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Thank you, Cari, from Andrea - trying to help ;)
From: andrea (anonymous@obgyn.net)
Tue Jun 26 18:16:56 2007
Thanks so much for your encouragement, it means so much. It seems like
the people in the worst pain on here or recovering from surgery are
always the first ones to jump in and offer help and advice. That is so
remarkable to me. I have the summer to think about what I am going to
do and going to CO to visit family this Thur til next Thur, so I won't
be on here again til the 5th or 6th. Have a good holiday & talk to ya
soon! I hope things start getting better for you too. ;)
At Mon, 25 Jun 2007, Cari wrote:
>
>hi andrea :)...
>
>i have had two laps and a full laparotomy. the last lap they discovered
>that in addition to endo, i also have pretty bad adenomyosis. like
>endo, adenomyosis cannot be diagnosed via ultrasound but they can
>certainly get a good idea if it is present by the thickness of the
>uterine wall...my uterus was "huge" on u/s and my endometrial lining was
>always engorged even when my period was not even close to starting. an
>endo specialist and his team did my surgery that lasted nearly four
>hours. it is true, surgery cannot remove the adeno (not at all),
>however, neither will lupron. i have done a lot of research and have
>discussed this with two ER docs and a new gyn...the only "cure" for
>adeno is a hysterectomy (so regarding adeno, yup, i am in agreement,
>take it out, take it out)...another option i am told is birth control
>pills.
>
>and i also had it in the bowel, the bladder, ureters...pick a spot, and
>endo was removed. i know it sounds scary and costly, but i think if you
>get any relief at all, it is worth it.
>
>i understand your emotions, believe me. surgery will likely help any
>endo pain you have, but the adeno will always be there. i personally
>have opted to have the hysterectomy next year...(i was told to really
>think it thru for a year). i am like you, if it means i have a bulk of
>my pain gone...then i am all for it...where do i sign? and my cousin
>just had her uterus out, she jokingly said she's having more sex than
>ever...so who knows?
>
>take care,
>cari
>
>At Sat, 23 Jun 2007, andrea wrote:
>>
>>I can't stop crying.......Thursday I went in for an ultrasound and they
>>found Adenomyasis (Endo deep inside my uterine wall) and the doctor said
>>this can't be reached or removed with laparscopic tools during surgery.
>>He said the only way to get that kind of endo is to take Lupron to
>>shrink it and your body will absorb it naturally. The doctor also said
>>there is massive lesions around my ovaries and probably my bowels too.
>>For all of you who have read my posts, you know I am totally against
>>Lupron and scared to death of it. Now, I am thinking....do i get the
>>surgery at all??? My insurance only pays half and the cost is $25,000!
>>He said even if he got it all, but NOT the adenomyasis, I could still
>>have the same pain I have now.
>>
>>I'm wondering now if a hysterectomy would get rid of the adenomyasis? I
>>don't have kids, but would be willing to give up my uterus if I could
>>just be pain free. I would rather do that than take Lupron too. But, I
>>am wondering what your body feels like without a uterus. I would keep
>>my ovaries. But I hear that your organs fall, and your insides feel
>>different after a hysterectomy. Would sex feel the same? I have all
>>these questions. Please give me some advice if you know about
>>hysterectomies....I think that may be my only option now.
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