upped to 2mgs. Did your joints
>>>>pop and crack a lot? Did it ever hurt directly behind your shoulder
>>>>blades, similar to someone encasing them in ice?
>>>>
>>>>I'd really appreciate any further help you can give. I'm like
>>>>information starved here. I search the web but that's not the same as a
>>>>real person's experiences. I'm probably only experiencing side effects
>>>>(I hope!) but there is the chance I have osteoarthritis or something.
>>>>
>>>>Regarding the hysterectomy, if you have that much pain I would suggest
>>>>considering it. I never thought I'd think something like that, but my
>>>>time in pain has changed me. Before the lupron, I too was in pain about
>>>>3 weeks out of the month. It had gotten onto my bladder but no one
>>>>would go in to take it out so lupron was my only choice. Now I can
>>>>actually drive in a car and drink as much water as I want, but I realize
>>>>that will probably go away sometime after my hormones come back. I plan
>>>>(or planned who knows now) on starting a family ASAP, then when the
>>>>bladder stuff comes back opting for a hyst. It is inhumane to live in
>>>>pain that much of the time. Remember that.
>>>>
>>>>Thank you again! Melissa
>>>>At Wed, 23 Jul 2003, Shellea wrote:
>>>>>
>>>>>I had Lupron in 1999 and I still have all the joint pain that I had
>>>>>then, all the Doctors I have told just shake their head when I tell them
>>>>>that like they really dont believe me and keep writing their notes in my
>>>>>chart. I had test and they came back that I have degenerative
>>>>>artheritis. My Doctor did then say it COULD have been from the Lupron.
>>>>>I still have endo and just went to the emergency room Sunday night and
>>>>>then the Doctor yesterday. I refuse Lupron and now I have done
>>>>>everything possible to stop the pain except hysterectomy and I am in
>>>>>terrible pain at least 3 weeks out of the month. I'm at the end of my
>>>>>rope and dont have anywhere to go except hysterectomy and dont want to
>>>>>go there except what is a person to do next when your all out of
>>>>>options? I hope your different from me and I wish all the best of luck!
>>>>>
>>>>>At Wed, 23 Jul 2003, Melissa wrote:
>>>>>>
>>>>>>Something has gone so wrong after I had my third shot of Lupron (I’ve
>>>>>>been on addback therapy so “we” decided to take it for 9 months instead
>>>>>>of 6) on June 14. The typical buttcheek pain moved down into my knees
>>>>>>within a day or so. Only minor, I ignored it and kept up with my daily
>>>>>>life. Then my knees went out. 3 days after that, on the 4th of July, I
>>>>>>ended up in the ER with aching hands, feet, shoulders, hips, and jaw.
>>>>>>And I thought it was bad then. A week and one doctor and one
>>>>>>rheumatologist later, it was just getting worse, was now even in the top
>>>>>>of my neck. Stabbing pains in my joints with mild redness and swelling
>>>>>>in my fingers, inability to move properly, muscle aches in my upper arms
>>>>>>and legs (it actually hurt to have a blood pressure band squeeze my
>>>>>>arm!) and I was kinda light headed, having to take a lot of breaths just
>>>>>>to speak. I ended going into another doctor because mine was gone, and
>>>>>>my blood pressure was double what it usually is (190 over 60-something
>>>>>>compared to 100/60). I asked for and was put on steroids, which I’m
>>>>>>still on 20mgs a day until I can get back into the rheumatologist in a
>>>>>>week. My joints still hurt, though not nearly as bad. Everything else
>>>>>>has gone away for the time being.
>>>>>>
>>>>>>My OB/GYN, who ordered the shots, says she doesn’t think this can be
>>>>>>from the Lupron because it wasn’t instantaneous (but it was in my knees)
>>>>>>and it doesn’t sound like a Lupron joint ache. All the tests are coming
>>>>>>up normal (or low normal, if you ask me. My white blood cells are at
>>>>>>the very low end of normal) EXCEPT an Anti-nuclear antibody test. So
>>>>>>I’m thinking that it’s some autoimmune reaction, maybe even drug-induced
>>>>>>Lupus. I've got a long time to wait (7 weeks at least) to find that one
>>>>>>out.
>>>>>>
>>>>>>SO why am I writing this? Cuzz I really have no clue what is going on
>>>>>>and this is scary! Has anyone had a similar reaction? Does it go away?
>>>>>>
>>>>>>--
>>>>>>Melissa
>>>>>>----------------
>>>>>>Peace, Love, and Compassion
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>>>>Melissa
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>>>>Peace, Love, and Compassion
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>>--
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>>Karen
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