Re: I got some bad news, now I don't know what to do...
From: andrea (anonymous@obgyn.net)
Mon Jun 25 15:04:23 2007
ART, thanks for that website link. It was very informative! I feel lost
knowing that I most likely have adenomyosis now too in addition to my
endo. However, I would be hesitant to go to that doctor if he is the
only one in the world doing that procedure. It sounds like he would
have to cut into your uterus, take the adenomyosis out, then reconstruct
your uterus. Don't get me wrong, I would totally do it if it was
something my doctor could do and at least I know my doc takes my Blue
Cross insurance. Plus staying in California for 3 weeks.....I can't
even afford what I'm having here in TX. :( I still think I would rather
get a hysterectomy (just uterus) than take Lupron.
I don't even think I would be sad about not having kids! I would look at
it as getting rid of this THING that has caused me pain and misery most
my life! Too bad uteruses aren't removable - like we could just stick it
in there when we need it and we want a baby, then take the damn thing
out so we don't have to bleed and have friggin cramps every month!
Wouldn't that be great......Anyway, thank you so much for your support.
I have until August to think about all this, my doc goes on vacation
most of July.
--
Andrea
At Sat, 23 Jun 2007, ART wrote:
>
>Hi Andrea,
>
>I am not sure how much i can help , but I can understand ur misery ! I
>am so sorry to hear u are going thru all this.
>I am myself suffering from internal endo ( adenomyosis) and now i am
>suspecting symptoms of endo as well , so i am gonna go chk out whats
>going on.
>
>I was also told that hyst is the only option for adeno as itcannot be
>removed by any lap, and only gets worse with time, which i am
>experiencing , my symptoms r getting worse and I am not sure what to do
>!!
>
>I dont know , but have you thought abt excising the adeno? its one site
>that I read abt .Dr.Del Junco or someone, i am not very sure now.You
>will get the site if u google Dr.Del Junco I suppose. Some of th othr
>ladies here may be knowing more than me, as I am kinda new here , but
>not that new either !
>
>In case you need to know more abt adeno suuport, there is group for
>adenomyosis on yahoo .I am also on that group.
>
>I hope I cud help you more , but thats all I can tell you. If u feel
>like talking, u can mail me at amrutagokhale@yahoo.com and we can
>support each other !! You have replied to so many of my earlier
>posts....hope i can help u in some way ..
>
>Take care , I hope some one else here can help u better with ur
>situation.
>
>Good luck !
>
>At Sat, 23 Jun 2007, andrea wrote:
>>
>>I can't stop crying.......Thursday I went in for an ultrasound and they
>>found Adenomyasis (Endo deep inside my uterine wall) and the doctor said
>>this can't be reached or removed with laparscopic tools during surgery.
>>He said the only way to get that kind of endo is to take Lupron to
>>shrink it and your body will absorb it naturally. The doctor also said
>>there is massive lesions around my ovaries and probably my bowels too.
>>For all of you who have read my posts, you know I am totally against
>>Lupron and scared to death of it. Now, I am thinking....do i get the
>>surgery at all??? My insurance only pays half and the cost is $25,000!
>>He said even if he got it all, but NOT the adenomyasis, I could still
>>have the same pain I have now.
>>
>>I'm wondering now if a hysterectomy would get rid of the adenomyasis? I
>>don't have kids, but would be willing to give up my uterus if I could
>>just be pain free. I would rather do that than take Lupron too. But, I
>>am wondering what your body feels like without a uterus. I would keep
>>my ovaries. But I hear that your organs fall, and your insides feel
>>different after a hysterectomy. Would sex feel the same? I have all
>>these questions. Please give me some advice if you know about
>>hysterectomies....I think that may be my only option now.
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)