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Re: Pelvic muscle floor spasms
From: mdustin (anonymous@obgyn.net)
Tue Jun 26 15:27:11 2007
My doctor didn't believe me about the Endo in the first place
either...said I was too young....ha! I'm 24. I know I need a new
doctor. It's a complicated process for me. As he is my uncle-in-law.
Very weird circumstances. It's like he's just going through the
movements with me, but not really knowing what to do about me at the
same time. Very frusterating as my pain is now constant and there's
nothing to be done about it. Just go through the movements...ugh. I've
been absolutly beside myself. And now I've just come to accept it. It
still frusterates me from time to time, but what could I do about it?
I found the info on the pelvic muscle floor spasms on Dr. Cooks site.
As I was searching for answers. And then I was talking with my hubby
today and he was saying how frusterated he is. I will have to bring the
info with me tomorrow. Thank you for replying.
At Tue, 26 Jun 2007, josie wrote:
>
>When I had my internal exam, the doctor felt to the left and right sides
>and these areas were extremely tender. This is where the levator
>muscles are. She could feel how "tight" things were. I can't actually
>feel the spasm, just the pain from it. Sex hurts, exercise hurts,
>anything that makes your muscle react hurts. (like doing a heavy
>workout with sore muscles) Your muscles start to spasm from the
>endo/adeno pain and once it starts you have to retrain your body. I am
>very surprised that your doctor doesn't think that your pain could be
>related to this. I would bring that info you found (also look up dr.
>cook's website, he has similar info on it) and show it to your doctor.
>Tell him how you are feeling and ask him to examine you for it. It
>isn't the endo, but it is the result of the endo. My doctor referred me
>to the PT because they have to specialize in women's health or pelvic
>pain. (This is also a big problem for men believe it or not with their
>prostate issues). I know it's the muscles because when she presses on
>certain "triggers" my nausea starts and i even can get a hive reaction
>from the pain. But it was getting better until I had that exam. I'm
>not sure of other causes, but maybe it's a nerve response? Good luck!
>At Tue, 26 Jun 2007, mdustin wrote:
>>
>>Josie,
>>I have not been diagnosed for this yet, but after some research, this
>>seems to be a possability. How were you diagnosed? Are there things
>>that you can do at home to treat this or is it pretty much physical
>>therapy? I find that weeks following being intimate with my husband is
>>the worst time for the spasms. He is very frusterated as I cannot be
>>intimate with him as much as he would like. Maybe TMI there. Sorry. I
>>go back to my doctor for my third lupron shot tomorrow and even though I
>>have mentioned the spasms, twitches and pain before, my doctor doesn't
>>seem to think it is relavent to my Endo. Is there any advice to get
>>diagnosed? Is there anything else that all of this could be from? Did
>>your doctor refer you to a physical therapist or did you have to find
>>one?
>>~Maggie
>>
>>At Tue, 26 Jun 2007, josie wrote:
>>>
>>>Hi. I am currently being treated for this. It is extremely painful and
>>>constant. For me it is like a dull ache that is very nauseating and
>>>made worse by activity. It feels like everything is falling out and
>>>spreads into my legs. I am sorry you are also going through this. Here
>>>is what I am doing to treat this. I go to a physical therapist two
>>>times per week to work on releasing the levator muscles and other ones
>>>in that area. This has included working on trigger points from the
>>>outside. We are now starting with biofeedback which will actually make
>>>it worse for a few weeks then hopefully a whole lot better! Google Dr.
>>>Glazer biofeedback to get some info. They can also do some internal
>>>trigger point stuff which is hard to deal with, but I am desperate to do
>>>anything to feel better. The physical therapy really worked for me in
>>>the beginning and i had many pain free mornings. It was wonderful. Then
>>>I had to get an internal at my new doctors and it started everything up
>>>again. It has been very depressing to be in such pain again. I've
>>>needed to start taking my pain medicine again. But I am going in today
>>>so hopefully we can get back on track. The other thing is that my
>>>doctor prescribed B&O suppositories because they work on spasms from the
>>>inside...Gross but effective for really painful nights. Ask your doctor
>>>about this medicine and also about a referral to a physical therapist
>>>that specializes in pelvic pain. I hope this will bring you some
>>>relief. Let me know if you have any other questions. I'm glad to help.
>>>
>>>At Tue, 26 Jun 2007, mdustin wrote:
>>>>
>>>>Hi everyone. I was wondering if anyone had this and what they have been
>>>>able to do about it. Not only do I have this, but also spasms and
>>>>twitches in my legs that result in pain and spasms in my abdomen, arms,
>>>>back and neck. This is a little bit of info on it....
>>>>
>>>>Pelvic Muscle Floor Spasm:
>>>>The bottom of the pelvis is comprised of a series of muscles. These
>>>>muscles extend from the pubic bone in the front to the tail bone in the
>>>>back. Whenever we are in pain, the natural tendency is to tense up our
>>>>muscles. This applies to pelvic pain as well. Often, without even
>>>>realizing it, a patient is clenching the pelvic floor muscles. Over
>>>>time, months or years, these muscles can go into spasm and become
>>>>scarred and unable to fully relax. This condition is similar to a knot
>>>>in the muscle in your back. It is not a matter of just relaxing the
>>>>muscle to make the knot go away, this is impossible. Just as deep
>>>>tissue massage is needed to get rid of the knots (muscle spasm and
>>>>muscle fibrosis) in the back, deep tissue massage can be needed in the
>>>>pelvic area. A qualified physical therapist who deals with pelvic pain
>>>>and is experienced in transvaginal (through the vagina) deep tissue
>>>>massage of the pelvic muscle floor is usually needed to correct pelvic
>>>>muscle floor spasms. Although muscle spasms may not seem like a serious
>>>>condition to some, anyone who has experienced a severe spasm in the calf
>>>>knows how excruciatingly the pain can be. Imagine having this pain
>>>>level constantly in the pelvic area. This pain can require treatment
>>>>with high levels of narcotic pain medications. This is one reason why
>>>>patients can continue to experience pain after endometriosis is removed.
>>>>The condition that started the pain is gone, but this secondary
>>>>condition, which was stared because of the endometriosis, now has a life
>>>>of its own. A physical therapist with these specialized skills can help
>>>>with this last step in resolving your pain.
>>>>
>>>>Any input would be helpful. Thank you.
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