ENDO Messages for July, 2007: anyone living a normal life out there? if so, can you give me some advice

anyone living a normal life out there? if so, can you give me some advice

From: Jennifer (anonymous@obgyn.net)
Wed Jul 25 15:30:43 2007

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Hello.. My name is Jennifer. I have stage 4 endo all in my body - especially throughout my abdominal cavity. I have been sick and in pain since December and was only diagnosed with this in early June after my second laproscopy surgery and after they removed a bunch of organs for sytematic reasons.. gallbladder, appendix, part of my liver...

I am seeing a specialist in the med center in Houston who has a clinical trial for people like me.. and since July 2nd, I have been taking a daily Lupron shot that I gave myself at home plus I wear an estrogen patch for side affects and take several different "oils" and am on a special diet.

I am so run down and my body is always in so much pain and I am so tired and my life has basically become nothing... I sleep and when I am awake I try to just rest and the pain is so intense I just feel horrible all the time.

My life is completely gone .... I just am wondering if anyone is in my condition - I want to live.. I want to go back to work - I want to be able to feel good and have a normal sexual relationship with my boyfriend.. you know.. just feel good enough to get out of bed at a reasonable time and live..

I have already given up more than 9 months of my life to this disease or whatever it is.... and I just want to know what I have to do to learn to either cope with my pain or solve that issue so I can start my life again...I am very depressed and I honestly feel that I am in more pain now than I was before I started the Lupron daily shots.

I have noticed that my diet has alot to do with it and when I eat properly and take all of these oils and follow the nutrition part of it, I feel somewhat better.. but the joint and bone pain is severe not to mention the pain I have had on my right side since December when I got sick...

If anyone has any advice, please feel free to write me here or at urbancatdesignstudio@yahoo.com.

Best Regards,

--
Jennifer

At Wed, 25 Jul 2007, Stephanie wrote:
>
>Hello Jill....OMG...your story totally sounds like my Story!! LOL....One
>of my coworkers tells me all the time...or should i say when she hears
>me complaining...she tells me Girl, what is it today? She says it
>playing around BUT i know she means it! So i totally understand how you
>feel!! Its very frustruating dealing w/the daily pain, work and
>coworkers who think that we are either faking it or exagerrating!! Im
>also on Lupron...well only got one shot because i had really bad joint
>pains, so i wont take it anymore, but people do think that since im
>taking a medication, that i should be feeling better! Well NO, it doesnt
>work like that!! Take Care and hope you feel better soon!! Steph :)
>
>At Wed, 25 Jul 2007, jillson wrote:
>>
>>Today I had a co worker say to me "is there anything that isn't wrong
>>with you?" I just wanted to punch her.  I try not to complain but
>>sometimes I have to.  My back always hurts if I don't take Motrin and I
>>have a strenuous job.  She knows my situation.  If I ever call in sick
>>everyone always asks me why and why am I having pain.  I should see a
>>doctor, like I don't already you idiots.  They think because I am on
>>Lupron and I had surgery I should be 100% pain free.  Ugh! I have
>>constant fatigue and it is getting hard to pretend anymore that
>>everything is "fine".  Thanks for listening I just had to vent.
>>
>>Jill

Next message: Jennifer: "Re: To anyone tyring alternative treatments for endo"
Previous message: Stephanie: "Re: Just need to vent!!"
In reply to: Stephanie: "Re: Just need to vent!!"
Next in thread: Erica: "Re: anyone living a normal life out there? if so, can you give me some advice"
Reply: Erica: "Re: anyone living a normal life out there? if so, can you give me some advice"
Reply: andrea: "Re: anyone living a normal life out there? if so, can you give me some advice"

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