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Re: Sciatic Endometriosis (hip, leg pain) - Anyone have it...Anyone been treated properly for it?
From: andrea (anonymous@obgyn.net)
Thu Jun 14 16:13:44 2007
I have had about 3 periods this year where it felt like having both a
pinched nerve in my lower back and like someone was giving me a biopsy
of my cervix, pinching really hard! That freaked me out. Painkillers
would not even work on that! This new specialist I've found (who I've
also mentioned to others on here) says women can get endo ANYWHERE. He
seemed to know more about endo than any other Dr. I've been to. Dr.
John Dulemba in Denton, TX. I am going to him for my first lap surgery
in a month or two. I still get really achy, throbbing pain with my
period, but have not had a "pinching feeling" since I've been taking
this herbal anti-inflammatory. It's called Arnica Montana and you can
get it at Whole Foods or The Vitamin Shoppe. I start taking it 2-3 days
before my period and it seems to be keeping a lot of the swelling down
during my bleeding. I am going to take it before my surgery too, to
minimize swelling. All those other NSAIDS that doctors have given me
over the years, Vioxx, Celebrex...ect, just gave me ulcers!
At Thu, 14 Jun 2007, mdustin wrote:
>
>Hello,
>Yes, I have also experienced hip/leg pain due to what I can only guess
>is the Endo. I have been on lupron for 6 weeks now and just this week,
>my pain came back. One of the major symptoms being leg pain. I woke up
>this morning for instance with throbbing pain, carrying from my right
>side of my stomach and all the way down my right leg as if someone had
>just made an incision running from my side all the way down to my foot.
>It isn't always like that. Most of the time, it feels crampy, like
>someone is squeezing on several areas on both legs and abdomen. I also
>get twitches and spasms from my abdomen, my butt, and both legs. My
>current doctor just believes that it is just another symptom of Endo. I
>told him about the leg pain originally and he scuffed it off as it just
>being a common plague of Endo. Nothing more said. As my pain has come
>back, even though I am on lupron, my doctor chaulked it up to having a
>uti, which even though he gave me a script for, was never determined by
>a test. I took a home test yesterday and it was negative for an
>infection and yet I am still in pain. My doctor actually asked me
>yesterday if it wasn't a uti, what could it be? He assumes that the
>treatments that he gives me will definetly work, and is annoyed when I
>come in and say that it isn't working. I am in the process of finding a
>new doctor...a specialist of Endo. I guess I got a little off topic
>there, but in short, I too have leg/hip pain.
>~Maggie
>
>At Thu, 14 Jun 2007, anonymous@obgyn.net wrote:
>>
>>At Sat, 23 Sep 2006, Tracey wrote:
>>>
>>>At Sat, 23 Sep 2006, Julie wrote:
>>>>
>>>>http://www.hcgresources.com/sciaticthoracic.html
>>>>
>>>>At Fri, 22 Sep 2006, Angela wrote:
>>>>>
>>>>>Hiya all.
>>>>>
>>>>>I am looking for people who suffer with hip and leg pain related to
>>>>>endo, or suspected to be related to endo.
>>>>>
>>>>>It is my very worst symptom and has ruined much of the last decade of my
>>>>>life.
>>>>>
>>>>>I would like to start a mini internet support group just for women with
>>>>>that symptom. Its important because there isn't much info around on it
>>>>>and also alot of GPs and GYNs dont know anything about it. I would like
>>>>>to gang up and compare notes, discover things about it and develop some
>>>>>support material in the form of printouts, for sufferers and for
>>>>>doctors.
>>>>>
>>>>>If you have had this symptom and would like to chat for support and also
>>>>>become a gang in the hopes of raising awareness of this form of endo,
>>>>>please contact me. I am sure there are others out there who suffer as
>>>>>badly as me with this condition and who may have hit brick walls with
>>>>>treatment like I have.
>>>>>
>>>>>This cant go on...I dont want my daughters facing the same helplessness
>>>>>as me if they are unlucky enough to get endo too.
>>>>>
>>>>>Hugs All
>>>>>
>>>>>--
>>>>>Angela
>>>>>
>>>>>angelabishop79@hotmail.com or
>>>>>merseymay@bigpond.com.au
>>>>>
>>>>>--
>>>>>Angela
>>>>>long time endo survivor
>>>>>
>>>--
>>> Hi ladies~
>>> I highly suspect that I have endo on my sciatic berve too.
>>> I get all the symptoms mentioned,... and bad groin pain on the left side which
>>> is also the leg affected and butt.
>>> at times its just there and tolerable,but sometimes it gets so bad that I can barely sit!
>>> The leg pain is like charlie horses! it pulls up the back of my legs,and makes walking hard too.
>>> I onetime searched for answers to my pain as drs. never gave me a reason.
>>> I do think thats whats causing my symptoms in that area. Endo.
>>> my tailbone area hurts alot too,..not sure if thats related or what?
>>> I don't know if its happening around my period since I stopped bleeding with Depo.
>>> I'd be more than happy to discuss this with others who relate.
>>> To better days~
>>> Tracey
>>>
>>--
>>I too have endo which i have had 3 ops for as it was stage 4-5. For 4 years I have had pain tight, burning, prickling, undescribable pain in my hip, groin, leg, back, buttock, sciatica, going down to underneathe my leg, inner thigh, labia and pubic area all on left side. I have been to every doctor and have had x-rays, scans but nothing has showed up. I keep telling my gyne that this is either endo in these areas or a nerve is trapped or something but to no avail. She is finally sending me to a chronic pelvic pain doctor and they might be able to give me a pain block on the nerve if it is a nerve. Also I am starting pysio in two weeks time for back pain so if any of this helps i will let you know. I dont have periods now as i have been put on a constant pill without any breaks but my pain will start up bad in these areas when i come to the end of the pill and also if i get breakthrough bleeding so i know it is connected to either my womb, ovary or endo. As i say the pain is always there but when i bleed it is worse and it is the only thing now that is stopping me from working as i know have my periods under control, hopefully these treatments will work so I can get my life back. I will keep you posted and please anyone feel free to email back to me with symptoms or treatments i think it great that we can share and get support from others. bye for now. teresa
>>
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