ENDO Messages for July, 2007: Re: To all with ENDO after HYSTERECTOMY....(Kathy)

Re: To all with ENDO after HYSTERECTOMY....(Kathy)

From: dorothy (anonymous@obgyn.net)
Sun Jul 29 13:57:19 2007

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At Sun, 20 Aug 2000, Peggy wrote: >
>At Sun, 20 Aug 2000, Kathy wrote:
>>
>>Good morning all,
>>
>>I've had a total hyst 10 yrs ago, and recurrent endo is back with a
>>vengance. Can anyone who has been through this let me know how and what
>>they are doing? Was your next endo surgery successful? Are you on any
>>new meds? Did your Dr. laser or cut the disease out?
>>I have a pre-op consult on tues, and I am nervous to go through this
>>stuff again, but I would like to know how everyone else in my similiar
>>situation is making out. Currently I have halted all my estrogen 5
>>weeks ago, to try and shrink the endo tissue from the outside.
>> Any comments are appreciated!!
>> Kathy in Conn.
>
>Kathy,
>
>Welcome to the group, I had a total hysterectomy and both ovaries
>removed and am still suffering with pain that I believe to be endo
>related.With being diagnosed with endo and being on estrogen replacement
>you were fighting a losing battle! Estrogen feeds endometriosis. I had
>my hysterectomy and left ovary out in 4/98 and then the right ovary
>removed 11/99 between these surgeries I had 2 other laporoscopies for
>adhesions. It was not until the last surgery that I was daignosed with
>having endo.Have your Drs. checked your hormone levels since being off
>of the estrogen ? I was on HRT for 1 1/2 weeks in December but the pain
>increased so much my Dr. had me discontinue taking it. I went into a
>menopause state but by February all the symptoms stopped. I had my
>levels checked and the FSH was 36.9 and the estradiol was 57 the fsh was
>in the menopause range ,it should be over 23 but the estradiol was
>abnormal it should be under 25 .I had asked about doing Lupron so my Dr.
>gave it a try, Unfortunatly it did not help. For the first 3 months I
>was having all the menopause symptoms again but it all stopped , Dr.
>check levels and the FSH was 17 and the estradiol was 42. He
>discontinued the lupron therepy .Someone on here had posted about an
>aromatase inhibitor so I looked into this further and found that there
>is a Dr. out in Chicago doing a study on endometriosis using an
>aromatase inhibitor, I e-mailed this Dr. and he sent me a research
>paper that he did,it sounds so promising that I printed it off and sent
>it to my gyn and asked that he read it to see if it would pertain to me.
>I saw my Dr. last Thursday and he told me that what the Dr. in Chicago
>is studying is exactlly where I am at with having estrogen levels after
>having had a hysterectomy.He has e-mailed this Dr. to get more
>information . THe Dr. in Chicago told me that he would work with a Dr.
>here, that the Dr. would have to get the treatment protocol from him.
>So this is where I am at. Waiting to hear back from this Dr. If you
>would like I will e-mail you the article that I have .Just let me know.
>I hope that I have helped in some way. If you have any questions please
>feel free to ask
>
>--
>"FRIENDS THAT STICK TOGETHER" Peggy K.
>
>What lies behind us and what lies before us are tiny matters, compared to what lies within us.
>
>-Ralph Waldo Emerson (1803-1882)
>

--
 after my hysterectomy 2003, i've continued to experience all the "wonderful" endo
 symptoms without the bleeding. my gynie's answer "well, i told you a hysterectomy
 might not relieve your "symptoms". the usual, i don't know what to do, so i'll be
 dismissive. go away and suffer in silence!! anyway, the incrediable thing is that
 i still have all the terrible pain in my digestive systems, my low pelvic area and
 my bowel,sometimes on a monthly basis, it can be more severe and i have a brown
 discharge. i use panty liners quite often,four years later. and now they tell me i
 need to use estrogen therapy because my estrogen level is low. i terrified to do this
 and possibly feed my endo tissue. which i believe still thrives in parts of my
 body. many miscarriages, lupron injections and over doses of otc drugs later,
 i'm back to square one, full speed ahead into the big brick wall. what a nightmare.
 my only help has been occasional family and friend support and cymbalta, zoloft
 & wellbutrin. these are the only reasons i'm still walking this earth.

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