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Re: 1st shot of Lupron 2morrow! To Stephanie
From: andrea (anonymous@obgyn.net)
Mon Jun 25 18:52:50 2007
I know!! All those people sick as hell and docs still prescribe
it....unbelievable. I've tried several pain meds and Darvocet sucks -
isn't even as strong as Vicodin, which I was taking and I STILL hurt
pretty bad. My specialist upgraded me to 10mg Lortab and THAT took the
pain away alot better! Maybe you should just try a stronger pain med
BEFORE considering Lupron.....ANYTHING! You still have other
options....her not taking the endo off your bladder is probably why
you're still having pain too. If your doc won't give you a stronger
pain med, a specialist WILL. And since she did not remove all the endo
properly, your insurance should have NO PROBLEM letting you see a
specialist!! I will try to give you emotional support and advice you
need, just like so many have given me on here. Maybe you can get some
better pain meds first, see how that goes, then eventually find a new
doc to do your bladder because once you take that Lupron shot, there's
no going back. Please think about it.
At Mon, 25 Jun 2007, Stephanie wrote:
>
>Hello Andrea,
>I just finished reading the ling that Maggie sent me and OMG!! I cant
>believe the HORRIBLE side effects!! I cant understand WHY doctors still
>prescribe this medication! The main reason for me to take Lupron is to
>feel NORMAL again, i hate having this constant pain! Tomorrow il also be
>talking to my doc about pain mangement since she's not tryng to give me
>anything else other than darvocet, which isnt doing anything for me and
>getting a referral to an endo specialist, I did have a lap in April and
>thats when i was diagnosed w/endo stage 2. I have endo on my bladder
>which she didnt remove. Geeze this is so hard to deal with!! Its really
>sad and depressing!! Steph
>
>At Mon, 25 Jun 2007, andrea wrote:
>>
>>Hey, you've written me once or twice and I think you are a great person!
>>Now, I am being faced with taking Lupron too, but ONLY because I found
>>out Thursday that I have Adenomyosis (endo deep inside my uterine wall
>>that laparscopy cannot get to.) My doc says the only way to get the
>>Adenomyosis is to shrink it with Lupron or a hysterectomy, but I want to
>>get a biopsy to make 100% sure that I even have it. (The sonogram
>>indicated that I had it.)
>>
>>I am very concerned for you. Especially if you are just taking it for
>>pain reduction, or to prove to your insurance that you've exhausted all
>>treatments so you can see a specialist. You can't see a specialist
>>unless you try Lupron first? Is that what you insurance said? Or your
>>doc? Screw them! In my experience, a regular doc can recommend a
>>specialist no matter what, you just ask. Are you on pain medication?
>>The specialist I just started seeing said he will give me all the Lortab
>>that I want and be my pain management doc, even if I choose to have NO
>>surgery, because he saw on the sonogram how messed up my insides were.
>>You need to just go to a specialist, get some pain meds, and get an
>>evaluation for a lap surgery if you can. I will help you find a doctor
>>too if you want! Please consider NOT doing the Lupron and look at that
>>link Maggie sent you. I can't even believe docs are allowed to
>>prescribe it. Even if there is a slight possibility that YOU could have
>>those awful side effects, is it worth trading your pain for all that? I
>>feel backed into a corner with what I'm facing now too, but I keep
>>telling myself, there has got to be more options and a better way out of
>>all this!
>>
>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>
>>>Maggie,
>>>Dnt worry about scarring me w/your input. I appreciate that you are
>>>being sincere about your personal experience w/lupron. There are a few
>>>reasons i am taking lupron. My first one of course is trying to get
>>>some pain relief, even if its gng to be for a few months. The second
>>>one is to prove my doctor that Lupron might only stop endo from growing
>>>in those six months but what happens after? And third so that i can tell
>>>my insurance (well i tried Lupron and it didnt work, so can i NOW see an
>>>endo specialist!) Its sad to say but i really doubt Lupron is gng to
>>>help, im not trying to jinks myself, but im just being honest to myself.
