Re: endo/stress/lupron: Question for Jennifer
From: Pam (anonymous@obgyn.net)
Mon Jul 30 10:50:57 2007
Jennifer,
I read the post yesterday that you replied to anonymous concerning
Lupron, etc. on 7/25. I noticed that you said you took a daily
injection of Lupron. If you don't mind, I was wondering if you could
tell me more about it. The reason I am asking is because I have only
heard of two types of injections (monthly 3.75 mg & 3-months 11.25 mg).
I also wanted to see if you knew of a web site that talks about the
daily injections. Thank you for any information you can give me.
I tried to reply to your post yesterday but I noticed that it did not
show up when I checked it this morning, so if it happens to show up
twice, I apologize ahead of time.
~Wishing for pain free days...Pam~
At Wed, 25 Jul 2007, Jennifer wrote:
>
>Hello...
>
>I am EXACTLY in your boat. I went in for gyny surgery - laproscopy
>surgery on June 8th and have it everywhere... and then my gyny had to
>refer me to a specialist named Dr. John Matthias. He put me on daily
>Lupron injections that I give to myself. I know if you read all around
>the internet you read alot of scary things about Lupron.
>
>Dr. Matthias is really good because you do not experience all those
>side affects that everyone writes about that scare you so much. I have
>an estrogen patch that I wear daily that take away alot of the affects
>and then I am on a special diet and taking alternative medicine -
>different oils.. omega 3, fish oil and olive oil as well as xanax and
>klonopin for stress and anxiety and pain relief.
>
>I was referred by him to someone who treats endo suffers and cancer
>patients called Dr. Sones .. http://www.drsones.com, who I start seeing on
>July 31. Apparently, he will be able to help me with the stress and
>pain and everything I am going through... lots of emotional stuff
>too...
>
>The lupron throws you into menopause in 2-4 weeks which I am just going
>through that window now - its pretty difficult because it usually takes
>3-5 years in most women and its very hard to do it in 2-4 weeks..
>however... they only put you on it for 6 months, try to control
>symptoms and then after 6 months, they reverse the hormones.. so that
>you can be able to resume your menstrual cycles and have children if you
>want. I might have to undergo surgery in December, 6 months from now..
>to remove the endo that is there.. this Lupron treatmet does not make
>it go away, it stops the progression.. so that it does not spread
>anymore..
>
>Hope this helps at all.. I have only been on the daily Lupron shots for
>3 weeks, so I cannot tell you how positive it is... I do have to admit
>the joint/bone pain is worse and you sleep alot and you feel pretty
>depressed.. it really screws with your hormones... but I think when I
>see the doctor again on the 31st, and tell him my symptoms he will be
>able to treat me and help me with the problems...
>
>I know for a fact though.. that Lupron Depot is the bad drug and that
>it is better to get daily injections that you do yourself - in the leg -
>kind of hurt - like giving yourself an insulin shot if you were a
>diabetic.. than the monthly injection. My doctor said that the monthly
>injections and the patches for Lupron Depot are harder on your body and
>harder to treat the symptoms..
>
>If you go on Lupron daily, make sure you have an estrogen patch that you
>change every 3 days... it takes away all the side affects that you
>would normally get...
>
>--
>Jennifer
>
>At Wed, 25 Jul 2007, anonymous wrote:
>>
>>I had laprascopy done a few weeks ago to remove cysts in both my
>>ovaries. At that time it was discovered I have a severe case of
>>endometriosis (dr. was shocked to find this as I have never had pain).
>>Endo was removed from my ovaries, fallopian tubes etc, but was not
>>removed from my colon and appendix as this will require a colon
>>specialist to assist my doctor, so another surgery will be done when I
>>feel the need.
>>
>>My question is - can endo act up/be more painful during periods of
>>extreme stress? As I stated, I have been lucky to not have constant
>>abdominal pain, but now I am having quite a bit of pain in my abdominal
>>area and coincidentally I am under a lot of stress with my disolving
>>marriage and work, so I was just wondering if the two could be related.
>>
>>Secondly, does anyone have any positive stories from being on Lupron? My
>>doctor is suggesting I go on it and assures me if I stay on the pill at
>>the same time, my symptoms will not be all that bad. I have just read
>>so many negative things about it, was just wondering if someone had a
>>positive experience with it.
>>
>>Thank you for any help! I am so new to all of this and very confused by
>>it all.
>
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