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Anyone with endo and urinary tract issues-just found out I have a stone.From: anonymous (anonymous@obgyn.net)Thu Jun 7 17:15:23 2007
Hey girls just looking for some support. Thanks to this board I kept asking more and more questions from my doctor and now I have answers. Just a few months ago my doctor made the comment "I see people that are sicker than you every day" (I was very suprised at this comment, because my obgyn has always been very supportive and compassionate, but that hurt). This is what happened. I have an 11+ year history with endo. In the past year and a half I have had 10 UTI's. So I sat up the night this comment was made to me, and I was upset-so I wrote my doctor a letter-it was 3 pages. In it I brought up some possibilities (one of them endo). We scheduled a laparoscopy and during the proceedure he found that the endo had come back. It was on my left ovary and ligament, on the back of my uterus, and there was scar tissue going from the upper part of my abdominal wall to my peritoneum. (Okay now the doctor told me at that same appt that he basically said I had no real issues-that he didn't think there was any problem with my immune system-also in a prior appt I asked if I should do a kidney function test-he said we could but your kidneys are fine). So there is endo-an immune disease. I go in for my post op appt this Tuesday and there I tell him I am still having right flank pain-he showed me where he cut out the scar tissue (and I tell him the pain is definitely in the back), I think he would have just let me leave, or put me on an antibiotic to take daily, but I asked (because of Dr.Daiters advise) if this could be a kidney stone causing this excruciating pain (not to downplay endo pain-because it is painful too, but combined with this pain I could take 2 percocets and 2 ibuprophen and I would still have to sleep on an ice pack-just to dull the pain). So he looks at me and says we would have caught that in the begining. I told him-we did an ultrasound of my gallbladder and kidney about 2.5yrs ago, prior to the infections. So he ordered a CT for this afternoon. After the CT they told me that I have a 6mm Kidney stone that has already passed from my kidney and into my ureterer-it is almost to my bladder. I used to have so much faith in my doctor, but at this very moment I am actually kind of like-I hope he feels bad for what he said to me-I am not a hypochondriac (sp)-I have had endo growing inside of me-wearing down my immune system, and I have had a kidney stone for this period of time. Has anyone had kidney stones and how did you handle it? I am a little scared. A urologist is supposed to be contacting me tonight with my orders and to tell me what medications I will be taking. I am still recovering from my lap-anyone know how this might me affected by this?
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