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Re: Adenomyosis Symptoms?From: Debbie (anonymous@obgyn.net)Thu Jun 7 22:16:14 2007
I have a tilted uterus and I definitely have Adeno...it was diagnosed at my last lap by biopsy and ultrasound. It had eaten two large lesions through my uterus and they were deeply invasive. Apart from the focal lesions I also have diffuse Adeno (meaning all over). My symptoms are excrutiatingly painful periods, bloating (so much so I look 6 months preganant), pain after inserting tampon, pain after internal exam and pain after sex. I am also unable to pull anything heavy as it cause a terrible feeling in my belly like my uterus is going to fall out but I'm not sure how much that is to do with Adeno and how much is to do with the fact I had very invasive Endo on my uterine ligament. All in all, because of the terrible mess my uterus is in, I now have constant pain and there has been no relief since my lap apart from a released ovary which made me unable to bend down because it was embedded in my pelvic wall. My only choice now is for a hysterectomy but I am not sure I want to do it. I'm also not sure I can live like this either so I'm contemplating my options right now, which aren't many!
-- Debbie =+=+=+ At Thu, 7 Jun 2007, Kim wrote: > >Funny, I also have a tilted uterus and docs think I have adeno too. >Having third lap on tuesday, excising what he finds. I have strange >anxiety about this lap for some reason. Wasn't like this for last 2. >Maybe because I'm getting closer to that stage where I know I should >stop TTC. I don't know. Never know about the adeno unless a >hysterectomy I suppose. > >At Thu, 7 Jun 2007, endo wrote: >> >>At Thu, 7 Jun 2007, Stephanie wrote: >>>Hi, Steph!! >> >>I have been told I have a tilted uterus as well and Dr. Sinervo has >>reviewed my records and he thinks I have adenomyosis too. I don't know >>if that means anything that we both have a tilted uterus???? >>Interesting! I, too, don't want to wait til I go thru menopause (I'm 33) >>to get rid of the pain so I am going to see Dr. Sinervo at the Center >>for Endo Care in July to have the endo excised. I will keep you all >>posted once I return. I pray it will do the trick!! >> >>Thank you for posting your story! >>Charissa >>>Hello everyone! Well iv been doing some research on Adenomyosis because >>>i wasnt sure of what this was about. Some of the symptoms for >>>adenomyosis match w/my symptoms. However, i had a lap done in April, >>>and i was diagnosed w/endo stage II and my doctor didnt mention anything >>>about me possibly having adenomyosis. Iv also had an ultrasound done >>>and nothing there either. But i have been told that i have a tilted >>>uterus. So, my question to the ladies who have adenomyosis is what were >>>there symptoms are like and how was it diagnosed. I have so many >>>symptoms that can be just caused by endo, but that can also be other >>>things such as IC or adenomyosis. Its so depressing having to deal >>>w/endo at such a young age, im 24 and to know that this wont go away >>>until menopause, drives me nuts!! Thanks in advance! Steph :)
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