to stef
From: Lisa (anonymous@obgyn.net)
Sun Jul 29 14:10:21 2007
It was andrea who was considering having her uterus removed. While I
have thought about having mine removed in the past it is no guarentee
that the pain will go away. Besides that I am only 23 and may want
children one day and no doctor whould do it on a 23 year old patient.
As far as mirena goes I worry with things that are stuck inside you. I
tend to react violently to new things so I like things that I can stop
or take out easily if I have a bad reaction. Right now ortho micronor
seems to be working for me so I will stick with it.
--
Lisa
At Sat, 28 Jul 2007, Stef wrote:
>
>Hi Guys,
>I too have endometriosis. Lisa I was reading you are thinking of having
>your uterus removed...I really wouldnt recommend this as there really
>are things that can help. I would urge you to think about getting
>Mirena (IUS) inserted. I am under the best endo specialist in nz and he
>introduced me to mirena as i had already had a laproscopy n endo
>excised, when 5 months later it was found i had it in my womb - mirena
>shrinks the endo in the womb. It is quite a painful procedure to have
>an IUS or IUD inserted - so i would almost advise to have it done under
>general anaesthetic. It is however a very short procedure so you
>wouldn't need to be asleep for long. After approx 3 months the affects
>are amazing!!! Not only that but it is honestly the best contraception
>ive ever used - i have had none of the side effects that have presented
>themselves with other contraceptives, e.g. weight gain, headaches,
>nausea, acne...... as the hormone is excreted locally.
>
>Moving on from that, I recently had another op for removal of endo due
>to a pain in my right side, where my scar from the previous op is. My
>specialist found nothing at that sight, but found some endo deep in my
>bowel. I still have this pain on my right side, it even hurts if i hav
>pants on that are a bit tight - I know its not endometriosis and the
>site is too small an incision site for it to be a hernia. Any idea what
>it could be? has anybody had a similar problem?
>
>--
>Stef :)
>At Fri, 27 Jul 2007, andrea wrote:
>>
>>Wow!! I will definately be looking that up and asking my doctor about
>>it. Not bleeding would be heaven! I have NEVER heard of a pill that
>>helps that much! I have always had major bleeding and nausea with BC
>>pills. (but they all had estrogen too)
>>
>>Thank you soooo very much! I just hope I can take it with my
>>bio-identical stuff. If your pills calm down my pain and bleeding, I
>>may not do the surgery......that would be awesome. Even though I'm very
>>hesitant to take anything synthetic, I would try that before having a
>>lap, my bowels messed with and forking out $10 grand for a surgery I
>>can't afford. At least it's not Lupron. I think I would take just
>>about anything except that if it would kill the pain. I'm going to call
>>my doctor on Monday to see if he will call it in for me. Do you know
>>anyone else who is on it who likes it as well?
>>
>>Thanx, Lisa!!!
>>
>>--
>>Andrea
>>
>>At Fri, 27 Jul 2007, Lisa wrote:
>>>
>>>Hi Andrea~
>>>I have experienced very little nausea with the ortho micronor. I too
>>>get super nauseus with BCP that contain estrogen. SO far I have not
>>>bled at all (even spoting) in 4 months.
>>>
>>>At Tue, 24 Jul 2007, andrea wrote:
>>>>
>>>>Lisa,
>>>>
>>>>Hi, just wondering if you've ever had any nausea or weird side effects
>>>>with the Ortho Microner? I too could not take any BC pills with
>>>>estrogen! They would make my extremely nauseated and started making me
>>>>have menopausal symptoms too! I'm trying to find anything that could
>>>>relieve my 3 days of excrutiating pain and slow down my heavy bleeding
>>>>during my period so that I don't have to have surgery, but I think I'm
>>>>just postponing the inevitable.
>>>>
>>>>I need a lap surgery but am also seriously considering having my uterus
>>>>out too, because my doctor thinks that I have Adenomyosis also, (endo in
>>>>my uterine muscle). Plus, the heavy bleeding interferes with my life
>>>>just as much as the pain does and I am sick of it! I am just so scared
>>>>of having any complications after the surgery. I want to be able to
>>>>work a full-time job again and be able to plan trips without having to
>>>>schedule everything around my stupid period. I don't have any kids, but
>>>>still think it would make me so happy to NEVER have a period again.
