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Re: Thank you, Cari, from Andrea - trying to help ;)
From: Kate (anonymous@obgyn.net)
Wed Jun 27 05:46:33 2007
Hi Andrea
Sorry to intrude on your conversation, I just feel it necessary to point
out that if you do have a hysterectomy, but leave the ovaries behind
there is still a chance that this will not get rid of the endo.
Endo doesn't just stick to the uterus, I have had endo for about 7 years
now and I've only had 1 Lap and that was to diagnose it, and I was
classified as stage 4, and in my case I was told that my endo has left
the uterus and set up home else where around my body.
the trouble with Endo that docs and other don't know or fail to tell you
is that endo is hormone based, and usually relies on the messages that
the ovary sends out to the rest of the body. BUT and heres the really
problem is that IF your unlucky enough to have endo leave the uterus and
go to other places in the body, it no longer gets the messgae from the
ovaries, and so research have found out that the endo cells are now
producing their own hormone messages which counteract the proper
messages, this basically means that all birthcontrol pills that you
maybe getting are working on the uterus but not on the rest of the body,
and even if you do think about a hysterectomy it may not rid you of
Endo.
I recomend you and anyone else who has endo and wants to learn more
about the condition read this book, it's called "Endometriosis: A key to
Healing through Nutrition"
I have found this book very good, and it has helped me, as it stands I
am going to attempt to go drug free by the end of the year, I know that
I might be a lucky one and actually overcome endo, but this book also
tells you things that Docs haven't got a clue about and it's only about
6 dollers on Amazon
I hope that this has helped
Kate
At Tue, 26 Jun 2007, andrea wrote:
>
>Thanks so much for your encouragement, it means so much. It seems like
>the people in the worst pain on here or recovering from surgery are
>always the first ones to jump in and offer help and advice. That is so
>remarkable to me. I have the summer to think about what I am going to
>do and going to CO to visit family this Thur til next Thur, so I won't
>be on here again til the 5th or 6th. Have a good holiday & talk to ya
>soon! I hope things start getting better for you too. ;)
>
>At Mon, 25 Jun 2007, Cari wrote:
>>
>>hi andrea :)...
>>
>>i have had two laps and a full laparotomy. the last lap they discovered
>>that in addition to endo, i also have pretty bad adenomyosis. like
>>endo, adenomyosis cannot be diagnosed via ultrasound but they can
>>certainly get a good idea if it is present by the thickness of the
>>uterine wall...my uterus was "huge" on u/s and my endometrial lining was
>>always engorged even when my period was not even close to starting. an
>>endo specialist and his team did my surgery that lasted nearly four
>>hours. it is true, surgery cannot remove the adeno (not at all),
>>however, neither will lupron. i have done a lot of research and have
>>discussed this with two ER docs and a new gyn...the only "cure" for
>>adeno is a hysterectomy (so regarding adeno, yup, i am in agreement,
>>take it out, take it out)...another option i am told is birth control
>>pills.
>>
>>and i also had it in the bowel, the bladder, ureters...pick a spot, and
>>endo was removed. i know it sounds scary and costly, but i think if you
>>get any relief at all, it is worth it.
>>
>>i understand your emotions, believe me. surgery will likely help any
>>endo pain you have, but the adeno will always be there. i personally
>>have opted to have the hysterectomy next year...(i was told to really
>>think it thru for a year). i am like you, if it means i have a bulk of
>>my pain gone...then i am all for it...where do i sign? and my cousin
>>just had her uterus out, she jokingly said she's having more sex than
>>ever...so who knows?
>>
>>take care,
>>cari
>>
>>At Sat, 23 Jun 2007, andrea wrote:
>>>
>>>I can't stop crying.......Thursday I went in for an ultrasound and they
>>>found Adenomyasis (Endo deep inside my uterine wall) and the doctor said
>>>this can't be reached or removed with laparscopic tools during surgery.
>>>He said the only way to get that kind of endo is to take Lupron to
>>>shrink it and your body will absorb it naturally. The doctor also said
>>>there is massive lesions around my ovaries and probably my bowels too.
>>>For all of you who have read my posts, you know I am totally against
>>>Lupron and scared to death of it. Now, I am thinking....do i get the
>>>surgery at all??? My insurance only pays half and the cost is $25,000!
>>>He said even if he got it all, but NOT the adenomyasis, I could still
>>>have the same pain I have now.
>>>
>>>I'm wondering now if a hysterectomy would get rid of the adenomyasis? I
>>>don't have kids, but would be willing to give up my uterus if I could
>>>just be pain free. I would rather do that than take Lupron too. But, I
>>>am wondering what your body feels like without a uterus. I would keep
>>>my ovaries. But I hear that your organs fall, and your insides feel
>>>different after a hysterectomy. Would sex feel the same? I have all
>>>these questions. Please give me some advice if you know about
>>>hysterectomies....I think that may be my only option now.
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