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Re: 1st shot of Lupron 2morrow! To Maggie
From: Stephanie (anonymous@obgyn.net)
Mon Jun 25 13:34:48 2007
Thanks for the advice and for the good wishes! I'll have my brother
drive me over there just in case! I am also going to take a look at the
link you gave! And your right the third shot probably wont do anything,
if the first two didnt help, but like we both said "we just never know"!
I also wish you good luck in your third shot! Il be going in tomorrow
morning! I'll write to you once i get back from the doctors office.
Thanks! Steph
At Mon, 25 Jun 2007, mdustin wrote:
>
>Steph,
>I really don't know what is going to happen after I take my third shot.
>My doctor really won't tell me, even though I've asked and my husband
>has asked him as well. I will honestly be suprised if the third shot
>makes an impact on my body at all. I'm not saying that it can't happen,
>I would just be very suprised. I have done tons of research on all of
>this. I've looked at many many many sites and read all the information
>that I could handle. The scary thing is that many women have had long
>lasting side effects from lupron, so who's to say if the side effects
>will even go away. And I also found a petition for an investigation of
>lupron and there were some men on there (as lupron is a treatment for
>prostate cancer), and a couple of them, somehow were found with Endo
>after taking the lupron! That's crazy to me! At this point, I don't
>expect anything and expect everything at the same time. I won't be
>suprised however they try to treat me after the lupron..I'm expecting,
>nothing to be done ('wait and see approach'), birth control pills,
>surgery, tests, you name it. Cause I really have no idea what to expect
>anymore. If you want to read some of the things on the petition....the
>site is:
>
>http://www.ipetitions.com/petition/Depot-Lupron/signatures.html
>
>You get this shot tomorrow? Do you have anybody to drive you there, to
>and from...just in case? I'm telling you, it made me really dizzy.
>Please let me know how it goes. I wish you luck!
>
>~Maggie
>
>At Mon, 25 Jun 2007, Stephanie wrote:
>>
>>Maggie,
>>Dnt worry about scarring me w/your input. I appreciate that you are
>>being sincere about your personal experience w/lupron. There are a few
>>reasons i am taking lupron. My first one of course is trying to get
>>some pain relief, even if its gng to be for a few months. The second
>>one is to prove my doctor that Lupron might only stop endo from growing
>>in those six months but what happens after? And third so that i can tell
>>my insurance (well i tried Lupron and it didnt work, so can i NOW see an
>>endo specialist!) Its sad to say but i really doubt Lupron is gng to
>>help, im not trying to jinks myself, but im just being honest to myself.
>>Out of all of the stories out there only a FEW might have a good thing
>>to say about lupron. But what happens w/you stop lupron and it all
>>comes back. And its sad that like you said not only do you have the
>>lupron, add-back therepy side effects BUT also your ENDO symptoms! Its
>>soo sad having to deal w/this disease! Thanks for the info! I hope ur
>>third shot brings some better relief? So what is your next step once you
>>take the the third shot?
>>
>>At Mon, 25 Jun 2007, mdustin wrote:
>>>
>>>Steph,
>>>Lupron has not been very good to me, unfortuently, but do not let that
>>>scare you away. I know you have read many horrible things about it. But
>>>think about it this way, if this was working, and you felt great, you
>>>wouldn't be on the computer complaining about how great it is. There
>>>are a few women who do...don't get me wrong, but there are just more
>>>that are on here or other sites because it hasn't worked for them.
>>>As for me, I'm in the thick of it. I had the 'normal' side effects for
>>>the first two weeks, increase of pain, hot flashes, dizziness,
>>>joint/muscle pain. And then it seemed to tapper of...the endo aspect of
>>>it anyways. After my second shot I expected to be doing better as
>>>'normally' it takes 4-6 weeks to really start feeling a positive effect,
>>>as I was told at the time. A few days after I got my second shot my
>>>family and I were out of state for my sister's wedding. I became
>>>severly bloated, I mean, pregnant bloated! And misserable. I got
>>>through that as best as I could and when we got back home after a few
>>>days, I woke up one morning and BAM! My pain, all of my pain came back
>>>like I hit a wall or something. I tried to deal with it as best I could
>>>but my emotions were uncontrollable. I called my doctor after hours,
>>>which I never do...and he told me to come in when he would be back in
>>>the office a couple of days later. He also, at that point thought that
>>>all of my pain was due to a uti...gave me a script for
>>>antibiotics...long story short, I never had one and therefor stopped
>>>taking the script. Back on topic....my doctor believes that I, unlike
>>>'most' women was reacting to the lupron in a 'differnt' way. He wants
>>>me to finish out my treatment and gave me add-back therapy to help along
>>>the way. The only problem is, that along with the side effects of the
>>>Lupron and the side effects of Premerin (my add-back), I also have my
>>>symptoms of my Endo. Yuck! The way I look at it, and the reason that I
>>>don't stop the treatment is the fact that down the road, there is no way
>>>that I will take the lupron again and now I will have proof of why.
>>>I mean who knows, the third shot may be more helpful, and I won't know
>>>untill I go through it. I am forever hopeful to feel 'normal' again,
>>>even if that means bleeding everyday like I did before all of this. For
>>>me, the Lupron feels poisonous. And yet, even so, I will pray that it
>>>will help you. Especially since you will be starting it with
>>>add-back...that may really make a difference. If you ever have any
>>>questions...going through it, please ask.
>>>
>>>~Maggie
>>>
>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>
>>>>Thanks Maggie for your advice! So how have you felt w/lupron these last
>>>>two months? Has it helped w/the pain? How were your first two weeks on
>>>>lupron? I am also hoping that since im starting the add-back therapy
>>>>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>>>>Steph
>>>>
>>>>At Mon, 25 Jun 2007, mdustin wrote:
>>>>>
>>>>>Steph,
>>>>>The best suggestion I can give you (I'm getting my third lupron shot on
>>>>>Wed.) is to research both medications, as much as you can. So that even
>>>>>if you don't experience certain side effects (I hope you don't), you
>>>>>will be aware of them. One side effect that I was not really aware of,
>>>>>but it was on the packaging of my shot is the dizziness. It really did
>>>>>effect me. I had a very difficult time especially when driving. When I
>>>>>had to concentrate on something is when I couldn't. Hopefully, since
>>>>>they are starting you with an add-back therapy, you won't have the major
>>>>>side effects be so severe. I didn't start my add back untll last week
>>>>>and up untill them, I felt awful. It helps to have the add back in my
>>>>>system, however, I still experience side effects from Lupron...just not
>>>>>as severe. If you have any questions about it, please feel free to
>>>>>write me. Good luck to you.
>>>>>~Maggie
>>>>>
>>>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>>>
>>>>>>Good morning ladies!
>>>>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph
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