ENDO Messages for June, 2007: Re: Anyone have a similar experience and what was your outcome?

Re: Anyone have a similar experience and what was your outcome?

From: Elisa (anonymous@obgyn.net)
Sat Jun 9 20:49:11 2007

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Hi Annon~

I know it can seem dishearting but doing as April said and getting an endo specialist to dissect this is just what you will need. I can tell you from experience and a recent surgery that what your Dr.'s are planning is a very smart move and you will be happy in the end that they cared enough to stop and re-think this and make a solid plan via laparotomy.

Laparoscopes can only offer the least invasive methods necessary, but when they see more areas adhered areas like that they like to go in via laparotomy for better view especially since so many cruicial veins and vessels overlap other functioning organs.

If your Dr. is an endo specialist and your happy with them then I think you will be in good solid hands. If they are not, well you at least have the recent findings from this to take to the specialist and they will know where to pick up. They are also really good with fertility issues post surgery as well. I just had a mini-team of a vascular, urological, endo and colorectal do mine and they brought in the Endo and Colorectal during the whole procedure and called in the others when they were needed for their areas. It was a good plan and we took 3 months to get ready and talk it all out.

I hope you find some relief soon. It will be OK...I am just grateful they didn't take the easy way out and say it was nothing and send you home and your organs are still stuck together. I had a lap last January and they said it looked "pristene" and this time the colon was attached to the bladder and other areas as well as the cervix was very adhered and needed removed as well and I feel so much better than before.

I will be thinking of you and I pray you find the answers you are seeking. I hope this helps a bit in your decision making.

Good Luck and hang in there...

Thinking of you...

--
Elisa

At Sat, 9 Jun 2007, anonymous wrote:
>
>How possible is it to find an excision specialist in your area? I would
>look at that as an option first.  They will do it right, and not close
>you up to go back in again (at least I don't think so-my endo hasn't
>gotten to that point yet, but if it did-I would be looking for an
>excision specialist).  A lot of your adhesions are probably from the
>endo scarring, so if the excision specialist can cut out all of your
>endo-you should have relief, and a better chance of the endo not coming
>back.  No matter what you choose to do I wish you luck.  Have a pain
>free weekend:)
>
>April
>
>At Fri,  8 Jun 2007, greyladybug wrote:
>>
>>I was diagnosed with stage IV endo April 06 after a laparotomy to remove
>>right ovary d/t a 10cm cyst.  I had a lot of endo on my bowels that they
>>had to remove.  In march of this year, I found I had a new cyst on left
>>ovary, this one 12cm.  I had a lap on Tuesday to remove the cyst, but
>>when they got in my abodomen, I had a lot of adhesions, and my ovary was
>>covered with my small bowel.  They closed me back up and rescheduled my
>>surgery for July when a gyn oncologist could be there along with my
>>reproductive doc to help get the bowel moved.  My question is if any of
>>you think another surgery is worth it or not.  My fear is that a lot of
>>my pain is caused by the adhesion pain and bowel involvement rather than
>>the endo.  And if it is being caused by those things, another surgery
>>will just make the adhesions worse and what is there to stop my bowel
>>from ending up all stuck to everything again? Plus, my doc really don't
>>know that it will help my fertiltiy at all.  And if it is not going to
>>help my fertility or my pain, why should I have an open abdominal
>>surgery again? Any advice or similar experiences would be really
>>appreciated.

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