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Re: Anyone with endo and urinary tract issues-just found out I have a stone.

From: anonymous (anonymous@obgyn.net)
Fri Jun 8 09:05:25 2007

Hi there!

I don’t know if I have any of the answers that you are looking for but I thought I would give you my story. I have had terrible cramps since about the age of 14 (I’m 26) and everyone told me it was normal. When I was 16 I had intense right sided pain for one day and then it went a way. I was still feeling sick so I went to the doctor the next day…eventually he did an ultrasound and it appeared that my appendix was swollen so it was removed via lap. When I was 18 (almost 2 years to the day) I went to the hospital with extreme flank pain again and they wanted a urinalysis. When I peed in the cup it was entirely blood. I was admitted into the hospital with a blocked kidney and could not pass the stone. Eventuall,y I had to have it removed and my doctor said it was the size of a nickel. Everyone thought it was strange for me to have a kidney stone at such a young age, but no one followed up with me about what I should do. I was just told that I would keep getting them. About 2 years ago I started getting that same pain again around the time that I ovulate and through the first 3 days of my period. Some times it is very intense and some times it is just a dull stabbing pain. Finally, I couldn’t take it anymore and I went to the gynecologist (I never go to the doctor). Long story short, I had a lap which diagnosed me with mild endo and some of it is on my ureter (left side…and I have more right sided pain then left). I also had a 7 cm cyst on my left ovary and in a previous ultrasound had a 5 cm cyst on my right ovary. My doctor did not remove the endo on my ureter it and he was not interested in telling me what he did during the surgery; he just wanted to put me on depot shots. I said ok…and left. I then researched everything that I could and I also found Dr. Cook. Maybe my disease isn’t as bad a some, but the pain is real and to be honest I was surprised to hear that my case wasn’t that bad! I also don’t want to be treated by people who aren’t specialized in the disease…I figured if I am finally going to go to the doctor, I had better go to the right one so that I don’t have to go anymore! I also believe that my endo caused my kidney stone and possibly was on my appendix. I have asked Dr. Cook to look into this when I undergo my next surgery (I am not sure what he thought). I will let you know what Dr. Cook says. My suggestion is to try to find the assistance of a specialist. I hoped this helped and good luck. Just remember to listen to your body…

At Thu, 7 Jun 2007, anonymous wrote: >
>Hey girls just looking for some support. Thanks to this board I kept
>asking more and more questions from my doctor and now I have answers.
>Just a few months ago my doctor made the comment "I see people that are
>sicker than you every day" (I was very suprised at this comment, because
>my obgyn has always been very supportive and compassionate, but that
>hurt). This is what happened. I have an 11+ year history with endo. In
>the past year and a half I have had 10 UTI's. So I sat up the night
>this comment was made to me, and I was upset-so I wrote my doctor a
>letter-it was 3 pages. In it I brought up some possibilities (one of
>them endo). We scheduled a laparoscopy and during the proceedure he
>found that the endo had come back. It was on my left ovary and
>ligament, on the back of my uterus, and there was scar tissue going from
>the upper part of my abdominal wall to my peritoneum. (Okay now the
>doctor told me at that same appt that he basically said I had no real
>issues-that he didn't think there was any problem with my immune
>system-also in a prior appt I asked if I should do a kidney function
>test-he said we could but your kidneys are fine). So there is endo-an
>immune disease. I go in for my post op appt this Tuesday and there I
>tell him I am still having right flank pain-he showed me where he cut
>out the scar tissue (and I tell him the pain is definitely in the back),
>I think he would have just let me leave, or put me on an antibiotic to
>take daily, but I asked (because of Dr.Daiters advise) if this could be
>a kidney stone causing this excruciating pain (not to downplay endo
>pain-because it is painful too, but combined with this pain I could take
>2 percocets and 2 ibuprophen and I would still have to sleep on an ice
>pack-just to dull the pain). So he looks at me and says we would have
>caught that in the begining. I told him-we did an ultrasound of my
>gallbladder and kidney about 2.5yrs ago, prior to the infections. So he
>ordered a CT for this afternoon. After the CT they told me that I have
>a 6mm Kidney stone that has already passed from my kidney and into my
>ureterer-it is almost to my bladder. I used to have so much faith in my
>doctor, but at this very moment I am actually kind of like-I hope he
>feels bad for what he said to me-I am not a hypochondriac (sp)-I have
>had endo growing inside of me-wearing down my immune system, and I have
>had a kidney stone for this period of time. Has anyone had kidney
>stones and how did you handle it? I am a little scared. A urologist is
>supposed to be contacting me tonight with my orders and to tell me what
>medications I will be taking. I am still recovering from my lap-anyone
>know how this might me affected by this?

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