Re: To Elisa
From: andrea (anonymous@obgyn.net)
Mon Jul 16 14:14:43 2007
Thank you for being so sweet, Elisa. It made me cry that anyone was
upset by my posts. We all have enough to deal with. I never claimed to
be an expert or wanted to portray myself as miss know-it-all when it
comes to this stuff. I didn't want to turn the forum into a hormone
thing, but how something finally helped my endo! And, we all need to
know more about the meds we take. I was on my period too over the
weekend, so I probably went a little nuts, who knows. :(
I really need the support on this forum. I don't have very many people
close to me to talk about endo. I was supposed to schedule a lap
surgery (never had one) in August, but I am too scared. All of the
women who have had this surgery are so courageous, and I can't imagine
having it done multiple times!
My specialist explained all of the risks to me and at least he didn't
sugar-coat it. I have Adenomyosis too, so he suggested Lupron (of
course) or I would need my uterus out. He says he most likely would
have to operate on my bowels, bladder, ovaries. Possibility of having a
colostomy bag for 3 months scares the sh*t out of me, pardon the pun...
So now, I don't know what to do.....would you risk the surgery if you
just had 3 days of pain a month? My doc said he leaves a morphine drip
in your incisions for 2 days too, cuz the pain is that bad..... :0
Thanks for listening & your support. It means a lot.
--
Andrea
At Sun, 15 Jul 2007, Elisa wrote:
>
>Hi Andrea~
>
>Don't you worry yourself over any of this. I know your heart is in the
>right place and I am really glad to see new topics as well. Don't loose
>your passion to help here on anywhere with Endo. I think you will help
>many in your life time. None of us have all the answers. We are just
>trying to figure it out together :)
>
>Thanks for all your continued sharing!
>
>--
>Elisa
>
>At Sun, 15 Jul 2007, anonymous wrote:
>>
>>HI Andrea
>>No worries. My surgeons told me to go on Lupron or the pill despite my
>>feelings about it. They gave me a prescription even when I didn't want
>>to take them. I found myself an endo excision specialist and am taking
>>care of it as much as we can. I would NEVER take those meds. All they
>>do is dry up the tissue, but as soon as you go off it, it comes right
>>back. Even at the lowest estrogen amounts the endo will still survive.
>>I think all women should understand that these meds do not cure Endo,
>>just keeps it at bay-maybe, and at the same time could ruin your body
>>emotionally and physically.
>>We all should be more educated on these meds before taking them, no
>>matter what your doctor says.
>>This is a good forum to talk to women with these issues, don't worry
>>about it.
>>take care.
>>
>>At Sun, 15 Jul 2007, andrea wrote:
>>>
>>>I really apologize if anyone thinks I'm pushing the progesterone and my
>>>opinion too much.
>>>
>>>I really just want to help, that's all. I never suggested that anyone
>>>on the Lupron was estrogen dominant, but THEY stated they had all the
>>>symptoms of it BEFORE taking the lupron and when the lupron wears off,
>>>it will probably return if they stay on a synthetic estrogen - that's
>>>what I meant.
>>>
>>>I just want everyone to know how much this forum means to me and I was
>>>so excited to get on here and tell everyone of this drug that had
>>>finally helped me after suffering for so long.
>>>
>>>You're right, I don't have the right to tell anyone to stop medicines,
>>>but members of my family were on them and got extremely sick and I don't
>>>want that to happen to any of you. My main point, is to question
>>>doctors more. Not everything they prescribe will help you and I am
>>>living proof of that, because I have literally put thousands of pills
>>>down my throat and wasted tons of money for nothing. We have to
>>>research things for ourselves and decide what we think will help us. I
>>>just want to give you all an option that your doctors are probably not.
>>>So many doctors have made me feel hopeless and from what I've read, a
>>>lot of you are being made to feel that way too.
>>>
>>>I suffer every month with Endo and Adenomyosis too and now the doctor is
>>>telling me I either have to go on Lupron to shrink it, or have my uterus
>>>out. I think I'd rather just have my 3 days of pain a month, but I
>>>worry how I will take care of myself or work a full-time job in the
>>>future.
>>>
>>>I hope you all feel better soon.
>>>
>>>--
>>>Andrea
>>>
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