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Re: Anyone who tried Lupron, please respond.
From: Paige (anonymous@obgyn.net)
Mon Jul 16 16:39:37 2007
I just had my 7th surgery in May 8th and unfortunately, I am still
having pelvic pain. I too have tried the Lupron and like others, it
only helped the pain temporarily and the hot flashes were horrible, the
heart pounding was annoying and I was told that you could not have more
than 12 shots of Lupron over your lifetime. I had the shots once a
month, alternating cheeks (how nice of them) and I've had six months
worth about 3 years ago. Since then I've had surgery at least once a
year including a complete hysterectomy which obviously hasn't stopped
this HORRIBLE disease!!! I don't know if this will help, but wanted to
put my two cents out there. Good luck!
At Mon, 16 Jul 2007, Hes911 wrote:
>
>HI :)
>
>I was on Lupron a few years ago and I sware I would never try it again.
>It didn't make my Endo pain go away completely, however, it made me feel
>TERIBLE. I didn't have any energy, my heart would palpitate at times, I
>got horrible hotflashes that made me feel like I was panicing... it
>just was not good. I have been offered it several other times by other
>dotors, and I also said - never put that injection near me again. The
>hard part for me is, the injection did take the pain away while I was on
>it and it also made me feel better for about two years after. I do
>think a doctor told me once that the 1 month doses are a bit easier on
>the system then the three month dose. If that helps at all.
>
>Hope you find the answers you need!
>Heather
>
>At Mon, 16 Jul 2007, Jessica wrote:
>>
>>My advice if you didn't like Depo DO NOT TAKE LUPRON!!!!!!!!!!!!!!!
>>I tried 2 rounds of Lupron 4 years ago. I ended up with what seems to
>>be irreversible joint pain. My joints hurt so bad all the time and
>>nothing makes them better. I feel like knives are scraping my bones
>>away. It has been four years since Lupron did this to me yet I live
>>with it to this day. I tried Depo provera last year and it made
>>everything worse. I too had them panic attacks and Heart prob but Depo
>>did nothing to me compared to Lupron. I strongly suggest you go to
>>yahoo groups and join a group called LUPRON VICTIMS.
>>
>>http://groups.yahoo.com/search?query=lupron+victims
>>
>>I sent another women here who decided after talking to these women not
>>to use Lupron. I also had another women e-mail me only a few days ago
>>saying Lupron did to her what it did to me and now she too suffers and
>>doesn't know how to fix it.
>>I think you should take as much time as you need to make the decision
>>about Lupron.
>>Jessica
>>
>>--
>>jessicarozez@hotmail.com
>>
>>At Mon, 16 Jul 2007, Kristen wrote:
>>>
>>>Good afternoon ladies,
>>>
>>>I am going for my fourth laparoscopy this Thursday to get rid of some
>>>more endo/adhesions, and my doctor highly recommends going on Lupron
>>>after the surgery. I tried everything so far, so this is the last
>>>option. Last I tried Depo Provera, but the side effects were unbearable
>>>(heart palpitations, panic attacks, etc). I have heard mixed things
>>>about Lupron, and was hoping i could get some more opinions from all of
>>>you based on personal experience. Of course, my male doctor can easily
>>>say i won't have side effects and it won't be bad, but i need first hand
>>>opinions. so please, please let me know your thoughts, i would greatly
>>>appreciate it.
>>>
>>>Thanks again, and i wish all of you pain free days ahead!
>>>
>>>--
>>>Kristen
>>>
>--
>Heather
>
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