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Re: Confused - Rather Long - Do I really have Endo?
From: anonymous (anonymous@obgyn.net)
Wed Aug 29 15:33:53 2007
my guess is that the original doctor doesn't know all the manifestations
of endo...
At Wed, 29 Aug 2007, Terra wrote:
>
>Julie, I know it's been a while, but I wondered who you saw in
>Pittsburgh. I have similar pulling pain, deep pains, etc.
>
>At Tue, 28 Mar 2006, Sami wrote:
>>
>>Hi Julie,
>>i read that Chamomile Tea helps to settle your tummy? i was just
>>wondering if you had tried Perrermint or Spearmint Tea? it works for me,
>>others I have used Ginger, but for me it makes me too hot ( IT HEATS
>>YOUR SYSTEM INTERNALLY).
>>
>>just a thought, Sami koala :)
>>
>>At Mon, 27 Mar 2006, anonymous@obgyn.net wrote:
>>>
>>>Hi, Kermit!
>>>
>>>I am considering a new doctor, but I hate to travel that path again.
>>>Just a year ago I went through four OB/GYNs in a series of months. When
>>>I finally found the one I have, I thought I had found a good match, but
>>>it seems that all things change, and struggle in these instances may be
>>>inevitable. The Seasonale sucks, actually. I've been very sick to my
>>>stomach for the past 8 weeks. I'm drinking Chamomile tea like it's
>>>going out of style because it at least makes my stomach settle down a
>>>bit. I haven't been bleeding on the Seasonale, but I have been in pain,
>>>so to me it's just not worth it. I'm fine with the bleeding if I can
>>>stand up straight. People at work are starting to call me the Hunchback
>>>of the office. I think we should install bells for me to toll! :)
>>>
>>>My OB/GYN did prescribe some pain meds to help me through the really bad
>>>days. The biggest problem is that I'm having more bad days than good
>>>days lately with the searing, cramping abdominal pain, and he isn't
>>>doing anything else to treat the pain. Throwing pain pills at this
>>>isn't going to fix it. It is a band aid to a much bigger problem.
>>>
>>>Thank you for writing back! It's always good to hear other people's
>>>opinions on this stuff.
>>>
>>>I'll see about switching pills. I do think you're on the right track
>>>with that one. :)
>>>
>>>Julie
>>>
>>>At Mon, 27 Mar 2006, Kermit wrote:
>>>>
>>>>I think it is time for a new doctor. If the Lupron helped your pain and
>>>>the doctor found adhesions on many of your internal organs, then it
>>>>sounds like endo to me. Plus, you had it previously diagnosed in 1999.
>>>>Any doctor that goes the psychological pain route with this disease
>>>>needs to be educated a little more in my opinion. I'm so sorry that you
>>>>have to deal with this. You should at least be able to get some pain
>>>>medication to help you through! Your pain is real, it is definitely not
>>>>in your head. Seasonale was a horrible pill for me. It made me really
>>>>depressed and didn't do anything for my pain either. Maybe switching
>>>>pills could help some too. Good luck, I feel for ya.
>>>>
>>>>At Mon, 27 Mar 2006, anonymous@obgyn.net wrote:
>>>>>
>>>>>Hello all,
>>>>>
>>>>>I was diagnosed with endo in 1999 by a lap. The OB/GYN found endo on my
>>>>>left ovary, removed it via laser, and suggested I take Lupron. I was
>>>>>21. I refused the Lupron. 2 years later, I was in the same pain, with
>>>>>a different OB/GYN. One of the docs in the office did a lap (not the
>>>>>one I was actually seeing), and said he found nothing. I was in
>>>>>terrible pain after that. I ended up in the hospital, had an Upper and
>>>>>Lower GI, barium enema, sigmoidoscopy, the works. Nobody found
>>>>>anything. I ended up on Depo Provera. It helped the pain for a while.
>>>>>I had pain intermittenly throughout the months, but wasn't bleeding.
>>>>>About 2 years later, the pain came back. My OB/GYN told me that she
>>>>>couldn't help me and to find someone else after I went crawling into her
>>>>>office in serious pain. I was having pain every day. No breaks. No
>>>>>relief. No pain pills because the docs refused to believe me after the
>>>>>last lap. I found an OB/GYN in Pittsburgh (I live in Erie, PA), and he
>>>>>put me on Lupron (which I was initially against, but desperately agreed
>>>>>to after being in pain for three months with no break). The Lupron
>>>>>worked VERY well for me. I had very little pain (some pulling and
>>>>>such), but the pressure and what I thought was endo pain was gone. I
>>>>>had surgery six months after the Lupron and he had to cut my left ovary
>>>>>away from the wall of my abdomen and also clear adhesions from my left
>>>>>tube. He also had to clear away the adhesions from my appendix and free
>>>>>it from being stuck. He said he found no endo. Now, it's been about 1
>>>>>year and four months since I had the last surgery. I am on Seansonale,
>>>>>which stopped my period, but not the pain. I have been having pain
>>>>>every day for the last week, and was in pain for a week every three the
>>>>>first two months of Seasonale. At my last appointment the doc was able
>>>>>to recreate most of my pain in an exam. (First time ever since this all
>>>>>began). But he said that there was nothing there but tissue and muscle.
>>>>>He did say that there was a possibily that there was endo or
>>>>>endometriomas in the muscle and/or tissue, but he can't feel anything
>>>>>because of the location of the pain. He also asked if I had been
>>>>>sexually abused as a child. I was. I have been in therapy for it for
>>>>>over a year now, and have made tremendous progress. But at this point,
>>>>>my OB/GYN has written off the pain I am in to psychological trauma. I
>>>>>am just wondering at this point if I even have endo? It seems to be the
>>>>>same pain with the same symptoms since I was first diagnosed, and many
>>>>>of the stories on this forum are very similar to my own feelings and
>>>>>pain. Has anybody else been through this? i.e. no endo found after it
>>>>>was first discovered?
>>>>>
>>>>>Any help would be appreciated. I just want to know where to look, what
>>>>>to do, and what is wrong with me that I'm having pelvic pain that feels
>>>>>like cramping and sometimes sharp and sometimes pulling....
>>>>>
>>>>>Thank you, Ladies. Sorry for the long email!
>>>>>
>>>>>Julie
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