>>>Out of all of the stories out there only a FEW might have a good thing
>>>to say about lupron. But what happens w/you stop lupron and it all
>>>comes back. And its sad that like you said not only do you have the
>>>lupron, add-back therepy side effects BUT also your ENDO symptoms! Its
>>>soo sad having to deal w/this disease! Thanks for the info! I hope ur
>>>third shot brings some better relief? So what is your next step once you
>>>take the the third shot?
>>>
>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>
>>>>Steph,
>>>>Lupron has not been very good to me, unfortuently, but do not let that
>>>>scare you away. I know you have read many horrible things about it. But
>>>>think about it this way, if this was working, and you felt great, you
>>>>wouldn't be on the computer complaining about how great it is. There
>>>>are a few women who do...don't get me wrong, but there are just more
>>>>that are on here or other sites because it hasn't worked for them.
>>>>As for me, I'm in the thick of it. I had the 'normal' side effects for
>>>>the first two weeks, increase of pain, hot flashes, dizziness,
>>>>joint/muscle pain. And then it seemed to tapper of...the endo aspect of
>>>>it anyways. After my second shot I expected to be doing better as
>>>>'normally' it takes 4-6 weeks to really start feeling a positive effect,
>>>>as I was told at the time. A few days after I got my second shot my
>>>>family and I were out of state for my sister's wedding. I became
>>>>severly bloated, I mean, pregnant bloated! And misserable. I got
>>>>through that as best as I could and when we got back home after a few
>>>>days, I woke up one morning and BAM! My pain, all of my pain came back
>>>>like I hit a wall or something. I tried to deal with it as best I could
>>>>but my emotions were uncontrollable. I called my doctor after hours,
>>>>which I never do...and he told me to come in when he would be back in
>>>>the office a couple of days later. He also, at that point thought that
>>>>all of my pain was due to a uti...gave me a script for
>>>>antibiotics...long story short, I never had one and therefor stopped
>>>>taking the script. Back on topic....my doctor believes that I, unlike
>>>>'most' women was reacting to the lupron in a 'differnt' way. He wants
>>>>me to finish out my treatment and gave me add-back therapy to help along
>>>>the way. The only problem is, that along with the side effects of the
>>>>Lupron and the side effects of Premerin (my add-back), I also have my
>>>>symptoms of my Endo. Yuck! The way I look at it, and the reason that I
>>>>don't stop the treatment is the fact that down the road, there is no way
>>>>that I will take the lupron again and now I will have proof of why.
>>>>I mean who knows, the third shot may be more helpful, and I won't know
>>>>untill I go through it. I am forever hopeful to feel 'normal' again,
>>>>even if that means bleeding everyday like I did before all of this. For
>>>>me, the Lupron feels poisonous. And yet, even so, I will pray that it
>>>>will help you. Especially since you will be starting it with
>>>>add-back...that may really make a difference. If you ever have any
>>>>questions...going through it, please ask.
>>>>
>>>>~Maggie
>>>>
>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>
>>>>>Thanks Maggie for your advice! So how have you felt w/lupron these last
>>>>>two months? Has it helped w/the pain? How were your first two weeks on
>>>>>lupron? I am also hoping that since im starting the add-back therapy
>>>>>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>>>>>Steph
>>>>>
>>>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>>>
>>>>>>Steph,
>>>>>>The best suggestion I can give you (I'm getting my third lupron shot on
>>>>>>Wed.) is to research both medications, as much as you can. So that even
>>>>>>if you don't experience certain side effects (I hope you don't), you
>>>>>>will be aware of them. One side effect that I was not really aware of,
>>>>>>but it was on the packaging of my shot is the dizziness. It really did
>>>>>>effect me. I had a very difficult time especially when driving. When I
>>>>>>had to concentrate on something is when I couldn't. Hopefully, since
>>>>>>they are starting you with an add-back therapy, you won't have the major
>>>>>>side effects be so severe. I didn't start my add back untll last week
>>>>>>and up untill them, I felt awful. It helps to have the add back in my
>>>>>>system, however, I still experience side effects from Lupron...just not
>>>>>>as severe. If you have any questions about it, please feel free to
>>>>>>write me. Good luck to you.
>>>>>>~Maggie
>>>>>>
>>>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>>>
>>>>>>>Good morning ladies!
>>>>>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>>>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>>>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>>>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>>>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>>>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph
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