ENDO Messages for June, 2007: Re: 1st shot of Lupron 2morrow! To Maggie

Re: 1st shot of Lupron 2morrow! To Maggie

From: mdustin (anonymous@obgyn.net)
Mon Jun 25 12:33:02 2007

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Steph, Lupron has not been very good to me, unfortuently, but do not let that scare you away. I know you have read many horrible things about it. But think about it this way, if this was working, and you felt great, you wouldn't be on the computer complaining about how great it is. There are a few women who do...don't get me wrong, but there are just more that are on here or other sites because it hasn't worked for them. As for me, I'm in the thick of it. I had the 'normal' side effects for the first two weeks, increase of pain, hot flashes, dizziness, joint/muscle pain. And then it seemed to tapper of...the endo aspect of it anyways. After my second shot I expected to be doing better as 'normally' it takes 4-6 weeks to really start feeling a positive effect, as I was told at the time. A few days after I got my second shot my family and I were out of state for my sister's wedding. I became severly bloated, I mean, pregnant bloated! And misserable. I got through that as best as I could and when we got back home after a few days, I woke up one morning and BAM! My pain, all of my pain came back like I hit a wall or something. I tried to deal with it as best I could but my emotions were uncontrollable. I called my doctor after hours, which I never do...and he told me to come in when he would be back in the office a couple of days later. He also, at that point thought that all of my pain was due to a uti...gave me a script for antibiotics...long story short, I never had one and therefor stopped taking the script. Back on topic....my doctor believes that I, unlike 'most' women was reacting to the lupron in a 'differnt' way. He wants me to finish out my treatment and gave me add-back therapy to help along the way. The only problem is, that along with the side effects of the Lupron and the side effects of Premerin (my add-back), I also have my symptoms of my Endo. Yuck! The way I look at it, and the reason that I don't stop the treatment is the fact that down the road, there is no way that I will take the lupron again and now I will have proof of why. I mean who knows, the third shot may be more helpful, and I won't know untill I go through it. I am forever hopeful to feel 'normal' again, even if that means bleeding everyday like I did before all of this. For me, the Lupron feels poisonous. And yet, even so, I will pray that it will help you. Especially since you will be starting it with add-back...that may really make a difference. If you ever have any questions...going through it, please ask.

~Maggie

At Mon, 25 Jun 2007, Stephanie wrote: >
>Thanks Maggie for your advice! So how have you felt w/lupron these last
>two months? Has it helped w/the pain? How were your first two weeks on
>lupron? I am also hoping that since im starting the add-back therapy
>w/the shot i dnt get the severe side effects, we shall see! Thanks!!
>Steph
>
>At Mon, 25 Jun 2007, mdustin wrote:
>>
>>Steph,
>>The best suggestion I can give you (I'm getting my third lupron shot on
>>Wed.) is to research both medications, as much as you can. So that even
>>if you don't experience certain side effects (I hope you don't), you
>>will be aware of them. One side effect that I was not really aware of,
>>but it was on the packaging of my shot is the dizziness. It really did
>>effect me. I had a very difficult time especially when driving. When I
>>had to concentrate on something is when I couldn't. Hopefully, since
>>they are starting you with an add-back therapy, you won't have the major
>>side effects be so severe. I didn't start my add back untll last week
>>and up untill them, I felt awful. It helps to have the add back in my
>>system, however, I still experience side effects from Lupron...just not
>>as severe. If you have any questions about it, please feel free to
>>write me. Good luck to you.
>>~Maggie
>>
>>At Mon, 25 Jun 2007, Stephanie wrote:
>>>
>>>Good morning ladies!
>>>Well i'll be gng to the docs office to take my 1st Lupron shot! Im a lil
>>>nervous and scared...Ive read posts and most of them scare me a lot. But
>>>either way a lil bit of advice would be helpful for me! Any suggestion
>>>before i start Lupron? I'll also begin taking Agyesting (sp?) as
>>>add-back w/the shot tomorrow.Any bad side effects from Agyestin??I know
>>>theres quite a few w/the nasty Lupron! :( Thanks for the support! Steph

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