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Re: 20 years old - 2 surgeries already - oophorectomy recommended
From: anonymous@obgyn.net
Mon Jul 2 16:25:52 2007
You could also try acupuncture and chinese herbs. Also, making sure
that you move your bowels regularly will decrease estrogen in the body,
I really like psyllium because it is just fiber. Also, like was said
previously exercise helps pain and weight loss a lot of the time.
Hope everything works out for you, hope this helps a little.
At Mon, 2 Jul 2007, Kate wrote:
>
>Hi Cristi Marie
>
>I know what your going through and do understand your frustration.
>I was Diagnosed in 2001 when I was 21, but before that I had the pains
>for 6 years and had pre cancerous cells the lot luckily the pre
>cancerous cells went away by themselves.
>I also gained alot of weight after the lap, and the pains got worse and
>worse.
>I really don't want to sound like I'm leactureing here though but for
>any pain and birth control meds to work properly, you will have to get
>your weight back down, I have started to loose more weight and do more
>exercise and the pain has really reduced.
>the Problem is that excess fat cells in the body create oestrogen, which
>is what the endo feeds off, so the less fat cells there are the endo
>will start to go hungry and move to find the oestrogen which is back in
>uterus where it should be.
>I learnt this the hard way too, but there are meds that can help, once I
>had BMI back down I was able to use an implant called implanon, it goes
>into your arm and it last for 3 yrs, it will work with someone who is
>just over the BMI mark like I was but it's less effective, and the more
>weight I lost the better it worked, I haven't had any pains and no
>period for 3 yrs, you will get a bit of spotting now and again and a
>little bit of cramping, but nothing like the pain you would normally
>get, and once the 3 years are up you could either take it out to have
>kid (as your body will be fertile in 3-5 days) or you could put another
>one back in.
>I hope that this has helped you
>good luck
>
>At Fri, 29 Jun 2007, ChristiMarie wrote:
>>
>>Hello everyone. My name is ChristiMarie and I am 20 years old. I was
>>diagnosed with endometriosis in 2004 after being hospitalized with
>>unknown pelvic pain. I first had a laporoscopy where not only did they
>>find endometriosis, they also found a fibroid tumor on my right
>>fallopian tube. I had abdominal surgery a few months later to remove
>>the tumor, which was benign, and laser off the endo that was there.
>>
>>Shortly after surgery I was placed on birth control pills to regulate my
>>period, yet every month I was in extreme pain. For the past year or so
>>I have been to the emergency room every month because the pain was so
>>horrible I could not stand or even sit up right without crying. I saw
>>an OBGYN recently who put me on Seasonel so that the bad pain would only
>>come 4 times a year.
>>
>>I have moderate pain constantly, however it is especially bad on my
>>period... which due to the seasonel now has lasted about 5 weeks... and
>>counting. I've been taking percocet for the pain but I can't take it
>>all the time due to constipation, among other health problems it causes.
>>Which really, just makes it all worse in the long run.
>>
>>I am currently waiting on the lovely state of Florida to either approve
>>or deny my application for medicaid. Since it's so hard to work right
>>now, I can't get group health coverage and due to my weight that I put
>>on after my surgeries... also most companies that actually will insure
>>me are either VERY expensive or don't cover any gynecologic procedures
>>for the first year.
>>
>>I went in to see if I qualified for a study medication this morning, but
>>my BMI is too high. Oh, if anyone wants to try that out and qualifies
>>the site for that is http://www.petalstudy.com. Never know, it might help
>>someone else.
>>
>>Well anyway, I was wondering if there is ANYTHING that can be done that
>>some of you may know of, either homeopathically or procedures. I do not
>>want my ovaries removed yet. I still want children one day and I am not
>>in the right place to have them at this time. But I also want my life
>>back. I want to be able to go to school and work like a normal human
>>being and not be cooped up in my apartment on my couch and/or bed all
>>day.
>>
>>Please help.
>>
>>-ChristiMarie
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