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Re: To D

From: andrea (anonymous@obgyn.net)
Sun Jul 29 18:42:40 2007


Wow! That was fast! I did not think you would be up to writing on here for a while. Glad you're doing better already. :) I guess that's how a GOOD surgery DONE CORRECTLY should feel!!

A couple of things I would like to ask if you don't mind.....I am scared of it hurting when I use the bathroom after surgery, especially with the bowel-prep stuff and all that, ugh. You have not had any probs with that? Sorry, I don't mean to be so personal, but that is one of my biggest fears.

And, my doc keeps telling me that this is an out-patient procedure! They charge $15,000 just to use the damn hospital room ($25,000 total), but I don't even get to stay over night. I live on a 4th floor apartment, I would NEVER make it up here! Do you have to approve a night's stay with your insurance first, or does it just depend on how bad you feel after surgery?

I remember when I was a kid, I stayed in the hospital for 3 days just for getting my tonsils out...and NOW I am going to get ALL my insides messed with and they're sending me home? As of now, I still don't have anyone who can commit to taking care of me for a few days, so that really worries me and I'm trying to get a lower insurance deductible too. I want this done ASAP, cuz if it gets too close to the holidays, I know I won't do it.

Talk to you soon,

--
Andrea

At Sun, 29 Jul 2007, D wrote: > >Hi Andrea - Thank you!! I'm still sore, but I'm doing pretty good :) > >The surgery was thursday afternoon - it took about two hours, and Dr. >Cook talked with my boyfriend afterwards and said that he removed "lots" >of endo and some adhesions, too. The adhesions were mostly on the left >side right where I had been complaining of the pulling pain! He also did >a cystoscopy and found a few spots that might be IC, but it didn't look >too bad. I have some frequency with urination, but only rarely have >pain so that's about what I expected he'd find in my bladder. > >I was really out of it after the surgery and didn't talk to Dr. Cook, >but I barely remember talking to the nurse anyway - she told me they >found endo and I was so happy I cried! I was terrified I'd come out and >again they'd tell me they didn't find anything, so it was a huge relief >to finally an answer - even better, I could feel the difference almost >immediately. It's like there's something that's not there anymore, I >think it's really gone! I already don't feel so sick and my temperature >is normal, where I had been running low grade fevers almost daily for >about eight months earlier. He did a uterine suspension to tip my >retroverted uterus forward, and I think at least part of relief may be >from that - I don't know how to explain it except that things seem to be >sitting right somehow? He called me at the hospital Friday morning, but >even then I was still groggy and couldn't think of questions, I just >knew I already felt better. > >I have copies of the photos but I forgot to ask him about the video; I >hope we'll view it at the post-op (this Friday) and I really want to see >it! I can see where he removed a lot of endo/tissue from the pouch of >Douglas/cul-de-sac area, ligaments, pelvic sidewalls especially on the >left - the lesions were varied - there were very subtle clear flat >lesions that could only be seen with the light shining on them just so, >some places looked angry red layered with white fibrous tissue, there >were flat red ones, clear blisters, little red blisters and spots, and >at least one big nasty looking adhesion involving my sigmoid colon. He >didn't find any endo actually on my colon, I did remember to ask him >that, it was near it and next to it - I had a lot of bowel symptoms and >before I started taking the pill even had blood with bowel movements >around my period, so I guess it really can cause a lot of irritation >that way. > >Comparing the new photos to my first lap (June 2006) it's obvious the >first doctor did not know what she was looking at, and didn't get close >enough. It definitely got worse over the year, but you can see the >bumpy reflections and red/white areas in the 2006 pictures that have now >been excised! I thought that first doctor was "good enough" because she >did excision - I was terribly wrong about that. If any doctor starts >talking to you about "microscopic" endo be very skeptical! In my >experience that only means that they don't know what all the different >types of endo lesions can look like. > >I won't really know how well the surgery worked for a few weeks, but so >far things seem very good. I'm only taking a little more pain meds than >before the surgery, and I don't have that horrible sick feeling - >whoever has been standing on my guts for the past several years has >finally gone! The hospital was very nice, it only took the nurse one try >to get my IV in, the room was private and my boyfriend stayed on the >sofabed - I don't know how much better it could have gone! Thanks for >the good wishes, if you have any questions please let me know! > >All the best, > >-- >D. > >At Sat, 28 Jul 2007, andrea wrote: >> >>D, know you probably don't feel well enough to check this site out right >>now, but when you do, >>I just wanted to say I HOPE YOU HAVE A SPEEDY RECOVERY AND FEEL LOTS >>BETTER REAL SOON!!! >> >>Hugs!! >> >>-- >>Andrea :) >> >-- >Find an endo specialist in the ERC's EndoDocs group: >http://groups.yahoo.com/group/EndoDocs/ > >Try an excellent endo support group: >http://groups.yahoo.com/group/erc/ > >Info on pain management: >http://www.painfoundation.org/ >




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