to Stef
From: andrea (anonymous@obgyn.net)
Sat Jul 28 21:35:49 2007
Hey Stef,
How are you?
No, I am the one of thinking of getting my uterus out, not Lisa. I'm
glad the Mirena works for you, but I have heard too many women say it
does the opposite of what it's supposed to. I have a friend who is on
it right now and she has been bleeding for 5 months straight! Heavy like
a period too.
I am 36 and am pretty sure I don't want kids, so having my uterus out
with my lap sounds like it would get rid of most of the pain. My
bleeding is sooooo heavy too. It interferes with my life just as much
as the pain does. It would be heaven to never have another period! I'm
almost 100% positive that I just don't want to take anything synthetic
anymore or do Lupron to help my endo.
I'm going to get as much excised as possible with my specialist, then
hope that my bio-identical progesterone is enough to supress my
estrogen, so the endo does not grow back. I also talk to another Steph
on here. She is waiting for her first Lupron shot to wear off. It made
her bones hurt! I feel bad for anyone who gets all these terrible side
effects with these different medications. You are lucky the Mirena is
working for you.
If you read my July 7th entry that says "The Cause of Endo" it will
explain a lot about me and why I am making these decisions. Maybe you
have an ovarian cyst like I do...Is it like random sharp stabbing pains?
I used to get them a lot when I was on the pill. This is the first one
I've had in 4 years. They DO hurt with just the slightest pressure on
them. You have to wear loose clothing. Thanks for the advice, but
Mirena scares me just like Lupron does. :(
Have a good weekend!
--
Andrea
At Sat, 28 Jul 2007, Stef wrote:
>
>Hi Guys,
>I too have endometriosis. Lisa I was reading you are thinking of having
>your uterus removed...I really wouldnt recommend this as there really
>are things that can help. I would urge you to think about getting
>Mirena (IUS) inserted. I am under the best endo specialist in nz and he
>introduced me to mirena as i had already had a laproscopy n endo
>excised, when 5 months later it was found i had it in my womb - mirena
>shrinks the endo in the womb. It is quite a painful procedure to have
>an IUS or IUD inserted - so i would almost advise to have it done under
>general anaesthetic. It is however a very short procedure so you
>wouldn't need to be asleep for long. After approx 3 months the affects
>are amazing!!! Not only that but it is honestly the best contraception
>ive ever used - i have had none of the side effects that have presented
>themselves with other contraceptives, e.g. weight gain, headaches,
>nausea, acne...... as the hormone is excreted locally.
>
>Moving on from that, I recently had another op for removal of endo due
>to a pain in my right side, where my scar from the previous op is. My
>specialist found nothing at that sight, but found some endo deep in my
>bowel. I still have this pain on my right side, it even hurts if i hav
>pants on that are a bit tight - I know its not endometriosis and the
>site is too small an incision site for it to be a hernia. Any idea what
>it could be? has anybody had a similar problem?
>
>--
>Stef :)
>At Fri, 27 Jul 2007, andrea wrote:
>>
>>Wow!! I will definately be looking that up and asking my doctor about
>>it. Not bleeding would be heaven! I have NEVER heard of a pill that
>>helps that much! I have always had major bleeding and nausea with BC
>>pills. (but they all had estrogen too)
>>
>>Thank you soooo very much! I just hope I can take it with my
>>bio-identical stuff. If your pills calm down my pain and bleeding, I
>>may not do the surgery......that would be awesome. Even though I'm very
>>hesitant to take anything synthetic, I would try that before having a
>>lap, my bowels messed with and forking out $10 grand for a surgery I
>>can't afford. At least it's not Lupron. I think I would take just
>>about anything except that if it would kill the pain. I'm going to call
>>my doctor on Monday to see if he will call it in for me. Do you know
>>anyone else who is on it who likes it as well?
>>
>>Thanx, Lisa!!!
>>
>>--
>>Andrea
>>
>>At Fri, 27 Jul 2007, Lisa wrote:
>>>
>>>Hi Andrea~
>>>I have experienced very little nausea with the ortho micronor. I too
>>>get super nauseus with BCP that contain estrogen. SO far I have not
>>>bled at all (even spoting) in 4 months.
>>>
>>>At Tue, 24 Jul 2007, andrea wrote:
>>>>
>>>>Lisa,
>>>>
>>>>Hi, just wondering if you've ever had any nausea or weird side effects
>>>>with the Ortho Microner? I too could not take any BC pills with
>>>>estrogen! They would make my extremely nauseated and started making me
>>>>have menopausal symptoms too! I'm trying to find anything that could
>>>>relieve my 3 days of excrutiating pain and slow down my heavy bleeding
>>>>during my period so that I don't have to have surgery, but I think I'm
>>>>just postponing the inevitable.
