ENDO Messages for June, 2007: Re: Does anyone believe me.... How can it be back so soon...

Re: Does anyone believe me.... How can it be back so soon...

From: D (anonymous@obgyn.net)
Fri Jun 29 11:15:59 2007

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Hi April -

Sounds like your doctors didn't remove all of the endo at your lap. Unfortunately this happens all too often! Here's a post that explains some of how that can happen: http://forums.obgyn.net/endo/ENDO.0706/0813.html

You're not crazy! But you do need a new doctor, and seeing an endo excision specialist is my best advice. Endo is a very poorly understood disease, even among most obgyns - I think it's one of the most difficult things to come to terms with concerning this disease, aside from what it does to us personally. We're taught to trust doctors, but a lot of doctors are just clueless about endo!

There are some links at the bottom of this that you may find helpful - I highly recommend the ERC yahoo groups, both endodocs and the support group. I learned a lot in both of them. Also the pain link is good because so many of us suffer so needlessly.

Here's a "letter from endo survivors" one woman wrote to help explain to others in her life the toll this disease takes: http://www.hcgresources.com/SurvivorLetter.html

I hope this helps!

At Thu, 28 Jun 2007, April wrote: >
>I started going to the doctor in January this year due to pain and
>abnormal (tons of blood) bleeding. I also had tons of pain with all
>these symptoms. I had surgery March 19th after a hellish few months of
>pain and emotions. I am only 24... will I even be able to have kids
>when I get out of Grad School. After surgery things seemed to be
>better, until this past month. I experienced tons of pain, and
>bleeding. I went to the doctor and he put me on birth control and that
>was about it. I feel like everyone thinks I am making this up in my
>head, and that they are tired of hearing me say I feel bad. I got told
>tonight that I worry too much, and that could be a cause of this. Wow I
>thought, how inconsiderate, but then I realized... no one can
>understand this unless they have been through it. So I am reaching out
>on here... I hope to find some peace of mind that I am not alone, that
>I am not making all this up, that I am not crazy, and that it is ok to
>be worried and upset. I feel so guilty for missing work, and other
>obligations. I feel that my bosses even think I am making it up, and
>they wonder why I can not push through it. UGH... SOMEONE PLEASE
>HELP!!!
>
>--
>April
>

-- Find an endo specialist in the ERC's EndoDocs group: http://groups.yahoo.com/group/EndoDocs/

Try an excellent endo support group: http://groups.yahoo.com/group/erc/

Info on pain management: http://www.painfoundation.org/

Next message: Stephanie: "To Maggie...."
Previous message: Stephanie: "Re: Dr. Redwine - OR endo specialist"
In reply to: April: "Does anyone believe me.... How can it be back so soon..."
Next in thread: nettie: "Re: Does anyone believe me.... How can it be back so soon..."

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