Re: To Pam
From: andrea (anonymous@obgyn.net)
Mon Jul 16 16:41:40 2007
Pam,
Thank you so much. :) I truly hope you find some relief with what you
are trying.
If the Lupron does make you sick, just know that that is NOT your last
option. Hormones can get out of whack at any age - mine were insane. I
would have been so much better all those years, but a lot of doctors
refused to test my hormones too. It only makes sense to take a look at
them before putting a drug like Lupron in your body. Don't they want us
to get well? A doctor should do what a patient asks when it comes to
tests - we are paying them!
Let me know how it goes - I wish you well!
--
Andrea
At Mon, 16 Jul 2007, Pam wrote:
>
>Andrea,
>
>I just wanted to send this message to let you know that I agree with
>what Elisa said. I know that you didn't mean to sound like miss
>know-it-all; to be honest, I didn't think you sounded that way at all. I
>think that if someone does find something that helps them then they
>should tell everyone about it b/c we are going through this together. I
>do agree that just because something works for you doesn't mean it will
>work for me but you never know until you try it.
>
>I am actually one of the woman who decided to try Lupron, I had my first
>injection on 7/11. I can't say that I did the right thing by deciding
>to try Lupron, I can only hope and pray that it will help me even if it
>is temporary. I have spoke to women who have done great on Lupron. I
>even spoke to one woman who had been pain free for years (I can't
>remember how many years it had been) after stopping the treatment. But
>I have also spoke to people who have not been so luckly and actually
>taking the Lupron made things worst for them but no one really knows how
>their body will react to any type of medicine unless they have actually
>tried it. I read Kristen's post about being on the Depo Provera shot
>and that she had terrible side effects. I was on the Depo shot for
>about 4 or 5 years when I was younger, the only side effect I had was
>weight gain, which probably could have been controlled if I would have
>exercised and ate healthier but I was 14 when I started it so I didn't
>think much about at that time. I did actually ask for my hormone levels
>to be checked and the gyn I was seeing told me that she didn't check
>women's hormone levels unless they were close to the age of menopause. I
>turned 25 this past Feb., so she basically refused to check them.
>
>Anyway, I basically just wanted to say that you did a good thing by
>telling people that you found something that helped you because I am
>sure that there will be at least one person that will benefit from your
>story. If all we can do is help each other, one person at a time, then
>it is worth it. I hope things continue to go well for you.
>
>~Wishing for pain free days...Pam~
>
>At Mon, 16 Jul 2007, andrea wrote:
>>
>>Thank you for being so sweet, Elisa. It made me cry that anyone was
>>upset by my posts. We all have enough to deal with. I never claimed to
>>be an expert or wanted to portray myself as miss know-it-all when it
>>comes to this stuff. I didn't want to turn the forum into a hormone
>>thing, but how something finally helped my endo! And, we all need to
>>know more about the meds we take. I was on my period too over the
>>weekend, so I probably went a little nuts, who knows. :(
>>
>>I really need the support on this forum. I don't have very many people
>>close to me to talk about endo. I was supposed to schedule a lap
>>surgery (never had one) in August, but I am too scared. All of the
>>women who have had this surgery are so courageous, and I can't imagine
>>having it done multiple times!
>>
>>My specialist explained all of the risks to me and at least he didn't
>>sugar-coat it. I have Adenomyosis too, so he suggested Lupron (of
>>course) or I would need my uterus out. He says he most likely would
>>have to operate on my bowels, bladder, ovaries. Possibility of having a
>>colostomy bag for 3 months scares the sh*t out of me, pardon the pun...
>>So now, I don't know what to do.....would you risk the surgery if you
>>just had 3 days of pain a month? My doc said he leaves a morphine drip
>>in your incisions for 2 days too, cuz the pain is that bad..... :0
>>
>>Thanks for listening & your support. It means a lot.
>>
>>--
>>Andrea
>>
>>At Sun, 15 Jul 2007, Elisa wrote:
>>>
>>>Hi Andrea~
>>>
>>>Don't you worry yourself over any of this. I know your heart is in the
>>>right place and I am really glad to see new topics as well. Don't loose
>>>your passion to help here on anywhere with Endo. I think you will help
>>>many in your life time. None of us have all the answers. We are just
>>>trying to figure it out together :)
>>>
>>>Thanks for all your continued sharing!
>>>
>>>--
>>>Elisa
>>>
>>>At Sun, 15 Jul 2007, anonymous wrote:
>>>>
>>>>HI Andrea
>>>>No worries. My surgeons told me to go on Lupron or the pill despite my
>>>>feelings about it. They gave me a prescription even when I didn't want
>>>>to take them. I found myself an endo excision specialist and am taking
>>>>care of it as much as we can. I would NEVER take those meds. All they
>>>>do is dry up the tissue, but as soon as you go off it, it comes right
>>>>back. Even at the lowest estrogen amounts the endo will still survive.
>>>>I think all women should understand that these meds do not cure Endo,
>>>>just keeps it at bay-maybe, and at the same time could ruin your body
>>>>emotionally and physically.
>>>>We all should be more educated on these meds before taking them, no
>>>>matter what your doctor says.
>>>>This is a good forum to talk to women with these issues, don't worry
>>>>about it.
>>>>take care.
>>>>
>>>>At Sun, 15 Jul 2007, andrea wrote:
>>>>>
>>>>>I really apologize if anyone thinks I'm pushing the progesterone and my
>>>>>opinion too much.
>>>>>
>>>>>I really just want to help, that's all. I never suggested that anyone
>>>>>on the Lupron was estrogen dominant, but THEY stated they had all the
>>>>>symptoms of it BEFORE taking the lupron and when the lupron wears off,
>>>>>it will probably return if they stay on a synthetic estrogen - that's
>>>>>what I meant.
>>>>>
>>>>>I just want everyone to know how much this forum means to me and I was
>>>>>so excited to get on here and tell everyone of this drug that had
>>>>>finally helped me after suffering for so long.
>>>>>
>>>>>You're right, I don't have the right to tell anyone to stop medicines,
>>>>>but members of my family were on them and got extremely sick and I don't
>>>>>want that to happen to any of you. My main point, is to question
>>>>>doctors more. Not everything they prescribe will help you and I am
>>>>>living proof of that, because I have literally put thousands of pills
>>>>>down my throat and wasted tons of money for nothing. We have to
>>>>>research things for ourselves and decide what we think will help us. I
>>>>>just want to give you all an option that your doctors are probably not.
>>>>>So many doctors have made me feel hopeless and from what I've read, a
>>>>>lot of you are being made to feel that way too.
>>>>>
>>>>>I suffer every month with Endo and Adenomyosis too and now the doctor is
>>>>>telling me I either have to go on Lupron to shrink it, or have my uterus
>>>>>out. I think I'd rather just have my 3 days of pain a month, but I
>>>>>worry how I will take care of myself or work a full-time job in the
>>>>>future.
>>>>>
>>>>>I hope you all feel better soon.
>>>>>
>>>>>--
>>>>>Andrea
>>>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)