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Re: anyone living a normal life out there? if so, can you give me some advice Andrea
From: anonymous (anonymous@obgyn.net)
Wed Jul 25 18:19:56 2007
just curious, how did you have your endo diagnosed if you have not had a
lap? It was my understanding that a lap was the only was to diagnose it?
just curious if there is another easier route...
At Wed, 25 Jul 2007, andrea wrote:
>
>Hi, Jennifer.
>
>I have to say, Lupron scares the holy crap out of me and every doctor
>I've been to in the last 10 years has tried to put me on it except for
>one, and HE'S the only one I trust! Many women get bad side effects that
>are irreversible! Bone loss and memory loss are the most common. I
>think the best way to deal with this disease is to go to a great
>specialist, who can get as much endo excised as he can and then balance
>your hormone levels.
>
>I guess I have a somewhat normal life, but still have 3 days of severe
>pain with my period and right now I don't feel good because I have an
>ovarian cyst. I get one about every 2 years now. I can only work
>part-time because I always end up taking days off for my period. I am
>most likely going to have an extensive lap surgery next month. I have
>never had one, because I could never find the right doctor. Now, I have
>a specialist named John Dulemba in Denton. I can sympathize with your
>pain and fatigue. It's awful. Just don't let your doctor make you feel
>like Lupron is your only hope.
>
>Check out my July 7th entry that says "The Cause of Endo" and see if you
>have had any of the same symptoms I used to have. I started taking
>bio-identical progesterone 4 years ago to balance my hormones and it
>helped so much! Your doctor giving you Estrogen makes no sense, because
>that is what makes endo GROW! The best add back to take is Progesterone
>because it gets rid of yucky symptoms and supresses your estrogen so the
>endo won't grow. So many doctors out there are just plain stupid when
>it comes to this disease.
>
>If you end up not liking your doc or treatment and want to go an
>alternative route, these doctors in Houston use herbal progesterone to
>balance your hormones:
>
>Dr. Steven F. Hotze, M.D.
>Hotze Health & Wellness Center
>20214 Braidwood Drive, Suite 215
>Houston, Texas 77450
>281-579-3600
>
>Dr. Loretta Lanphier, ND, CN, HHP
>Oasis Advanced Wellness
>35 S CreekMist Place
>The Woodlands, TX 77385
>832-295-0560
>
>Dr. Gilbert Manso, M.D.
>7211 Regency SQ # 200
>Houston, TX 77036
>713-840-9355
>
>Dr. Ronald M. Pucillo, M.D.
>Board Certified Family Practice
>4415 Hwy. 6 South
>Sugar Land, TX 77478
>281-340-9325
>
>Dr. Alex Vasquez, D.C., N.D.
>The Whole Health Center
>5177 Richmond, Suite 125
>Houston, TX 77056
>713-203-7828
>
>At Wed, 25 Jul 2007, Jennifer wrote:
>>
>>Hello.. My name is Jennifer. I have stage 4 endo all in my body -
>>especially throughout my abdominal cavity. I have been sick and in pain
>>since December and was only diagnosed with this in early June after my
>>second laproscopy surgery and after they removed a bunch of organs for
>>sytematic reasons.. gallbladder, appendix, part of my liver...
>>
>>I am seeing a specialist in the med center in Houston who has a clinical
>>trial for people like me.. and since July 2nd, I have been taking a
>>daily Lupron shot that I gave myself at home plus I wear an estrogen
>>patch for side affects and take several different "oils" and am on a
>>special diet.
>>
>>I am so run down and my body is always in so much pain and I am so tired
>>and my life has basically become nothing... I sleep and when I am awake
>>I try to just rest and the pain is so intense I just feel horrible all
>>the time.
>>
>>My life is completely gone .... I just am wondering if anyone is in my
>>condition - I want to live.. I want to go back to work - I want to be
>>able to feel good and have a normal sexual relationship with my
>>boyfriend.. you know.. just feel good enough to get out of bed at a
>>reasonable time and live..
>>
>>I have already given up more than 9 months of my life to this disease or
>>whatever it is.... and I just want to know what I have to do to learn
>>to either cope with my pain or solve that issue so I can start my life
>>again...I am very depressed and I honestly feel that I am in more pain
>>now than I was before I started the Lupron daily shots.
>>
>>I have noticed that my diet has alot to do with it and when I eat
>>properly and take all of these oils and follow the nutrition part of it,
>>I feel somewhat better.. but the joint and bone pain is severe not to
>>mention the pain I have had on my right side since December when I got
>>sick...
>>
>>If anyone has any advice, please feel free to write me here or at
>>urbancatdesignstudio@yahoo.com.
>>
>>Best Regards,
>>
>>--
>>Jennifer
>>
>>At Wed, 25 Jul 2007, Stephanie wrote:
>>>
>>>Hello Jill....OMG...your story totally sounds like my Story!! LOL....One
>>>of my coworkers tells me all the time...or should i say when she hears
>>>me complaining...she tells me Girl, what is it today? She says it
>>>playing around BUT i know she means it! So i totally understand how you
>>>feel!! Its very frustruating dealing w/the daily pain, work and
>>>coworkers who think that we are either faking it or exagerrating!! Im
>>>also on Lupron...well only got one shot because i had really bad joint
>>>pains, so i wont take it anymore, but people do think that since im
>>>taking a medication, that i should be feeling better! Well NO, it doesnt
>>>work like that!! Take Care and hope you feel better soon!! Steph :)
>>>
>>>At Wed, 25 Jul 2007, jillson wrote:
>>>>
>>>>Today I had a co worker say to me "is there anything that isn't wrong
>>>>with you?" I just wanted to punch her. I try not to complain but
>>>>sometimes I have to. My back always hurts if I don't take Motrin and I
>>>>have a strenuous job. She knows my situation. If I ever call in sick
>>>>everyone always asks me why and why am I having pain. I should see a
>>>>doctor, like I don't already you idiots. They think because I am on
>>>>Lupron and I had surgery I should be 100% pain free. Ugh! I have
>>>>constant fatigue and it is getting hard to pretend anymore that
>>>>everything is "fine". Thanks for listening I just had to vent.
>>>>
>>>>Jill
>>
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