Re: Hi Maggie I forgot this...
From: andrea (anonymous@obgyn.net)
Mon Jul 9 16:43:21 2007
I forgot to tell you that I came across another page, although now I
don't know where it is ...but another woman mentioned that she was
getting blood in her urine right after taking Lupron. Is that a side
effect too? Blood in urine is a symptom of kidney stones (not u.t.i.)
and if Lupron causes bone loss, it kind of makes sense that you could
have built-up calcium deposits trying to escape your body in the form of
kidney stones, causing your urine to have blood. Your jerk doctor never
checked that either. Mention that to your new specialist and see what
he thinks...
By the way, what pain meds are you on? Steph told me she's only on
Darvocet and that stuff is weak!! If that's all I had, I would be
balling my head off right now from cramps. Especially for dealing with
Endo and Lupron pain. Blah... My doc says that 10mg Lortab or Vicodin
with 500mg Acetominaphen are the most effective. Percocet also works
well. The dosage on the bottle would read 10/500.
At Mon, 9 Jul 2007, mdustin wrote:
>
>Thank you for your kind words. I have written to several endo
>specialists about my situation and one actually replied. He said that
>he would be happy to review my case. First, I need my chart and
>everything....I feel so lost in all of this. I can understand to a
>point why Endo has cause so much trife in the lives of so many
>women...jobs, relationships, sanity, etc.
>I, too have read about the lawsuits. Although they did not mention any
>reimbursment to the victims of Lupron, it was stated that this law-suit
>resulted in more warnings on the packaging, itself on Lupron. However,
>these warnings...not all of them, anyways, were not on the information
>booklets given to me by my doctor. I, just so happend, read the
>information that came with my Lupron from the pharmacy, which is how I
>learned more about the side effects. I'm at the point right now that I
>wish I could turn back time. I struggle daily now with constant leg
>pain. I know that doesn't sound like much. However, when there is
>nothing you can do about it, no pain meds, heating pads, massages,
>icing, etc...nothing helps it! And it only gets worse as the day goes
>on. Eventually, it turns into constant pain with spasms that trigger
>points all over my body. I was given muscle relaxants, but all they do
>is help me sleep, and the day starts all over again. It feels like
>poison running through me in constant circles. At first, I could not
>find anything on the spasms being a side effect of Lupron, even though
>my doctor told me it was. I found one thing on that as a side effect.
>And supposedly, the leg pain itself, could be from the Endo or the
>Lupron, or both. I really don't know. I can't take it anymore. But
>I'm stuck. If I go to the E.R or something, they'll just treat me like
>I'm crazy, call my doc, give me pain meds, which don't work and send me
>home...meanwhile, I'll have to pay a pretty penny, just for stepping
>into the E.R in the first place!
>As far as the hormone testing....it makes sense, it really does.
>However, my doctor didn't test me for a u.t.i (yes, I've written alot
>about this experience), gave me antibiotics for it over the phone, and
>dismissed the symptoms...told me to deal with it or go to the E.R, then
>a week later, told me that he didn't think I ever had a u.t.i in the
>first place. God, it just makes me want to cry right now. These past 6
>months have been worse than anything I've experienced since starting my
>period when I was 8 years old. I'm so angry, and yet, I don't even have
>the energy to be angry. I'm sorry for blabbing on, I'm just really fed
>up.
>~Mags
>At Mon, 9 Jul 2007, andrea wrote:
>>
>>Hi there,
>>
>>I just got back from Colorado on Thursday, visiting family over the 4th.
>>Good thing, cuz I got my period on Saturday, a week early and I've been
>>in bed with a heating pad the last 2 days. Been laying here typing to
>>everyone too. :)
>>
>>I'm so sorry that your doctor pushed you into taking Lupron. Your
>>husband and family should be more supportive of YOU, not him, when you
>>are the one suffering the consequences of what he has given you! Why do
>>they have such a high opinion of him, when you have been feeling so
>>horrible? You should not feel as if you need to sneak around to find
>>real help. That is just more stress than what you are already dealing
>>with. My gosh, I can't imagine.
>>
>>I found an article on the 7th (I put the link on here) about how TAP
>>pharmaceuticals (the company that makes Lupron) was sued years ago for
>>bribing doctors to prescribe it and over-charge for it! They had to pay
>>criminal fines to the government and losses to the insurance companies
>>($290 million), but it said nothing about the patients being reimbursed
>>or being hurt by being given a drug that they really didn't need. I
>>have realized the last few years that there is a lot of dishonesty and
>>greed when it comes to doctors and drug companies. You have to find
>>someone who REALLY CARES.
>>
>>I also felt that I was bullied or intimidated into taking some drugs
>>over the years and I won't be treated like that anymore. Your health is
>>all you have and you have to stand up for it! I also wrote on the 7th
>>about having too much estrogen in my body. Please take a look....see if
>>you have had too. Other women are starting to respond to this now, and
>>they all have had the same awful symptoms I did and are asking about
>>getting their hormone levels checked. Let me know if you would like me
>>to help you in any way find a different doctor. You DESERVE help!
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