Re: 20 years old - 2 surgeries already - oophorectomy recommended
From: Kate (anonymous@obgyn.net)
Mon Jul 2 06:26:48 2007
Hi Cristi Marie
I know what your going through and do understand your frustration.
I was Diagnosed in 2001 when I was 21, but before that I had the pains
for 6 years and had pre cancerous cells the lot luckily the pre
cancerous cells went away by themselves.
I also gained alot of weight after the lap, and the pains got worse and
worse.
I really don't want to sound like I'm leactureing here though but for
any pain and birth control meds to work properly, you will have to get
your weight back down, I have started to loose more weight and do more
exercise and the pain has really reduced.
the Problem is that excess fat cells in the body create oestrogen, which
is what the endo feeds off, so the less fat cells there are the endo
will start to go hungry and move to find the oestrogen which is back in
uterus where it should be.
I learnt this the hard way too, but there are meds that can help, once I
had BMI back down I was able to use an implant called implanon, it goes
into your arm and it last for 3 yrs, it will work with someone who is
just over the BMI mark like I was but it's less effective, and the more
weight I lost the better it worked, I haven't had any pains and no
period for 3 yrs, you will get a bit of spotting now and again and a
little bit of cramping, but nothing like the pain you would normally
get, and once the 3 years are up you could either take it out to have
kid (as your body will be fertile in 3-5 days) or you could put another
one back in.
I hope that this has helped you
good luck
At Fri, 29 Jun 2007, ChristiMarie wrote:
>
>Hello everyone. My name is ChristiMarie and I am 20 years old. I was
>diagnosed with endometriosis in 2004 after being hospitalized with
>unknown pelvic pain. I first had a laporoscopy where not only did they
>find endometriosis, they also found a fibroid tumor on my right
>fallopian tube. I had abdominal surgery a few months later to remove
>the tumor, which was benign, and laser off the endo that was there.
>
>Shortly after surgery I was placed on birth control pills to regulate my
>period, yet every month I was in extreme pain. For the past year or so
>I have been to the emergency room every month because the pain was so
>horrible I could not stand or even sit up right without crying. I saw
>an OBGYN recently who put me on Seasonel so that the bad pain would only
>come 4 times a year.
>
>I have moderate pain constantly, however it is especially bad on my
>period... which due to the seasonel now has lasted about 5 weeks... and
>counting. I've been taking percocet for the pain but I can't take it
>all the time due to constipation, among other health problems it causes.
>Which really, just makes it all worse in the long run.
>
>I am currently waiting on the lovely state of Florida to either approve
>or deny my application for medicaid. Since it's so hard to work right
>now, I can't get group health coverage and due to my weight that I put
>on after my surgeries... also most companies that actually will insure
>me are either VERY expensive or don't cover any gynecologic procedures
>for the first year.
>
>I went in to see if I qualified for a study medication this morning, but
>my BMI is too high. Oh, if anyone wants to try that out and qualifies
>the site for that is http://www.petalstudy.com. Never know, it might help
>someone else.
>
>Well anyway, I was wondering if there is ANYTHING that can be done that
>some of you may know of, either homeopathically or procedures. I do not
>want my ovaries removed yet. I still want children one day and I am not
>in the right place to have them at this time. But I also want my life
>back. I want to be able to go to school and work like a normal human
>being and not be cooped up in my apartment on my couch and/or bed all
>day.
>
>Please help.
>
>-ChristiMarie
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