Re: Lupron Questions....To Steph & the Lupron leaflet link!
From: andrea (anonymous@obgyn.net)
Mon Jul 16 22:27:10 2007
I know Steph, I remembered you saying you got sunburned after your shot!
I'm sorry for all you're going through with this & everyone else who has
been talked into taking it. Scroll down on this page to where it says
"What can patients do to help alleviate or prevent discomfort and side
effects?" It says to minimize sun exposure.
Here is the page:
http://www.swedish.org/116458.cfm
It is REQUIRED BY THE FDA to get an insert about Lupron but I don't know
of ANYONE who has gotten one. Did you? Did your doctor give you one? It
all sounds like very technical stuff until you get to page 4, then it
starts listing side effects.
THIS IS THE ACTUAL LUPRON INSERT:
http://pitap.abbott.com/lupron7_5mg.pdf?noCache
At the bottom of page 6, it says that photosensitivity has been reported
as a side effect of the drug. Please repost the link on the insert
because I'm sure doctors don't tell patients of all the side effects
listed! New stuff comes up everyday.....but the more power to us. Now
we can feel more confident when we tell the doctor why we don't want to
take this crap.
At Mon, 16 Jul 2007, Stephanie wrote:
>
>Hello Andrea, OMG...i guess this is why i got that REALLY BAD SUNBURN
>two weekends ago!! I thought it had been my add-back therapy, but now
>that you mentioned it, i see why i got sunburned so easily! Geeze!
>Thanks for the info!! I greatly appreciate it...Steph :)
>
>At Mon, 16 Jul 2007, andrea wrote:
>>
>>Hi everyone.
>>
>>I was trying to find some new info on Lupron for Kristin and (bcuz my
>>specialist now wants me to take it for my Adeno) and this popped up!
>>It's called, "What your doctor doesn't tell you about lupron." It's very
>>informative, but a bit lengthy. It has information that I have never
>>read before. At least read page 4 if anything. I know Lupron has been
>>a help for some, but it seems that most women just suffer more from it
>>and doctors don't tell you everything it will do to you. I found 2
>>other pages that said "Avoid prolonged sun exposure." No one's doctor is
>>telling them that they will get easily sunburned on Lupron. I would
>>like to see the pamphlet that comes with this stuff. Is there one??
>>
>>I not only think this is a terrible drug, but the company that makes it
>>is very dishonest and underhanded in it's marketing technique and sales
>>of this drug!
>>
>>RICO suits are what the FBI puts together to try to bring down the mafia
>>and this drug company (TAP Pharmaceuticals) had one against THEM and
>>were found guilty.
>>
>>"The suit, brought under the federal Racketeer Influenced & Corrupt
>>Organizations Act (RICO) represents the largest pharmaceutical fine in
>>history."
>>
>>http://www.associatedcontent.com/article/48852/what_your_doctor_doesnt_tell_you_aboutlupron.html
>>
>>At Mon, 16 Jul 2007, Pam wrote:
>>>
>>>Sorry I am just now able to get on the forum to see if anyone has
>>>responsed on here. Thank you for your information. I realize now that
>>>the nurse was wrong. I did call her and leave a message after I had
>>>already left because I forgot to ask when I was there. So it was around
>>>5 when she returned my call, I'm guessing that she just didn't want to
>>>really tell me so I wouldn't ask more questions, because I would have.
>>>Thankfully she is not my gyn's nurse so I know not to ask her any more
>>>questions.
