ENDO Messages for June, 2007: Re: Hello....HELP!!

Re: Hello....HELP!!

From: endo (anonymous@obgyn.net)
Sat Jun 2 22:41:06 2007

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In reply to: Stephanie: "Hello....HELP!!"
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Reply: Stephanie: "Re: Hello....HELP!! to...Charissa"

Hi,Stephanie,

I have also been told numerous times by my GYN that I should take Lupron just to see if it helps and if it does then a hysterectomy would benefit me. I totally disagreed with her. I had my 1st lap to diagnose endo in Dec 06 and I began having the endo pain again the end of Feb 07. I told my GYN first I wanted to try diet and exercise. I tried but probably not hard enough. I also have been seeing a reflexologist and it helps with my stress levels but i don't know about the pain. My pain is almost constant now. I have been so frustrated trying to find an endo specialist here in IL...I did find Dr. Ken Sinervo at Center for Endometriosis Care in Atlanta GA and I have my excision surgery scheduled for july 25. I will probably have a partial hysterectomy done in addition to the endo being excised. I realize that there is no known cure but I feel this is my best alternative. Dr. Sinervo gave me a 98% chance that I would be pain free if I had the partial hysterectomy done.(best chance I've heard yet!) In my opinion, the lupron is just a bandaid. My GYN basically told me to take this Lupron to stop the spread of endo.(yeah, right) I just wasn't comfortable taking something I knew up front had such terrible side effects. I will be posting on here to let everyone know how my experience was and how I feel afterwards. I pray this will be the beginning of pain free days ahead. I am so glad I have a place like this to go, where someone can truly relate to what I am going through :) I wish you and everyone pain free days!! Charissa

At Sat, 2 Jun 2007, Stephanie wrote: >
>Hello everyone, i also posted this message at my other support group so
>some of you might read this twice...but im just so sad, i feel alone!
>Heres what happened today i had an appt with a new gyn (who i had heard
>was one of the best in my area) for a second opinion on my
>endometriosis. I explained everything thats happened in the last 2 1/2
>yrs. He conducted a pelvic and rectum exam! :( they were so PAINFUL, i
>actually cried!! The doctor is really nice and seems to understand what
>im gng thru. BUT....he agreed with what MY gyn said..to take 6 months
>of Lupron and if in those six months or before the conditions gets worse
>than we should do another surgery and that he would be there to assist
>my doctor. Im kind of upset because i thought he would of said lets CUT
>out the endo asap so i can move on with my life! and he didnt. So, im
>gng to start my Lupron treatment sometime this month. I PRAY that
>everything comes out fine, and i dnt get all of those HORRIBLE side
>effects...He also recommended me to take out my appendix when i do my
>2nd lap, which will probably be sometine in December, if not sooner! So,
>we will see how that goes!! Im so scared and frustruated at the same
>time! I've been in more pain ever since my surgery...and the pain meds
>they are giving me currently arent working for me! I guess il have to
>sit down with my doctor and tell her that i NEED some other type of pain
>meds that can help and hope she dnt think im a druggie or something!
>Thats why iv held back from telling her last time i seen her!! Wish me
>LUCK!! Sorry for the long story, but i just needed to vent!! I went to
>that appt thinking i was gng to come out feeling happy and instead i
>came out almost in tears, because i really didnt want to take Lupron!!
>Oh well, lets pray it works, at least for a lil bit!!!! SORRY once again
>for this LONG VENTING STORY!!! Steph :) Have a good weekend!

Next message: anonymous: "Re: Endo in the brain? M"
Previous message: M: "Re: Endo in the brain? April"
In reply to: Stephanie: "Hello....HELP!!"
Next in thread: Stephanie: "Re: Hello....HELP!! to...Charissa"
Reply: Stephanie: "Re: Hello....HELP!! to...Charissa"

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