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Re: Confused - Rather Long - Do I really have Endo?
From: Terra (anonymous@obgyn.net)
Wed Aug 29 13:46:35 2007
Julie, I know it's been a while, but I wondered who you saw in
Pittsburgh. I have similar pulling pain, deep pains, etc.
At Tue, 28 Mar 2006, Sami wrote:
>
>Hi Julie,
>i read that Chamomile Tea helps to settle your tummy? i was just
>wondering if you had tried Perrermint or Spearmint Tea? it works for me,
>others I have used Ginger, but for me it makes me too hot ( IT HEATS
>YOUR SYSTEM INTERNALLY).
>
>just a thought, Sami koala :)
>
>At Mon, 27 Mar 2006, anonymous@obgyn.net wrote:
>>
>>Hi, Kermit!
>>
>>I am considering a new doctor, but I hate to travel that path again.
>>Just a year ago I went through four OB/GYNs in a series of months. When
>>I finally found the one I have, I thought I had found a good match, but
>>it seems that all things change, and struggle in these instances may be
>>inevitable. The Seasonale sucks, actually. I've been very sick to my
>>stomach for the past 8 weeks. I'm drinking Chamomile tea like it's
>>going out of style because it at least makes my stomach settle down a
>>bit. I haven't been bleeding on the Seasonale, but I have been in pain,
>>so to me it's just not worth it. I'm fine with the bleeding if I can
>>stand up straight. People at work are starting to call me the Hunchback
>>of the office. I think we should install bells for me to toll! :)
>>
>>My OB/GYN did prescribe some pain meds to help me through the really bad
>>days. The biggest problem is that I'm having more bad days than good
>>days lately with the searing, cramping abdominal pain, and he isn't
>>doing anything else to treat the pain. Throwing pain pills at this
>>isn't going to fix it. It is a band aid to a much bigger problem.
>>
>>Thank you for writing back! It's always good to hear other people's
>>opinions on this stuff.
>>
>>I'll see about switching pills. I do think you're on the right track
>>with that one. :)
>>
>>Julie
>>
>>At Mon, 27 Mar 2006, Kermit wrote:
>>>
>>>I think it is time for a new doctor. If the Lupron helped your pain and
>>>the doctor found adhesions on many of your internal organs, then it
>>>sounds like endo to me. Plus, you had it previously diagnosed in 1999.
>>>Any doctor that goes the psychological pain route with this disease
>>>needs to be educated a little more in my opinion. I'm so sorry that you
>>>have to deal with this. You should at least be able to get some pain
>>>medication to help you through! Your pain is real, it is definitely not
>>>in your head. Seasonale was a horrible pill for me. It made me really
>>>depressed and didn't do anything for my pain either. Maybe switching
>>>pills could help some too. Good luck, I feel for ya.
>>>
>>>At Mon, 27 Mar 2006, anonymous@obgyn.net wrote:
>>>>
>>>>Hello all,
>>>>
>>>>I was diagnosed with endo in 1999 by a lap. The OB/GYN found endo on my
>>>>left ovary, removed it via laser, and suggested I take Lupron. I was
>>>>21. I refused the Lupron. 2 years later, I was in the same pain, with
>>>>a different OB/GYN. One of the docs in the office did a lap (not the
>>>>one I was actually seeing), and said he found nothing. I was in
>>>>terrible pain after that. I ended up in the hospital, had an Upper and
>>>>Lower GI, barium enema, sigmoidoscopy, the works. Nobody found
>>>>anything. I ended up on Depo Provera. It helped the pain for a while.
>>>>I had pain intermittenly throughout the months, but wasn't bleeding.
>>>>About 2 years later, the pain came back. My OB/GYN told me that she
>>>>couldn't help me and to find someone else after I went crawling into her
>>>>office in serious pain. I was having pain every day. No breaks. No
>>>>relief. No pain pills because the docs refused to believe me after the
>>>>last lap. I found an OB/GYN in Pittsburgh (I live in Erie, PA), and he
>>>>put me on Lupron (which I was initially against, but desperately agreed
>>>>to after being in pain for three months with no break). The Lupron
>>>>worked VERY well for me. I had very little pain (some pulling and
>>>>such), but the pressure and what I thought was endo pain was gone. I
>>>>had surgery six months after the Lupron and he had to cut my left ovary
>>>>away from the wall of my abdomen and also clear adhesions from my left
>>>>tube. He also had to clear away the adhesions from my appendix and free
>>>>it from being stuck. He said he found no endo. Now, it's been about 1
>>>>year and four months since I had the last surgery. I am on Seansonale,
>>>>which stopped my period, but not the pain. I have been having pain
>>>>every day for the last week, and was in pain for a week every three the
>>>>first two months of Seasonale. At my last appointment the doc was able
>>>>to recreate most of my pain in an exam. (First time ever since this all
>>>>began). But he said that there was nothing there but tissue and muscle.
>>>>He did say that there was a possibily that there was endo or
>>>>endometriomas in the muscle and/or tissue, but he can't feel anything
>>>>because of the location of the pain. He also asked if I had been
>>>>sexually abused as a child. I was. I have been in therapy for it for
>>>>over a year now, and have made tremendous progress. But at this point,
>>>>my OB/GYN has written off the pain I am in to psychological trauma. I
>>>>am just wondering at this point if I even have endo? It seems to be the
>>>>same pain with the same symptoms since I was first diagnosed, and many
>>>>of the stories on this forum are very similar to my own feelings and
>>>>pain. Has anybody else been through this? i.e. no endo found after it
>>>>was first discovered?
>>>>
>>>>Any help would be appreciated. I just want to know where to look, what
>>>>to do, and what is wrong with me that I'm having pelvic pain that feels
>>>>like cramping and sometimes sharp and sometimes pulling....
>>>>
>>>>Thank you, Ladies. Sorry for the long email!
>>>>
>>>>Julie
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