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Re: Anyone who tried Lupron, please respond.From: Vicki (anonymous@obgyn.net)Mon Jul 16 19:33:23 2007
At Mon, 16 Jul 2007, Erica wrote: > >Kristen, > >Hi, anytime anyone requests info on Lupron I feel compelled to respond. >Of course you have to ultimately make the decision but I would strongly >advise you NOT to take Lupron. If you go through this forum and read >all the stories and research on this drug it is a scary thing! I tried >Lupron twice, both times for two months. I gave it another try in >January b/c like so many I was at the end of my rope. I'd had two >laparoscopics and no pain relief plus countless meds. My doc pretty >much said the only thing we could try would be Lupron and after careful >consideration I went for it. After my second injection (days before I >was scheduled to have a 3rd) I woke up in the middle of the night with >severe joint pain. It came on all of a sudden and was the worst pain >I've ever experienced (which is saying alot since I've had endo for four >years). It affected my wrists, ankles, back, and worst of all knees. I >can't relay to you the pain it caused me on top of the endo pain. I >immediately stopped treatment. That was 7 months ago and I still live >with joint pain on a daily basis. I have to take glucosamine daily and >have had acupunture. Now along with endo pain I often feel very old for >my age. I'm only 26 and I swear sometimes I feel like I'm 70. The >Lupron only provided relief from pelvic pain while I was on it and the >pain came back immediately after I stopped the injections. It is not a >cure for endo although doctors portray it as such. Believe me I know >you are looking for something, anything, to take away your pain but the >truth is Lupron is not likely to provide you with any long-term relief >and may very well add pain in other ways. I often wonder if I've done >permanent damage to my bones/joints. Please Please look at the sites >that others have recommended-I think you'll find more negative than >positive reports. > >Have you researched excision surgery as opposed to laser laparoscopy? >I'm asking b/c for so long I didnt' understand the difference but after >doing the research I've found that excision surgery (performed by an >endo specialist) has the best results for pain relief. I'm scheduled to >see Dr. Redwine in 2 weeks and will be having excision surgery. > >Best of luck to you, if you want any more information feel free to email >me at eml0817@cox.net > >At Mon, 16 Jul 2007, Kristen wrote: >> >>Good afternoon ladies, >> >>I am going for my fourth laparoscopy this Thursday to get rid of some >>more endo/adhesions, and my doctor highly recommends going on Lupron >>after the surgery. I tried everything so far, so this is the last >>option. Last I tried Depo Provera, but the side effects were unbearable >>(heart palpitations, panic attacks, etc). I have heard mixed things >>about Lupron, and was hoping i could get some more opinions from all of >>you based on personal experience. Of course, my male doctor can easily >>say i won't have side effects and it won't be bad, but i need first hand >>opinions. so please, please let me know your thoughts, i would greatly >>appreciate it. >> >>Thanks again, and i wish all of you pain free days ahead! >> >>-- >>Kristen >> >-- >Erica > Kristen, After my experience, I as well feel compelled to respond to you. DO NOT go on Lupron! I had a hysterectomy in 2004 and went on Lupron for 6 months after my surgery. That was the worst 6 months of my life. Ask my family, I was hell to live with not to mention what that terrible drug does to your body and to your hormones (even with add-back therapy!) My endo came back within a year of my surgery (it actually still existed at the time of my first surgery but many, many OBG/YN's do not recognize what endo looks like outside of the vaginal area. Long story short. . . I got a 2nd opinion from Dr. Redwine in Bend, OR when my doctor said my only other option for all my pain was Lupron again. . . I went there in 2006 to Bend, OR and I am living pain free of Endo. He was able to excise the endo through a Laproscopic procedure. I have never felt better in my life. He is an amazing doctor and expert in the field and unfortunately there are many OB's out there that really don't understand the disease. Most alternatives they try in helping women will only put a band-aid on the problem. Go to endometrioussurgeon. com. You can send in your records for a review and it is well worth it.
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