>>>
>>>I do have a question, which may be a crazy question that no one can
>>>answer but I am going to ask anyway. I went to the web-site that you
>>>posted and saw where it said that your hormones increase for 1 or 2
>>>weeks. I really do not understand this. My husband was with me when I
>>>went to get the shot. I told him what the nurse had said and then told
>>>him about the web-site. He asked the same question. Here is the
>>>question: if it is estogen that causes the Endo to grow then why would
>>>the shot cause it to increase your hormones first, if the whole point of
>>>taking it is to decrease them. I have been told by many different
>>>people and drs, that Endo feeds off estogen, so when I think about this,
>>>I think what if I only have a little Endo that just happens to be in
>>>places that cause me to be in unbearable pain, I started taking this
>>>shot and for 1 or 2 weeks it will increase my hormone levels, which from
>>>what I understand will cause more Endo to grow for the frist couple of
>>>weeks, then it will start to make the hormone levels decline. Is it not
>>>a bad thing to have them increase to begin with? I hope I said that
>>>correctly and you can make sense of what I am trying to ask. I was just
>>>wondering because so far I have either got everything confused or
>>>received the wrong information. Thanks for the web-site and for any
>>>information you can give me about my question.
>>>
>>>~Wishing for pain free days...Pam~
>>>
>>>At Sun, 15 Jul 2007, anonymous wrote:
>>>>
>>>>I'm sorry to say that nurse was wrong about how fast the shots would
>>>>effect you, and I'm really surprised she made a mistake like that! It
>>>>says right on the Lupon website that "After your first injection of
>>>>Lupron Depot, your reproductive hormones may increase for 1 or 2 weeks.
>>>>During that time, you may notice an increase in your current symptoms.
>>>>After two weeks, these hormone levels should decline."
>>>>
>>>>http://www.endofacts.com/luprondepot/during/
>>>>
>>>>I would definitely double check anything else she may have told you!
>>>>
>>>>At Sat, 14 Jul 2007, Pam wrote:
>>>>>
>>>>>Hi, everyone! It has been a long time since I have been on here. I have
>>>>>had a lot of problems!
>>>>>
>>>>>I am actually posting today because I decided to take the Lupron Depot
>>>>>shot. As you know, I was really against it when I first discovered I
>>>>>had Endo. At this point in my life, I felt I had no choice. I did do a
>>>>>lot of research again to see if anything had changed from the first time
>>>>>I researched it. *Please see note at the bottom.*
>>>>>
>>>>>Anyway, I started my first shot on 7/11, I was not put on any addback
>>>>>therapy although I have read a lot about it. I have an appt. with my
>>>>>gyn on 7/23. I am going to ask about the addback therapy when I see
>>>>>her.
>>>>>
>>>>>As for my questions, I really basically want to know what I should
>>>>>expect to happen for the first month. I have my second shot on 8/9 so
>>>>>between now and then what, if anything, should I expect? A nurse at my
>>>>>gyn's office gave me the shot not my gyn, she told me that I wouldn't
>>>>>have any side effects or notice any change in pain until after the
>>>>>second shot. Has anyone noticed any side effects or decrease/increase
>>>>>in pain between their first and second shot?
>>>>>
>>>>>My gyn also signed me up with "ScriptAssist." It is "a free service
>>>>>designed to offer you a helping hand during your Lupron Depot therapy.
>>>>>With ScriptAssist, you will receive personalized support from a
>>>>>Registered Nurse, and get answers to any questions about Lupron Depot."
>>>>>I am sure this service probably varies by states (I'm in TN) but I was
>>>>>wondering if anyone has heard of it and knows anything about it.
>>>>>
>>>>>I believe that was all the questions I have for right now. If anyone
>>>>>has any advice/information to offer I would really appreciate it.
>>>>>
>>>>>Also please feel free to e-mail me at precious21082@comcast.net. I
>>>>>check my e-mails everyday but I might not be able to get on the forum to
>>>>>see if anyone has responsed or not. If you do e-mail me directly please
>>>>>put "Lupron" or something like that for the subject so I don't delete
>>>>>your e-mails thinking it is spam or something. Thanks ahead of time!
>>>>>
>>>>>**For those who are not fimilar with my story, my first post was in Oct.
>>>>>06. Just go back through the post, search under author and find Pam, I
>>>>>believe I posted every month up until about Feb or March.
>>>>>
>>>>>--
>>>>>~Wishing for pain free days....Pam~
>>>>>
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