>>>>Thanks for responding! Have a good day.
>>>>
>>>>--
>>>>Andrea :)
>>>>
>>>>At Tue, 24 Jul 2007, Lisa wrote:
>>>>>
>>>>>Ortho-Micronor does not contain any estrogen. It is progestin
>>>>>(Norethindrone) only. It comes as 28 active pills, so you never
>>>>>actually have a break. My doctor did warn about spotting, but after 4
>>>>>months I have yet to spot at all. I did really bad with the estrogen in
>>>>>most BCP's and have not had any real problems with ortho micronor
>>>>>
>>>>>--
>>>>>lisa
>>>>>
>>>>>At Sun, 22 Jul 2007, andrea wrote:
>>>>>>
>>>>>>Lisa,
>>>>>>
>>>>>>I have never heard of this pill. Does it not contain any estrogen? I
>>>>>>may consider just taking a pill with synthetic progestin to slow my
>>>>>>periods because I bleed so heavy my first 2 days, I fill up the biggest
>>>>>>tampon once every hour! I would give ANYTHING to bleed less! I don't
>>>>>>know if I could take it with my bio-identical Progesterone or not. I
>>>>>>guess I will have to ask my doc. I'm against taking anything synthetic,
>>>>>>but want to try a few things before I decide to go through an extensive
>>>>>>lap surgery. I'm scared and can't bring myself to schedule it yet!
>>>>>>
>>>>>>I know Progestin isn't as bad as Estrogen and Estrogen makes me
>>>>>>extremely nauseated too. The NuvaRing made me really nauseated! I'm
>>>>>>also going to look up the Ortho Microner and see what it's all about.
>>>>>>You have not had any bad reactions from it?
>>>>>>
>>>>>>At Sun, 22 Jul 2007, Lisa wrote:
>>>>>>>
>>>>>>>I had a really bad reaction to the Nuvaring as well. I have had 2 laps
>>>>>>>done to remove the endo, a LUNA procedure, done Lupron, deop, and most
>>>>>>>all other BCPs and nothing helped my cramps. My doctor suggested
>>>>>>>Nuvaring and so I tried it. I think I only had it in for about 4 days
>>>>>>>and durring that time I was so nauseated and dizzy I could barly get out
>>>>>>>of bed. My doctor told me to remove it and gave me some Zofran for the
>>>>>>>nausea. With in less than I day I started to feel so much better. It
>>>>>>>is supposed to be tolorated very well by most (or so my doctor says),
>>>>>>>but I can't do it.
>>>>>>>My doctor has now switched me to Ortho-Micronor and I have hot had any
>>>>>>>bleeding or serious pain in 4 months. It seems I can not tolerate the
>>>>>>>estrogen in most BCPs as htey always made me sick or break through
>>>>>>>bleed.
>>>>>>>
>>>>>>>At Fri, 20 Jul 2007, Kristina wrote:
>>>>>>>>
>>>>>>>>Hi ladies.... Been a while since I've posted here. I have a question
>>>>>>>>about the nuvaring...but first I'll give a little history. I have had a
>>>>>>>>lap, and a myomectomy (remove of a fibroid from my uterus). I was found
>>>>>>>>to have endo on the left US ligament, in the cul-de-sac, and the
>>>>>>>>peritoneum. I have tried everything from lupron to BC, to CBC. Most
>>>>>>>>recently my Dr wanted me to try the nuvaring to see if this would help.
>>>>>>>>I was hesitant but did it anyways. Not long after I put it in I started
>>>>>>>>to feel nauseated and crampy...these things only got worse over the 9
>>>>>>>>days I ended up leaving it in. I finally decided I was going to take it
>>>>>>>>out, due to the severe cramping and nausea I was experiencing. Crazy
>>>>>>>>enough, about 3 hours after taking it out, the cramping and nausea had
>>>>>>>>quieted down some. I really think the nuvaring irritated my endo....has
>>>>>>>>anyone else ever had this happen to them, or know someone it happened
>>>>>>>>to? Thanks for listening, and feel free to email me directly!
>>>>>>>>
>>>>>>>>Kristina
>>>>>
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