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Re: 1st shot of Lupron 2morrow! To Maggie
From: Stephanie (anonymous@obgyn.net)
Mon Jun 25 13:05:42 2007
Maggie,
Dnt worry about scarring me w/your input. I appreciate that you are
being sincere about your personal experience w/lupron. There are a few
reasons i am taking lupron. My first one of course is trying to get
some pain relief, even if its gng to be for a few months. The second
one is to prove my doctor that Lupron might only stop endo from growing
in those six months but what happens after? And third so that i can tell
my insurance (well i tried Lupron and it didnt work, so can i NOW see an
endo specialist!) Its sad to say but i really doubt Lupron is gng to
help, im not trying to jinks myself, but im just being honest to myself.
Out of all of the stories out there only a FEW might have a good thing
to say about lupron. But what happens w/you stop lupron and it all
comes back. And its sad that like you said not only do you have the
lupron, add-back therepy side effects BUT also your ENDO symptoms! Its
soo sad having to deal w/this disease! Thanks for the info! I hope ur
third shot brings some better relief? So what is your next step once you
take the the third shot?
At Mon, 25 Jun 2007, mdustin wrote:
>
>Steph,
>Lupron has not been very good to me, unfortuently, but do not let that
>scare you away. I know you have read many horrible things about it. But
>think about it this way, if this was working, and you felt great, you
>wouldn't be on the computer complaining about how great it is. There
>are a few women who do...don't get me wrong, but there are just more
>that are on here or other sites because it hasn't worked for them.
>As for me, I'm in the thick of it. I had the 'normal' side effects for
>the first two weeks, increase of pain, hot flashes, dizziness,
>joint/muscle pain. And then it seemed to tapper of...the endo aspect of
>it anyways. After my second shot I expected to be doing better as
>'normally' it takes 4-6 weeks to really start feeling a positive effect,
>as I was told at the time. A few days after I got my second shot my
>family and I were out of state for my sister's wedding. I became
>severly bloated, I mean, pregnant bloated! And misserable. I got
>through that as best as I could and when we got back home after a few
>days, I woke up one morning and BAM! My pain, all of my pain came back
>like I hit a wall or something. I tried to deal with it as best I could
>but my emotions were uncontrollable. I called my doctor after hours,
>which I never do...and he told me to come in when he would be back in
>the office a couple of days later. He also, at that point thought that
>all of my pain was due to a uti...gave me a script for
>antibiotics...long story short, I never had one and therefor stopped
>taking the script. Back on topic....my doctor believes that I, unlike
>'most' women was reacting to the lupron in a 'differnt' way. He wants
>me to finish out my treatment and gave me add-back therapy to help along
>the way. The only problem is, that along with the side effects of the
>Lupron and the side effects of Premerin (my add-back), I also have my
>symptoms of my Endo. Yuck! The way I look at it, and the reason that I
>don't stop the treatment is the fact that down the road, there is no way
>that I will take the lupron again and now I will have proof of why.
>I mean who knows, the third shot may be more helpful, and I won't know
>untill I go through it. I am forever hopeful to feel 'normal' again,
>even if that means bleeding everyday like I did before all of this. For
>me, the Lupron feels poisonous. And yet, even so, I will pray that it
>will help you. Especially since you will be starting it with
>add-back...that may really make a difference. If you ever have any
>questions...going through it, please ask.
>
>~Maggie
>
>At Mon, 25 Jun 2007, Stephanie wrote:
>>
>>Thanks Maggie for your advice! So how have you felt w/lupron these last
>>two months? Has it helped w/the pain? How were your first two weeks on
>>lupron? I am also hoping that since im starting the add-back therapy
>>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>>Steph
>>
>>At Mon, 25 Jun 2007, mdustin wrote:
>>>
>>>Steph,
>>>The best suggestion I can give you (I'm getting my third lupron shot on
>>>Wed.) is to research both medications, as much as you can. So that even
>>>if you don't experience certain side effects (I hope you don't), you
>>>will be aware of them. One side effect that I was not really aware of,
>>>but it was on the packaging of my shot is the dizziness. It really did
>>>effect me. I had a very difficult time especially when driving. When I
>>>had to concentrate on something is when I couldn't. Hopefully, since
>>>they are starting you with an add-back therapy, you won't have the major
>>>side effects be so severe. I didn't start my add back untll last week
>>>and up untill them, I felt awful. It helps to have the add back in my
>>>system, however, I still experience side effects from Lupron...just not
>>>as severe. If you have any questions about it, please feel free to
>>>write me. Good luck to you.
>>>~Maggie
>>>
>>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>>
>>>>Good morning ladies!
>>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph
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