|
To Maggie....
From: Stephanie (anonymous@obgyn.net)
Fri Jun 29 11:37:28 2007
Hello Maggie,
I just read the post and i just wanted to let you know that im am here
if you need to talk. Iv found a few common things with your case and
mine. First of all you also took Lupron, which i just began. And so
far so good, except for painful gases, which i never had before.
Weird!And my bowls are becoming more painful all the time, before it was
only on my cycle, and iv notice its becoming more of a frequent thing,
but maybe its just my mind playing games w/me since i just started
Lupron. Second that my endo is stage 2 moderate, and my doc made it
seem that my endo wasnt too bad either, but like you i am in constant
pain! I am really hoping that Lupron doesnt make my pain even worse than
what i already have it! I also have either constipation or diarreah most
of the time. And the frequent painful/burning urination w/out the
infection and the constant urge w/pressure. But i think those symptoms
are probably because of my endo being on my bladder.Sometimes its just
so hard not knowing if its just endo or some other health issue. I am
sorry you are feeling so frustruated and tired of all of this! But i can
totally understand where your coming from! Im 24 yet i feel like i am 70
yrs old! I am always home, resting on my couch! I work 8-5 and when i
get home, i help finish up dinner, eat and wash dishes and there are
times when as soon as im done eating dinner i lay on my couch w/my best
friend (the heating pad) till 8 or so, i get my lil one in the shower
than myself and thats my daily routine every day. Days like these im
glad im divorced! LOL... And maybe on Fri or Sat i go out w/my friends
for dinner and a movie, but at the end of the night, i am SOO TIRED! Yet
my friends have soo much energy, it just depresses me sometimes!!
Sorry for the vent! LOL...I just want you to know that I truly
understand how you feel! Thanks for all of ur advice on Lupron!! Im
thankful to have found this forum but also this other GREAT support
group that has been of SOO much support for me these last few weeks!!
They are SPECIAL ladies!! U should look into it! You can email me at
stephanieruiz209@hotmail.com Steph :)
At Fri, 29 Jun 2007, mdustin wrote:
>
>Firstly, I am bloated, but I replied to the protruding abdomen post
>because of my right side. It has been like that, like I said, since I
>had my daughter. And has always been the focal point of my pain.
>
>Yes, my mother wants me to get the test to check for ovarian cancer. The
>reasons: She had cancer (breast) at a young age, her sister (my aunt)
>died from cancer at a young age (bone marrow). And since she worries,
>she told me to tell her my symptoms....constant bloating with a relief
>for a couple of days a month; gaseous; fatigue; very frequent and urgant
>urination (without infection); I am either always constipated or I have
>diarrhea; nausea; and before I was diagnosed with 'very slight endo' I
>bled nearly everyday of the month, usually during the day and not at
>night, for three years, after I had my daughter.
>
>I am aware that the test would show higher because I have Endo. And for
>that reason, I have not asked for the test. And I know that many, if
>not all of my symptoms can be related to that of Endo and of taking
>Lupron. And I'm sure that's what it is. I just think it's rediculous,
>having very 'slight Endo' could cause this much trouble. Over 4 months
>ago (before diagnosis), yes, I was tired and hurting and bleeding and
>bloated, but not to the extent that I am now (well, not bleeding, as I
>am on Lupron). Why would my pain come back while on Lupron, when I had
>such 'slight' Endo? I really don't get it. I wish I could extract the
>Lupron from my system and stay off of any medications and just be. All
>of this has effected my life so much and I just want to cry all of the
>time. I don't understand it, so I keep researching anything that I can
>think of. I wish I could figure this out enough so that I could be able
>to take care of my home and family like I used to. Is there nothing I
>can do except wait?
>
>At Thu, 28 Jun 2007, anonymous@obgyn.net wrote:
>>
>>Does your mom want you to get the CA-125 test to check for cancer? It
>>shows up positive with endo, so I don't think that test would give you
>>any answer to your bloating.
>>
>>At Thu, 28 Jun 2007, mdustin wrote:
>>>
>>>I have had this problem since I had my daughter via c-section, 3 years
>>>ago. Directly after my c-section, while coming out of the meds that
>>>numb your lower half of your body, I realized that I was coming out of
>>>this numbing pain, but my right side was killing me. I kept quietly
>>>screaming, anyone who has done this, knows what I'm talking about. I
>>>wanted to scream aloud but afraid to. Since then, my right side is
>>>always larger, puffier than my left side. My pain that I feel from my
>>>Endo is mostly on my right. My doctor always thinks that maybe it's my
>>>appendix, but it's not. My appendix would have burst by now. My Endo,
>>>however, was found on my left side, my left ovary. But even after my
>>>surgery, my pain is still mostly located on my right. They call it
>>>'referred pain'. But I still think that is ridiculous. My right side
>>>is always puffy and sometimes when I press on it, it's hard to the
>>>touch, harder than my left side atleast. I also get bloated to the
>>>point of looking pregnant, and I cannot get rid of it. I've taken water
>>>pills, however they have stopped working.
>>>The birth control that I think you mean is called Yaz. (Yasmin is a
>>>different type of birth control pill.) The Yaz has a different hormone
>>>in it. I was going to try it as it was the only birth control that I
>>>haven't yet, but right before I was going to switch, is when my doctor
>>>did my lap surgery. So, I cannot tell you if it helps Endo. I have
>>>been wondering about that as well. Due to my excessive bloating and
>>>urinary frequency and urgancy, my mother wants me to get the CA-125 test
>>>done. I have not yet, but I hopefully will get up the courage in the
>>>near future to do so. I would ask your gyn about Yaz. Good luck and
>>>let us know how it works out!
>>>~Maggie
>>>
>>>At Thu, 28 Jun 2007, Linda wrote:
>>>>
>>>>I heard mention someone that she is small framed, although she always
>>>>looks pregnant with a protruding abdomen (even not on menses). I have a
>>>>very similar situation. Is this common with endometriosis and why?
>>>>Thank You for the response. Also, Does anyone if Yasmin birth control
>>>>is an effective b.c for endometriosis because it is on made of one
>>>>hormone? Is that one hormone the correct one in order to help alleviate
>>>>pain?
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)