>>>>
>>>>I need a lap surgery but am also seriously considering having my uterus
>>>>out too, because my doctor thinks that I have Adenomyosis also, (endo in
>>>>my uterine muscle). Plus, the heavy bleeding interferes with my life
>>>>just as much as the pain does and I am sick of it! I am just so scared
>>>>of having any complications after the surgery. I want to be able to
>>>>work a full-time job again and be able to plan trips without having to
>>>>schedule everything around my stupid period. I don't have any kids, but
>>>>still think it would make me so happy to NEVER have a period again.
>>>>Thanks for responding! Have a good day.
>>>>
>>>>--
>>>>Andrea :)
>>>>
>>>>At Tue, 24 Jul 2007, Lisa wrote:
>>>>>
>>>>>Ortho-Micronor does not contain any estrogen. It is progestin
>>>>>(Norethindrone) only. It comes as 28 active pills, so you never
>>>>>actually have a break. My doctor did warn about spotting, but after 4
>>>>>months I have yet to spot at all. I did really bad with the estrogen in
>>>>>most BCP's and have not had any real problems with ortho micronor
>>>>>
>>>>>--
>>>>>lisa
>>>>>
>>>>>At Sun, 22 Jul 2007, andrea wrote:
>>>>>>
>>>>>>Lisa,
>>>>>>
>>>>>>I have never heard of this pill. Does it not contain any estrogen? I
>>>>>>may consider just taking a pill with synthetic progestin to slow my
>>>>>>periods because I bleed so heavy my first 2 days, I fill up the biggest
>>>>>>tampon once every hour! I would give ANYTHING to bleed less! I don't
>>>>>>know if I could take it with my bio-identical Progesterone or not. I
>>>>>>guess I will have to ask my doc. I'm against taking anything synthetic,
>>>>>>but want to try a few things before I decide to go through an extensive
>>>>>>lap surgery. I'm scared and can't bring myself to schedule it yet!
>>>>>>
>>>>>>I know Progestin isn't as bad as Estrogen and Estrogen makes me
>>>>>>extremely nauseated too. The NuvaRing made me really nauseated! I'm
>>>>>>also going to look up the Ortho Microner and see what it's all about.
>>>>>>You have not had any bad reactions from it?
>>>>>>
>>>>>>At Sun, 22 Jul 2007, Lisa wrote:
>>>>>>>
>>>>>>>I had a really bad reaction to the Nuvaring as well. I have had 2 laps
>>>>>>>done to remove the endo, a LUNA procedure, done Lupron, deop, and most
>>>>>>>all other BCPs and nothing helped my cramps. My doctor suggested
>>>>>>>Nuvaring and so I tried it. I think I only had it in for about 4 days
>>>>>>>and durring that time I was so nauseated and dizzy I could barly get out
>>>>>>>of bed. My doctor told me to remove it and gave me some Zofran for the
>>>>>>>nausea. With in less than I day I started to feel so much better. It
>>>>>>>is supposed to be tolorated very well by most (or so my doctor says),
>>>>>>>but I can't do it.
>>>>>>>My doctor has now switched me to Ortho-Micronor and I have hot had any
>>>>>>>bleeding or serious pain in 4 months. It seems I can not tolerate the
>>>>>>>estrogen in most BCPs as htey always made me sick or break through
>>>>>>>bleed.
>>>>>>>
>>>>>>>At Fri, 20 Jul 2007, Kristina wrote:
>>>>>>>>
>>>>>>>>Hi ladies.... Been a while since I've posted here. I have a question
>>>>>>>>about the nuvaring...but first I'll give a little history. I have had a
>>>>>>>>lap, and a myomectomy (remove of a fibroid from my uterus). I was found
>>>>>>>>to have endo on the left US ligament, in the cul-de-sac, and the
>>>>>>>>peritoneum. I have tried everything from lupron to BC, to CBC. Most
>>>>>>>>recently my Dr wanted me to try the nuvaring to see if this would help.
>>>>>>>>I was hesitant but did it anyways. Not long after I put it in I started
>>>>>>>>to feel nauseated and crampy...these things only got worse over the 9
>>>>>>>>days I ended up leaving it in. I finally decided I was going to take it
>>>>>>>>out, due to the severe cramping and nausea I was experiencing. Crazy
>>>>>>>>enough, about 3 hours after taking it out, the cramping and nausea had
>>>>>>>>quieted down some. I really think the nuvaring irritated my endo....has
>>>>>>>>anyone else ever had this happen to them, or know someone it happened
>>>>>>>>to? Thanks for listening, and feel free to email me directly!
>>>>>>>>
>>>>>>>>Kristina
>>>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)