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Re: 1st shot of Lupron 2morrow! To Andrea
From: Stephanie (anonymous@obgyn.net)
Tue Jun 26 00:02:32 2007
Thank you so much for your advice Andrea! I greatly appreciate the
support and understanding i am receiving from others who suffer like i
do! I am gng to think this thru! I will keep everyone posted tomorrow
after my doctors appt! Once again Thank You! Steph :)
At Mon, 25 Jun 2007, andrea wrote:
>
>I know!! All those people sick as hell and docs still prescribe
>it....unbelievable. I've tried several pain meds and Darvocet sucks -
>isn't even as strong as Vicodin, which I was taking and I STILL hurt
>pretty bad. My specialist upgraded me to 10mg Lortab and THAT took the
>pain away alot better! Maybe you should just try a stronger pain med
>BEFORE considering Lupron.....ANYTHING! You still have other
>options....her not taking the endo off your bladder is probably why
>you're still having pain too. If your doc won't give you a stronger
>pain med, a specialist WILL. And since she did not remove all the endo
>properly, your insurance should have NO PROBLEM letting you see a
>specialist!! I will try to give you emotional support and advice you
>need, just like so many have given me on here. Maybe you can get some
>better pain meds first, see how that goes, then eventually find a new
>doc to do your bladder because once you take that Lupron shot, there's
>no going back. Please think about it.
>
>At Mon, 25 Jun 2007, Stephanie wrote:
>>
>>Hello Andrea,
>>I just finished reading the ling that Maggie sent me and OMG!! I cant
>>believe the HORRIBLE side effects!! I cant understand WHY doctors still
>>prescribe this medication! The main reason for me to take Lupron is to
>>feel NORMAL again, i hate having this constant pain! Tomorrow il also be
>>talking to my doc about pain mangement since she's not tryng to give me
>>anything else other than darvocet, which isnt doing anything for me and
>>getting a referral to an endo specialist, I did have a lap in April and
>>thats when i was diagnosed w/endo stage 2. I have endo on my bladder
>>which she didnt remove. Geeze this is so hard to deal with!! Its really
>>sad and depressing!! Steph
>>
>>At Mon, 25 Jun 2007, andrea wrote:
>>>
>>>Hey, you've written me once or twice and I think you are a great person!
>>>Now, I am being faced with taking Lupron too, but ONLY because I found
>>>out Thursday that I have Adenomyosis (endo deep inside my uterine wall
>>>that laparscopy cannot get to.) My doc says the only way to get the
>>>Adenomyosis is to shrink it with Lupron or a hysterectomy, but I want to
>>>get a biopsy to make 100% sure that I even have it. (The sonogram
>>>indicated that I had it.)
>>>
>>>I am very concerned for you. Especially if you are just taking it for
>>>pain reduction, or to prove to your insurance that you've exhausted all
>>>treatments so you can see a specialist. You can't see a specialist
>>>unless you try Lupron first? Is that what you insurance said? Or your
>>>doc? Screw them! In my experience, a regular doc can recommend a
>>>specialist no matter what, you just ask. Are you on pain medication?
>>>The specialist I just started seeing said he will give me all the Lortab
>>>that I want and be my pain management doc, even if I choose to have NO
>>>surgery, because he saw on the sonogram how messed up my insides were.
>>>You need to just go to a specialist, get some pain meds, and get an
>>>evaluation for a lap surgery if you can. I will help you find a doctor
>>>too if you want! Please consider NOT doing the Lupron and look at that
>>>link Maggie sent you. I can't even believe docs are allowed to
>>>prescribe it. Even if there is a slight possibility that YOU could have
>>>those awful side effects, is it worth trading your pain for all that? I
>>>feel backed into a corner with what I'm facing now too, but I keep
>>>telling myself, there has got to be more options and a better way out of
>>>all this!
>>>
>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>
>>>>Maggie,
>>>>Dnt worry about scarring me w/your input. I appreciate that you are
>>>>being sincere about your personal experience w/lupron. There are a few
>>>>reasons i am taking lupron. My first one of course is trying to get
>>>>some pain relief, even if its gng to be for a few months. The second
>>>>one is to prove my doctor that Lupron might only stop endo from growing
>>>>in those six months but what happens after? And third so that i can tell
>>>>my insurance (well i tried Lupron and it didnt work, so can i NOW see an
>>>>endo specialist!) Its sad to say but i really doubt Lupron is gng to
>>>>help, im not trying to jinks myself, but im just being honest to myself.
