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Re: Endo in the brain? AprilFrom: M (anonymous@obgyn.net)Sat Jun 2 22:10:35 2007
Hi April It sounds like you as well have been through a lot lately. I posted this question because I recently had an MRI & MRA done of my neck and head. On the MRA they found something with a blood vessel in my brain. They said it could be a possible anyerism but they were not sure. To make a long story short I saw a neurologist and neuro surgeon and both wanted to have a particular test done. However my insurance co says no because it is expensive. My doc is now out of town until June 11 so I have to wait and see what to do next. So I was just wondering if anyone had a problem with endo in their brain or had more info. I have found limited info on this because its rare. (Although I doubt its endo). I will keep you in my prayers too. M At Sat, 2 Jun 2007, anonymous wrote: > >I have not, but I have heard that it is possible. I have not spoken to >anyone who has experienced it, however I am talking to my doctor on >Tuesday-post op-lap confirming endo for the 3rd time. I have numerouse >cysts on the scalp and in other areas of my body, so I am going to ask >if there is some type of scan to see if there are cysts elsewhere as >well. I would like to have all of them removed and tested to see if >they indeed are endo as well. He will probably think I am crazy, but >one of the lumps on the top of my head has quadrupled in size over the >last 6 months. I NEVER had a cyst before my period began when I was 11, >and I think they started about the same time my endo started causing the >pain and bleeding that it did. If by some reason it is I will certainly >post on this forum to let everyone know. This way any woman living with >endo will take every small lump seriously, and hopefully the doctors as >well. I have been told that the only way endo has been diagnosed in >areas of the body not seen by laparoscope is if there is another >procedure being done in those areas for example removing part of the >lung or diaphram-they find endo. I am almost positive that I have endo >either on the base of the lung or the top of my kidney-I have had >constant debilitating flank pain-I am going to demand an ultrasound of >that area to rule out stones, I just had a lap and a cystoscopy and IC >has been ruled out as well as endo on the urinary tract (yet I have had >10 UTI's in the last year and a half). Endo is such an awful disease in >part because it is not well understood-by sufferers and doctors alike. >Did you post your question because you suspect something as well? >Sometimes if there is someone else going through it with you-you can >find some comfort in knowing you are not alone. I wish you well. > >April > >At Fri, 1 Jun 2007, M wrote: >> >>I was wondering if anyone here has endo in their brain?
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