Re: anyone living a normal life out there? if so, can you give me some advice
From: andrea (anonymous@obgyn.net)
Wed Jul 25 17:55:10 2007
Hi, Jennifer.
I have to say, Lupron scares the holy crap out of me and every doctor
I've been to in the last 10 years has tried to put me on it except for
one, and HE'S the only one I trust! Many women get bad side effects that
are irreversible! Bone loss and memory loss are the most common. I
think the best way to deal with this disease is to go to a great
specialist, who can get as much endo excised as he can and then balance
your hormone levels.
I guess I have a somewhat normal life, but still have 3 days of severe
pain with my period and right now I don't feel good because I have an
ovarian cyst. I get one about every 2 years now. I can only work
part-time because I always end up taking days off for my period. I am
most likely going to have an extensive lap surgery next month. I have
never had one, because I could never find the right doctor. Now, I have
a specialist named John Dulemba in Denton. I can sympathize with your
pain and fatigue. It's awful. Just don't let your doctor make you feel
like Lupron is your only hope.
Check out my July 7th entry that says "The Cause of Endo" and see if you
have had any of the same symptoms I used to have. I started taking
bio-identical progesterone 4 years ago to balance my hormones and it
helped so much! Your doctor giving you Estrogen makes no sense, because
that is what makes endo GROW! The best add back to take is Progesterone
because it gets rid of yucky symptoms and supresses your estrogen so the
endo won't grow. So many doctors out there are just plain stupid when
it comes to this disease.
If you end up not liking your doc or treatment and want to go an
alternative route, these doctors in Houston use herbal progesterone to
balance your hormones:
Dr. Steven F. Hotze, M.D.
Hotze Health & Wellness Center
20214 Braidwood Drive, Suite 215
Houston, Texas 77450
281-579-3600
Dr. Loretta Lanphier, ND, CN, HHP
Oasis Advanced Wellness
35 S CreekMist Place
The Woodlands, TX 77385
832-295-0560
Dr. Gilbert Manso, M.D.
7211 Regency SQ # 200
Houston, TX 77036
713-840-9355
Dr. Ronald M. Pucillo, M.D.
Board Certified Family Practice
4415 Hwy. 6 South
Sugar Land, TX 77478
281-340-9325
Dr. Alex Vasquez, D.C., N.D.
The Whole Health Center
5177 Richmond, Suite 125
Houston, TX 77056
713-203-7828
At Wed, 25 Jul 2007, Jennifer wrote:
>
>Hello.. My name is Jennifer. I have stage 4 endo all in my body -
>especially throughout my abdominal cavity. I have been sick and in pain
>since December and was only diagnosed with this in early June after my
>second laproscopy surgery and after they removed a bunch of organs for
>sytematic reasons.. gallbladder, appendix, part of my liver...
>
>I am seeing a specialist in the med center in Houston who has a clinical
>trial for people like me.. and since July 2nd, I have been taking a
>daily Lupron shot that I gave myself at home plus I wear an estrogen
>patch for side affects and take several different "oils" and am on a
>special diet.
>
>I am so run down and my body is always in so much pain and I am so tired
>and my life has basically become nothing... I sleep and when I am awake
>I try to just rest and the pain is so intense I just feel horrible all
>the time.
>
>My life is completely gone .... I just am wondering if anyone is in my
>condition - I want to live.. I want to go back to work - I want to be
>able to feel good and have a normal sexual relationship with my
>boyfriend.. you know.. just feel good enough to get out of bed at a
>reasonable time and live..
>
>I have already given up more than 9 months of my life to this disease or
>whatever it is.... and I just want to know what I have to do to learn
>to either cope with my pain or solve that issue so I can start my life
>again...I am very depressed and I honestly feel that I am in more pain
>now than I was before I started the Lupron daily shots.
>
>I have noticed that my diet has alot to do with it and when I eat
>properly and take all of these oils and follow the nutrition part of it,
>I feel somewhat better.. but the joint and bone pain is severe not to
>mention the pain I have had on my right side since December when I got
>sick...
>
>If anyone has any advice, please feel free to write me here or at
>urbancatdesignstudio@yahoo.com.
>
>Best Regards,
>
>--
>Jennifer
>
>At Wed, 25 Jul 2007, Stephanie wrote:
>>
>>Hello Jill....OMG...your story totally sounds like my Story!! LOL....One
>>of my coworkers tells me all the time...or should i say when she hears
>>me complaining...she tells me Girl, what is it today? She says it
>>playing around BUT i know she means it! So i totally understand how you
>>feel!! Its very frustruating dealing w/the daily pain, work and
>>coworkers who think that we are either faking it or exagerrating!! Im
>>also on Lupron...well only got one shot because i had really bad joint
>>pains, so i wont take it anymore, but people do think that since im
>>taking a medication, that i should be feeling better! Well NO, it doesnt
>>work like that!! Take Care and hope you feel better soon!! Steph :)
>>
>>At Wed, 25 Jul 2007, jillson wrote:
>>>
>>>Today I had a co worker say to me "is there anything that isn't wrong
>>>with you?" I just wanted to punch her. I try not to complain but
>>>sometimes I have to. My back always hurts if I don't take Motrin and I
>>>have a strenuous job. She knows my situation. If I ever call in sick
>>>everyone always asks me why and why am I having pain. I should see a
>>>doctor, like I don't already you idiots. They think because I am on
>>>Lupron and I had surgery I should be 100% pain free. Ugh! I have
>>>constant fatigue and it is getting hard to pretend anymore that
>>>everything is "fine". Thanks for listening I just had to vent.
>>>
>>>Jill
>
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