ENDO Messages for July, 2007: Re: Life after surgeries?? to Paige

Re: Life after surgeries?? to Paige

From: andrea (anonymous@obgyn.net)
Mon Jul 16 23:19:37 2007

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Paige, whoever this person is, don't let them get you down. Doctors make plenty of people feel this way though, so I don't blame her. I know how frustrating and angry you can get trying to find a doctor who will help you or even just listen, but there is someone who is out there for you. It took me a very long time and a lot of money spent on useless pills, but I found someone to help me. My general practitioner 4 years ago! I take some herbal things and a couple conventional meds, and they help a lot! If you'd like to know what I take I am happy to share that with you. You can e-mail me anytime! I've talked about it a lot on here though and I think a couple people feel that I'm pushing them to take what I'm on, so I don't even want to mention it now unless someone asks me about it directly. (I have gotten a lot of positive feedback too about my story and the meds I'm on.)

Lots of women who have had hysterectomies or are in menopause take what I'm on. (Dr. Phil's wife goes to my pharmacy and takes what I do!) You could also try to find a pelvic pain management doctor. That's what I had to find. They deal with everything in that area. There's no way they will turn you away when you have all this documentation of your surgeries and endo! No regular OB would ever give me the pain meds I needed either.

I have never had a lap, because I wanted to try all I could on my own first and find exactly the right doctor to do a lap if I decided to go that way. Not only a doctor with lots of experience, but with a good bedside manner. Someone who would not pressure me to take drugs I did not want, be condescending and treat me like I was just a stupid patient or even worse - a customer. I saw a specialist a few months ago who I thought was a real ass, but I kept looking.

Now I have a specialist who has given me options, even just pain management if I want. He did a vaginal sonogram so he could see some of the extent of my disease and my ovaries were totally immobile and found Adenomyosis too, so he knew there was plenty of scar tissue in there. He explained in detail what the surgery would entail, the pain after, the posssible risks. He even threw the option of Lupron out there, which I immediately said "Not for a million bucks, would I take that!" He didn't push though like other docs, and was very nice, would even say something to try and make me laugh when I teared up. I think I might just do pain management for a while, unless things get worse for some reason. I think I am just too scared to go through with it, now that my uterus is involved.

You are very courageous and have been through more surgeries than anyone else I've talked to! I wish I had a quarter of the strength you must have to keep fighting. If you've made it this far Paige, don't you dare let anyone tell you to give up! We are all here to help each other and like Elisa (on this forum) said, figure this disease out together.

Keep your head up and try to stay strong! e-mail me soon :)

Take Care,

--
Andrea

At Mon, 16 Jul 2007, anonymous wrote:
>
>don't focus on it anymore.  I thought surgery would help, but nothing's
>changed.  Just have more doctors bills and problems at my job.  My
>advice - give up going to the docs.  They are just a waste of time.  Suck
>it up and suffer.  That is what life is - suffering.
>
>At Mon, 16 Jul 2007, Paige wrote:
>>
>>I have had seven surgeries in six years for endometriosis, including a
>>complete hsyterectomy before age 40.  My last surgery was May 07 and my
>>OBGYN (a male doctor) says to give it a few more weeks for the healing
>>process.  Advil doesn't help, they won't give me anymore painkillers for
>>fear of becoming addicted (even though I've been on and off vicodin for
>>the last 6 years successfully!)...it's affecting my social life, my work
>>life, my sex life, my emotional health...does anybody have any advice on
>>where to go next? I've seen 2 "specialists", 3 other OBGYN, went to the
>>Mayo Clinic in Rochester, MN, had every test known to woman, saw a
>>urologist, a psychologist, and yet here I am, still in pain.
>>
>>--
>>Paige
>>jmsub99@yahoo.com
>>

Next message: andrea: "Lupron Questions....To Steph & the Lupron leaflet link!"
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