>>>>Out of all of the stories out there only a FEW might have a good thing
>>>>to say about lupron. But what happens w/you stop lupron and it all
>>>>comes back. And its sad that like you said not only do you have the
>>>>lupron, add-back therepy side effects BUT also your ENDO symptoms! Its
>>>>soo sad having to deal w/this disease! Thanks for the info! I hope ur
>>>>third shot brings some better relief? So what is your next step once you
>>>>take the the third shot?
>>>>
>>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>>
>>>>>Steph,
>>>>>Lupron has not been very good to me, unfortuently, but do not let that
>>>>>scare you away. I know you have read many horrible things about it. But
>>>>>think about it this way, if this was working, and you felt great, you
>>>>>wouldn't be on the computer complaining about how great it is. There
>>>>>are a few women who do...don't get me wrong, but there are just more
>>>>>that are on here or other sites because it hasn't worked for them.
>>>>>As for me, I'm in the thick of it. I had the 'normal' side effects for
>>>>>the first two weeks, increase of pain, hot flashes, dizziness,
>>>>>joint/muscle pain. And then it seemed to tapper of...the endo aspect of
>>>>>it anyways. After my second shot I expected to be doing better as
>>>>>'normally' it takes 4-6 weeks to really start feeling a positive effect,
>>>>>as I was told at the time. A few days after I got my second shot my
>>>>>family and I were out of state for my sister's wedding. I became
>>>>>severly bloated, I mean, pregnant bloated! And misserable. I got
>>>>>through that as best as I could and when we got back home after a few
>>>>>days, I woke up one morning and BAM! My pain, all of my pain came back
>>>>>like I hit a wall or something. I tried to deal with it as best I could
>>>>>but my emotions were uncontrollable. I called my doctor after hours,
>>>>>which I never do...and he told me to come in when he would be back in
>>>>>the office a couple of days later. He also, at that point thought that
>>>>>all of my pain was due to a uti...gave me a script for
>>>>>antibiotics...long story short, I never had one and therefor stopped
>>>>>taking the script. Back on topic....my doctor believes that I, unlike
>>>>>'most' women was reacting to the lupron in a 'differnt' way. He wants
>>>>>me to finish out my treatment and gave me add-back therapy to help along
>>>>>the way. The only problem is, that along with the side effects of the
>>>>>Lupron and the side effects of Premerin (my add-back), I also have my
>>>>>symptoms of my Endo. Yuck! The way I look at it, and the reason that I
>>>>>don't stop the treatment is the fact that down the road, there is no way
>>>>>that I will take the lupron again and now I will have proof of why.
>>>>>I mean who knows, the third shot may be more helpful, and I won't know
>>>>>untill I go through it. I am forever hopeful to feel 'normal' again,
>>>>>even if that means bleeding everyday like I did before all of this. For
>>>>>me, the Lupron feels poisonous. And yet, even so, I will pray that it
>>>>>will help you. Especially since you will be starting it with
>>>>>add-back...that may really make a difference. If you ever have any
>>>>>questions...going through it, please ask.
>>>>>
>>>>>~Maggie
>>>>>
>>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>>
>>>>>>Thanks Maggie for your advice! So how have you felt w/lupron these last
>>>>>>two months? Has it helped w/the pain? How were your first two weeks on
>>>>>>lupron? I am also hoping that since im starting the add-back therapy
>>>>>>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>>>>>>Steph
>>>>>>
>>>>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>>>>
>>>>>>>Steph,
>>>>>>>The best suggestion I can give you (I'm getting my third lupron shot on
>>>>>>>Wed.) is to research both medications, as much as you can. So that even
>>>>>>>if you don't experience certain side effects (I hope you don't), you
>>>>>>>will be aware of them. One side effect that I was not really aware of,
>>>>>>>but it was on the packaging of my shot is the dizziness. It really did
>>>>>>>effect me. I had a very difficult time especially when driving. When I
>>>>>>>had to concentrate on something is when I couldn't. Hopefully, since
>>>>>>>they are starting you with an add-back therapy, you won't have the major
>>>>>>>side effects be so severe. I didn't start my add back untll last week
>>>>>>>and up untill them, I felt awful. It helps to have the add back in my
>>>>>>>system, however, I still experience side effects from Lupron...just not
>>>>>>>as severe. If you have any questions about it, please feel free to
>>>>>>>write me. Good luck to you.
>>>>>>>~Maggie
>>>>>>>
>>>>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>>>>
>>>>>>>>Good morning ladies!
>>>>>>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>>>>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>>>>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>>>>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>>>>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>>>>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph
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