Re: anyone living a normal life out there? if so, can you give me some advice
From: Erica (anonymous@obgyn.net)
Wed Jul 25 17:32:34 2007
Hi Jennifer,
I have never heard of anyone taking daily Lupron shots. And you say
you've been doing it since July 2nd? Recommendations state an individual
should not exceed 6 doses maximum. I'm concerned about you. Lupron
completely screwed up my joints long-term after I stopped two
treatments. Are you taking on a daily basis what others take once a
month?
--
Erica
At Wed, 25 Jul 2007, Jennifer wrote:
>
>Hello.. My name is Jennifer. I have stage 4 endo all in my body -
>especially throughout my abdominal cavity. I have been sick and in pain
>since December and was only diagnosed with this in early June after my
>second laproscopy surgery and after they removed a bunch of organs for
>sytematic reasons.. gallbladder, appendix, part of my liver...
>
>I am seeing a specialist in the med center in Houston who has a clinical
>trial for people like me.. and since July 2nd, I have been taking a
>daily Lupron shot that I gave myself at home plus I wear an estrogen
>patch for side affects and take several different "oils" and am on a
>special diet.
>
>I am so run down and my body is always in so much pain and I am so tired
>and my life has basically become nothing... I sleep and when I am awake
>I try to just rest and the pain is so intense I just feel horrible all
>the time.
>
>My life is completely gone .... I just am wondering if anyone is in my
>condition - I want to live.. I want to go back to work - I want to be
>able to feel good and have a normal sexual relationship with my
>boyfriend.. you know.. just feel good enough to get out of bed at a
>reasonable time and live..
>
>I have already given up more than 9 months of my life to this disease or
>whatever it is.... and I just want to know what I have to do to learn
>to either cope with my pain or solve that issue so I can start my life
>again...I am very depressed and I honestly feel that I am in more pain
>now than I was before I started the Lupron daily shots.
>
>I have noticed that my diet has alot to do with it and when I eat
>properly and take all of these oils and follow the nutrition part of it,
>I feel somewhat better.. but the joint and bone pain is severe not to
>mention the pain I have had on my right side since December when I got
>sick...
>
>If anyone has any advice, please feel free to write me here or at
>urbancatdesignstudio@yahoo.com.
>
>Best Regards,
>
>--
>Jennifer
>
>At Wed, 25 Jul 2007, Stephanie wrote:
>>
>>Hello Jill....OMG...your story totally sounds like my Story!! LOL....One
>>of my coworkers tells me all the time...or should i say when she hears
>>me complaining...she tells me Girl, what is it today? She says it
>>playing around BUT i know she means it! So i totally understand how you
>>feel!! Its very frustruating dealing w/the daily pain, work and
>>coworkers who think that we are either faking it or exagerrating!! Im
>>also on Lupron...well only got one shot because i had really bad joint
>>pains, so i wont take it anymore, but people do think that since im
>>taking a medication, that i should be feeling better! Well NO, it doesnt
>>work like that!! Take Care and hope you feel better soon!! Steph :)
>>
>>At Wed, 25 Jul 2007, jillson wrote:
>>>
>>>Today I had a co worker say to me "is there anything that isn't wrong
>>>with you?" I just wanted to punch her. I try not to complain but
>>>sometimes I have to. My back always hurts if I don't take Motrin and I
>>>have a strenuous job. She knows my situation. If I ever call in sick
>>>everyone always asks me why and why am I having pain. I should see a
>>>doctor, like I don't already you idiots. They think because I am on
>>>Lupron and I had surgery I should be 100% pain free. Ugh! I have
>>>constant fatigue and it is getting hard to pretend anymore that
>>>everything is "fine". Thanks for listening I just had to vent.
>>>
>>>Jill
>
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