ENDO Messages for June, 2007: Re: Adenomyosis Symptoms?

Re: Adenomyosis Symptoms?

From: D (anonymous@obgyn.net)
Fri Jun 8 08:58:37 2007

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I wanted to note that menopause does not always "cure" endo! Just like the medically-induced menopause of Lupron doesn't always help endo pain, neither hysterectomy (surgical menopause) nor natural menopause are any guarantee that the endo will go away.

Seeing a really good endo excision specialist like Dr. S is the best thing you can do for yourself at this point, in my opinion. And being that the only treatment for adenomyosis is a hysterectomy, if I wasn't really certain I think it's totally reasonable to have the endo thoroughly excised first, then if that doesn't help enough, you can alway have the hysterectomy later. Although multiple surgeries raise the risk of adhesions, it would be worth it to me take that risk for the chance of saving my uterus. (Sometimes it shows up on ultrasound or MRI, but not reliably enough for a conclusive diagnosis.)

A lot of women with endo seem to have a tilted uterus, but I've never heard anything about it being connected to adenomyosis - maybe someone else can clear that up?

Good luck!

At Thu, 7 Jun 2007, endo wrote: >
>At Thu, 7 Jun 2007, Stephanie wrote:
>>Hi, Steph!!
>
>I have been told I have a tilted uterus as well and Dr. Sinervo has
>reviewed my records and he thinks I have adenomyosis too. I don't know
>if that means anything that we both have a tilted uterus????
>Interesting! I, too, don't want to wait til I go thru menopause (I'm 33)
>to get rid of the pain so I am going to see Dr. Sinervo at the Center
>for Endo Care in July to have the endo excised. I will keep you all
>posted once I return. I pray it will do the trick!!
>
>Thank you for posting your story!
>Charissa
>>Hello everyone! Well iv been doing some research on Adenomyosis because
>>i wasnt sure of what this was about. Some of the symptoms for
>>adenomyosis match w/my symptoms. However, i had a lap done in April,
>>and i was diagnosed w/endo stage II and my doctor didnt mention anything
>>about me possibly having adenomyosis. Iv also had an ultrasound done
>>and nothing there either. But i have been told that i have a tilted
>>uterus. So, my question to the ladies who have adenomyosis is what were
>>there symptoms are like and how was it diagnosed. I have so many
>>symptoms that can be just caused by endo, but that can also be other
>>things such as IC or adenomyosis. Its so depressing having to deal
>>w/endo at such a young age, im 24 and to know that this wont go away
>>until menopause, drives me nuts!! Thanks in advance! Steph :)

Next message: Becky: "classic symptoms of endo?"
Previous message: April: "Re: Surgery with Dr. Andrew Cook"
In reply to: endo: "Re: Adenomyosis Symptoms?"
Next in thread: Stephanie: "Re: Adenomyosis Symptoms? to Charissa"

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