ENDO Messages for June, 2007: Re: ally bad pain after internal exam? to Debbie

Re: ally bad pain after internal exam? to Debbie

From: Debbie (anonymous@obgyn.net)
Thu Jun 7 22:30:48 2007

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In reply to: josie: "Re: really bad pain after internal exam? to Debbie"

Hi Josie,

It's possible that your uterus could appear normal on the surface but have something going on at a deeper level. Adeno is not necessarily visible to the naked eye, and can still be missed on ultrasound and MRI. The only definitive way is to either take biopsies or send the entire thing to the pathology lab after a hysterectomy. However, none of these things are actually going to help and occasionally you can get by with a presumptive diagnosis only if your symptoms fit. Just knowing you have it makes you think about it and research it more, but even then, if you find out you have it, there is no cure and the only thing left is hysterectomy. I know it sucks and it's very depressing but if you do have it it's only going to get worse. At the same time you don't want to go and have a hysterectomy and then find out you didn't have it! Hold on for a while and track your pain. Read up on Adeno and see if it fits. Maybe you can have a biospy in the future. I hope you won't need another lap but if you do that would be a good time to take it. My doc took one because he actually saw the Adeno on ultrasound before he did the surgery because the lesions were so obvious. At the end of the day it's all about quality of life. Right now mine is going downhill at a rapid rate, and no matter how much I protest I know that a hysterectomy is inevitable for me after seeing the photos from my lap, and knowing that this condition is getting more and more progressive.

I hope you find your answers.

--
Debbie
=+=+=+
At Thu,  7 Jun 2007, josie wrote:
>
>Hi Debbie...thanks for your response! Good luck with your
>hysterectomy...I'm sorry you have had such pain...I already had two
>laps, but the doctor was mainly concerned with taking out my
>ovary/endometrioma and didn't do a biopsy...he said my uterus looked
>normal, but that is always where my pain was coming from, not the ovary!
>I've had trouble with tampons and sex too since they took out my Mirena
>in January...my new doc suggested trying the Mirena again, because I had
>very little pain or bleeding for the four years I had it in...I am
>really nervous to have it put in because I am so sore down there, but
>she said it will be tough for a few days and then hopefully i will have
>the same low pain experience as before...I am 41 and hoping that i can
>last a few more years without a hysterectomy...i am sooo sick of the
>hospital this year!! I have been in so much more pain since the exam
>that I am back on pain meds during the day...it is kind of depressing to
>back track when i thought i was getting better....The weird thing is
>that neither my MRI or ultrasounds showed the adeno, but they did say I
>had the blood flow of a 4 month pregnancy at one of them and put me in
>the hospital for a few days for "infection." It sure is a long road to
>get to the bottom of stuff....well, i really hope you feel better..
>
>At Wed,  6 Jun 2007, Debbie wrote:
>>
>>I had exactly the same experience.  Having an internal ultrasound left
>>me in agony for days.  I didn't have hives but I did have severe cramps
>>that incapacitated me.  When the doctor did an internal I was wincing in
>>pain and he suggested that I had Adenomyosis because of this issue and
>>also because he saw it on ultrasound.  I have had lots of pain issues
>>with inserting tampons too, and wondered why this was.  As soon as I put
>>in a tampon I would double up in pain from cramping.  When I had my lap
>>a month ago, it was confirmed that I have severe Adenomyosis that has
>>eaten two large holes in my uterus and now I need to have a
>>hysterectomy.  Unfortunately, while laps can help Endo, they cannot help
>>Adeno as it can only be cured by a hysterectomy.  It can be tentatively
>>diagnosed by MRI or ultrasound if your doctor is very experienced, but
>>it is best diagnosed by uterine biopsy, as mine was.  Are you planning
>>on having a lap? If so then make sure they do a biopsy.
>>
>>--
>>Debbie
>>
>>At Wed,  6 Jun 2007, josie wrote:
>>>
>>>I was wondering if anyone knows why an internal exam would cause such
>>>agony.  the new doc was really nice and gentle, but was trying to get a
>>>handle on where most of my pain is....she said she thinks I have
>>>adenomyosis because my uterus is so tender (way more tender than where
>>>my endometrioma/ovary was)...after she pushed on my uterus i got the
>>>worst cramps and felt really nauseous and my whole body got red
>>>splotches almost like hives for a few hours...i get this nausea/flushing
>>>when i have my physical therapy for pelvic spasms too...does this sound
>>>similar to anyone with adenomysis? this is the first time this has been
>>>mentioned to me as a possible problem...any info would be so
>>>appreciated...THANKS!! also, does anyone have experience with this
>>>pain/hive thing?
>>

Next message: April: "Re: Surgery with Dr. Andrew Cook"
Previous message: Debbie: "Re: tired and fatigued all the time, any ways to loose weight with these issues?"
In reply to: josie: "Re: really bad pain after internal exam? to Debbie"

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