Re: 1st shot of Lupron 2morrow! To Stephanie
From: andrea (anonymous@obgyn.net)
Mon Jun 25 15:59:12 2007
Hey, you've written me once or twice and I think you are a great person!
Now, I am being faced with taking Lupron too, but ONLY because I found
out Thursday that I have Adenomyosis (endo deep inside my uterine wall
that laparscopy cannot get to.) My doc says the only way to get the
Adenomyosis is to shrink it with Lupron or a hysterectomy, but I want to
get a biopsy to make 100% sure that I even have it. (The sonogram
indicated that I had it.)
I am very concerned for you. Especially if you are just taking it for
pain reduction, or to prove to your insurance that you've exhausted all
treatments so you can see a specialist. You can't see a specialist
unless you try Lupron first? Is that what you insurance said? Or your
doc? Screw them! In my experience, a regular doc can recommend a
specialist no matter what, you just ask. Are you on pain medication?
The specialist I just started seeing said he will give me all the Lortab
that I want and be my pain management doc, even if I choose to have NO
surgery, because he saw on the sonogram how messed up my insides were.
You need to just go to a specialist, get some pain meds, and get an
evaluation for a lap surgery if you can. I will help you find a doctor
too if you want! Please consider NOT doing the Lupron and look at that
link Maggie sent you. I can't even believe docs are allowed to
prescribe it. Even if there is a slight possibility that YOU could have
those awful side effects, is it worth trading your pain for all that? I
feel backed into a corner with what I'm facing now too, but I keep
telling myself, there has got to be more options and a better way out of
all this!
At Mon, 25 Jun 2007, Stephanie wrote:
>
>Maggie,
>Dnt worry about scarring me w/your input. I appreciate that you are
>being sincere about your personal experience w/lupron. There are a few
>reasons i am taking lupron. My first one of course is trying to get
>some pain relief, even if its gng to be for a few months. The second
>one is to prove my doctor that Lupron might only stop endo from growing
>in those six months but what happens after? And third so that i can tell
>my insurance (well i tried Lupron and it didnt work, so can i NOW see an
>endo specialist!) Its sad to say but i really doubt Lupron is gng to
>help, im not trying to jinks myself, but im just being honest to myself.
>Out of all of the stories out there only a FEW might have a good thing
>to say about lupron. But what happens w/you stop lupron and it all
>comes back. And its sad that like you said not only do you have the
>lupron, add-back therepy side effects BUT also your ENDO symptoms! Its
>soo sad having to deal w/this disease! Thanks for the info! I hope ur
>third shot brings some better relief? So what is your next step once you
>take the the third shot?
>
>At Mon, 25 Jun 2007, mdustin wrote:
>>
>>Steph,
>>Lupron has not been very good to me, unfortuently, but do not let that
>>scare you away. I know you have read many horrible things about it. But
>>think about it this way, if this was working, and you felt great, you
>>wouldn't be on the computer complaining about how great it is. There
>>are a few women who do...don't get me wrong, but there are just more
>>that are on here or other sites because it hasn't worked for them.
>>As for me, I'm in the thick of it. I had the 'normal' side effects for
>>the first two weeks, increase of pain, hot flashes, dizziness,
>>joint/muscle pain. And then it seemed to tapper of...the endo aspect of
>>it anyways. After my second shot I expected to be doing better as
>>'normally' it takes 4-6 weeks to really start feeling a positive effect,
>>as I was told at the time. A few days after I got my second shot my
>>family and I were out of state for my sister's wedding. I became
>>severly bloated, I mean, pregnant bloated! And misserable. I got
>>through that as best as I could and when we got back home after a few
>>days, I woke up one morning and BAM! My pain, all of my pain came back
>>like I hit a wall or something. I tried to deal with it as best I could
>>but my emotions were uncontrollable. I called my doctor after hours,
>>which I never do...and he told me to come in when he would be back in
>>the office a couple of days later. He also, at that point thought that
>>all of my pain was due to a uti...gave me a script for
>>antibiotics...long story short, I never had one and therefor stopped
>>taking the script. Back on topic....my doctor believes that I, unlike
>>'most' women was reacting to the lupron in a 'differnt' way. He wants
>>me to finish out my treatment and gave me add-back therapy to help along
>>the way. The only problem is, that along with the side effects of the
>>Lupron and the side effects of Premerin (my add-back), I also have my
>>symptoms of my Endo. Yuck! The way I look at it, and the reason that I
>>don't stop the treatment is the fact that down the road, there is no way
>>that I will take the lupron again and now I will have proof of why.
>>I mean who knows, the third shot may be more helpful, and I won't know
>>untill I go through it. I am forever hopeful to feel 'normal' again,
>>even if that means bleeding everyday like I did before all of this. For
>>me, the Lupron feels poisonous. And yet, even so, I will pray that it
>>will help you. Especially since you will be starting it with
>>add-back...that may really make a difference. If you ever have any
>>questions...going through it, please ask.
>>
>>~Maggie
>>
>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>
>>>Thanks Maggie for your advice! So how have you felt w/lupron these last
>>>two months? Has it helped w/the pain? How were your first two weeks on
>>>lupron? I am also hoping that since im starting the add-back therapy
>>>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>>>Steph
>>>
>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>
>>>>Steph,
>>>>The best suggestion I can give you (I'm getting my third lupron shot on
>>>>Wed.) is to research both medications, as much as you can. So that even
>>>>if you don't experience certain side effects (I hope you don't), you
>>>>will be aware of them. One side effect that I was not really aware of,
>>>>but it was on the packaging of my shot is the dizziness. It really did
>>>>effect me. I had a very difficult time especially when driving. When I
>>>>had to concentrate on something is when I couldn't. Hopefully, since
>>>>they are starting you with an add-back therapy, you won't have the major
>>>>side effects be so severe. I didn't start my add back untll last week
>>>>and up untill them, I felt awful. It helps to have the add back in my
>>>>system, however, I still experience side effects from Lupron...just not
>>>>as severe. If you have any questions about it, please feel free to
>>>>write me. Good luck to you.
>>>>~Maggie
>>>>
>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>
>>>>>Good morning ladies!
>>>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph
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