ENDO Messages for July, 2007: Re: Endo and hormones to Maggie

Re: Endo and hormones to Maggie

From: andrea (anonymous@obgyn.net)
Thu Jul 12 18:04:46 2007

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Reply: mdustin: "Re: Endo and hormones to Andrea"

Hey Maggie.

I hope my info is not upseting to you, but it is so frustrating to me that most women have NEVER had their hormones tested, yet our doctors give us synthetic hormones - one size fits all and they may cause serious consequences for us all in the future. If our estrogen dominance could have been fixed years ago, do you think we would have gone through all this? All the money we've spent and all the pills....? You have every right to worry about ALL of your symptoms. They are scary.

If you get your hormones tested and I hope you do, you will have to go to a doc who believes the tests are relevent! Yours hormones, I'm sure will be all messed up for a while due to the Lupron. Blood tests for hormone checks should be covered by your insurance, since there is proof you've been being treated for endo. It's very simple.

They test your hormones, then give you a dosage of whatever they think will bring them up to normal levels. Please try the natural stuff!! 150mg of progesterone brought mine up to normal and supressed my estrogen. Most of the women on here are on just a synthetic progesterone for add-back (like Steph), so I don't understand why your doc has you on PremPro, which has both progesterone and estrogen. Estrogen is what we are trying to get rid of!

You get them re-tested a few months later to see what they are, then after that, just once a year. The chart says to get them tested on day 3 of your cycle, but I think there is a few day window when the test will come out accurately. I had to have mine done right before my period because on day 3, I am in pain and can't leave the house!

I don't know if you saw this chart or not: http://www.fertilityplus.org/faq/hormonelevels.html

A company has patented a bio-identical progesterone that I just learned about, it's called Prometrium. The only thing is, it has penut oil in it, so you can't take it if you are allergic to peanuts. It also listed a lot of side effects, but I've never experience ONE with mine. I think a lot of them may be from peanut allergies.

I called my pharmacist immediately, because they had told me that a bio-identical could not be patented by a drug company and they said "They patented the way that the drug is delivered into the system - through peanut oil." Whatever....that still makes no sense to me, but now more doctors will have access to this and you won't have to go to a compounding pharmacy to get it. I bet it's more expensive, though, because drug companies charge a fortune. ( You should still only pay a co-pay, though.) I buy mine from a small pharmacy who makes it, mine does not have the peanut oil.

Hope you find a great doctor and get some help soon....

At Thu, 12 Jul 2007, mdustin wrote: >
>I truly believe that there is a tie to all of this. Obviously, right?
>They believe that Endo feeds on Estrogen, which is why such
>prescriptions are given, such as Lupron and Depo, birth conrol pills,
>etc. But in how many of us do they check our hormone levels? I know
>that mine have not been tested. If I had not done more research, I
>would never have put the two together. Is it our job, as patients to
>show our doctors what to do? Do we urge that we get our levels tested,
>even if our doctor's fight us? I found this link very interesting....
>
>http://www.natural-progesterone-advisory-network.com/symptoms-of-estrogen-dominance.php
>
>Especially with all of the 'extra' symptoms part.
>
>I found it very odd that I started my period when I was eight years old,
>I was one of two in my whole class. Both of my sisters started their
>periods when they were teenagers. I have always struggled with 'bad
>periods'. I actually was just telling an old childhood friend about my
>having Endo and she said, you know, you were always having horrible
>periods as a child...I remember that. She has PCOS, which I just found
>out. The link above discusses how higher levels of estrogen rather than
>progesterone levels may actually be a link to Endo and cancer. Now, my
>question is, if Endo is something that they are finding in women, and
>they think it 'may' be tied to Estrogen levels....why aren't our levels
>being checked? I think this makes me really upset due to my mother
>having had breast cancer at such a young age. And her sister was lost
>to cancer at a young age as well. With my having Endo and that may be
>increasing my 'chances' of having cancer....shouldn't my levels be
>checked? Or is this even real? I don't know.
>
>I feel silly for worrying so much about every little symptom. But
>shouldn't I be? I don't know.

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